It is estimated that more than 580,000 Canadians live with myalgic encephalomyelitis (ME), formerly known as chronic fatigue syndrome.
Physios 4 ME report on the results from the MEA website survey that took place in July.
Dr Morten provides additional comment on the recent validation attempt of the Acumen test and we include a detailed report.
Very Severe ME: It’s Time for Something New! By Greg Crowhurst | 16 August 2019 Read More »
I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.
Dr Sarah Jarvis talks The Sun through the main signs your exhaustion could actually be a symptom of ME/CFS.
Top 7 Tips for Claiming Disability Benefits with M.E. by Ann Innes | 14 August 2019 Read More »
The MEA’s Welfare Rights Adviser provides her top-tips for people with M.E. when applying or renewing ESA and PIP.
All women are invited to cervical screening, and all women should be able to have access to a test.
The long-awaited independent assessment of Dr Myhill’s mitochondrial function test was published earlier this week.
Severe ME Day: Caring for someone with Severe M.E. by Sarah Boothby | 08 August 2019 Read More »
Anonymity is a cover for the disappointment that is only overwhelmed by the relentless exhaustion of M.E.
Laura, now 25, has chosen to lay bare the brutal reality of life with M.E. – which affects 250,000 people in the UK.
The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.
Severe ME Day: ‘LIFE’ with Very Severe M.E. – A poem by Natasha Adams | 08 August 2019 Read More »
Day after day this fragile hope is crushed, shattered, ground down like broken glass. Monotony, drudgery, despair! How can I escape?
Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019 Read More »
The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.
“Many only succeed in obtaining the benefits they should be entitled to after going through a long and stressful appeal process.” Dr Charles Shepherd.
The ME Show Special: Severe M.E. and Benefits with Gary Burgess | 08 August 2019 Read More »
We are delighted that Gary Burgess has recorded a special episode that considers the Real impact of Severe M.E. with Jo Moss and Ann Innes.
Navigating Disability Benefits – Hints, Tips and Information Resources | 07 August 2019 Read More »
Navigating the benefits system can be very challenging with M.E. We hope that this resource will improve your chance of a successful outcome.
We need to speak up for those who cannot by Charlotte Stephens | 07 August 2019 Read More »
They don’t see the days spent in tears from being in so much pain and the frustration of not being able to spend time with them.
“Most days she is in bed, but we try to make life as normal as it can be for her. We have to stay strong for her.”
Cognitive symptoms are common for everyone who has M.E., but it is the cognitive fatigue which disables me the most.
This ombudsman decision shines a light on the difficulty that some people with M.E. face in obtaining social care.
