The following was sent to ME Essential, the ME Association members magazine, and was dictated by someone with severe ME by her husband who is also her full-time carer.
“I’ve been suffering with ME for several years now. I’m currently very severely affected and in bed most of the time.
“My worst symptoms are:
- Insomnia and disturbed sleep,
- Chronic palpitations,
- Vile nervous impulses going up and down my body,
- Sensations of rocking and swaying, going over hump-back bridges, crashing up and down on the ocean waves and going up and down in a lift,
- Dreadful mental anguish,
- Feeling my brain is shutting down,
- Feeling very ill and very weak.
“What I miss:
- Relations and relationships (being a wife, a mother, a grandma, a sister and a friend),
- Interests and hobbies (e.g. Zumba, voluntary work),
- Reading and writing,
- Talking on the phone,
- Watching television,
- Going shopping,
- Going out for the day and on holiday,
- The wind in my hair, sun on my face and the smell of outdoors.
“My friends keep in touch by email and my relatives by phone (through my husband).”
We felt that this list, dictated to our member’s husband and full-time carer, highlights so very well the sort of issues M.E. can cause and the affect it can have on life.
Normal life becomes a thing of the past, with simple things that most people take for granted becoming at least difficult, at worst impossible.
Help us to keep medical professionals informed about ME
This is why we want to help your GP and other medical professionals to understand this illness better. We sent out over 300 magazines last month to surgeries and specialist services, and the mailing list is growing nicely.
With your help we want to eventually reach tens of thousands of medical professionals and keep them informed of all the latest developments.
If you have not already sent us your GP surgery details, then please do.
It means that we can send your GP or other health professional a copy of ME Essential magazine and information about M.E. that will help them to better understand how this disease affects people like you.
Your information will be kept confidential. Please email firstname.lastname@example.org (Editor, ME Essential) and we will put their details onto our mailing list.
ME Awareness Week Monday 11th – Sunday 17th May 2020
The ME Association
Please support our vital work
We are a national charity working hard to make the UK a better place for people whose lives have been devastated by an often-misunderstood neurological disease.
If you would like to support our efforts and ensure we are able to inform, support, advocate and invest in biomedical research, then please donate today.
Just click the image opposite or visit our JustGiving page for one-off donations or to establish a regular payment. You can even establish your own fundraising event.
ME Association Registered Charity Number 801279