August 2019

Canada invests $1.4M in biomedical research to improve the quality of life of people living with M.E. | 23 August 2019

It is estimated that more than 580,000 Canadians live with myalgic encephalomyelitis (ME), formerly known as chronic fatigue syndrome.

Canada invests $1.4M in biomedical research to improve the quality of life of people living with M.E. | 23 August 2019 Read More »

It is estimated that more than 580,000 Canadians live with myalgic encephalomyelitis (ME), formerly known as chronic fatigue syndrome.

The Telegraph: Narrow doors and no hoists: why disabled women can’t have life-saving cervical cancer screening with Jo Moss | 10 August 2019

All women are invited to cervical screening, and all women should be able to have access to a test.

The Telegraph: Narrow doors and no hoists: why disabled women can’t have life-saving cervical cancer screening with Jo Moss | 10 August 2019 Read More »

All women are invited to cervical screening, and all women should be able to have access to a test.

Independent researchers determine mitochondrial test is unreliable and should not be used as test in ME/CFS | 09 August 2019

The long-awaited independent assessment of Dr Myhill’s mitochondrial function test was published earlier this week.

Independent researchers determine mitochondrial test is unreliable and should not be used as test in ME/CFS | 09 August 2019 Read More »

The long-awaited independent assessment of Dr Myhill’s mitochondrial function test was published earlier this week.

The Sun: TRAPPED I’ve spent six years in a dark bedroom after virus triggered ME at 16 – but docs say it’s ‘all in my head’ | 09 August 2019

Laura, now 25, has chosen to lay bare the brutal reality of life with M.E. – which affects 250,000 people in the UK.

The Sun: TRAPPED I’ve spent six years in a dark bedroom after virus triggered ME at 16 – but docs say it’s ‘all in my head’ | 09 August 2019 Read More »

Laura, now 25, has chosen to lay bare the brutal reality of life with M.E. – which affects 250,000 people in the UK.

Severe ME Day: Life in a Nursing Home, Light Sensitivity and Very Severe M.E. by Eira Stuart | 08 August 2019

The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.

Severe ME Day: Life in a Nursing Home, Light Sensitivity and Very Severe M.E. by Eira Stuart | 08 August 2019 Read More »

The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.

Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019

The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.

Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019 Read More »

The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.

MEA Press Release: Severe ME Day – M.E. sufferers hit out at ‘humiliating’ DWP benefit assessments | 08 August 2019

“Many only succeed in obtaining the benefits they should be entitled to after going through a long and stressful appeal process.” Dr Charles Shepherd.

MEA Press Release: Severe ME Day – M.E. sufferers hit out at ‘humiliating’ DWP benefit assessments | 08 August 2019 Read More »

“Many only succeed in obtaining the benefits they should be entitled to after going through a long and stressful appeal process.” Dr Charles Shepherd.

Wales Online: The frail teenager set to spend all of her summer holidays in her bedroom by Mark Smith | 07 August 2019

“Most days she is in bed, but we try to make life as normal as it can be for her. We have to stay strong for her.”

Wales Online: The frail teenager set to spend all of her summer holidays in her bedroom by Mark Smith | 07 August 2019 Read More »

“Most days she is in bed, but we try to make life as normal as it can be for her. We have to stay strong for her.”

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