NICE ME/CFS Clinical Guideline: Draft Scoping Report Published Ahead of Stakeholder Meeting on Friday | 21 May 2018


By Dr Charles Shepherd, Hon. Medical Adviser, ME Association.

Last Thursday, the ME Association as stakeholders in the ME/CFS clinical guideline review received a draft scoping report from NICE.

The draft scoping report sets out the parameters by which NICE will create the content for the new guideline for ME/CFS and it will be discussed at the scoping workshop for stakeholders this coming Friday.

There will then be a short period of consultation, whereby stakeholders can feed back any comments or concerns about the draft scope, before the appointed guideline development group get to work on the main content.

The schedule is as follows (although this may be subject to change):

Scoping workshop 25 May 2018
Committee member recruitment 21 June 2018 – 19 July 2018
Draft scope consultation 21 June 2018 – 26 July 2018
Draft guidance consultation 14 April 2020 – 26 May 2020
Expected publication 14 October 2020

We will update you with more information following Friday’s meeting, including how to apply for the lay member recruitment to the guideline development group.

At this stage, please do not forward any comments about the content of the new guideline, or tell us what you feel is wrong with the current guideline.

We will let you know when we are ready for your feedback, and we are currently considering a survey for this purpose.

In advance of Friday’s meeting we just wanted to let you know what was happening, and show you the draft scoping report. Following the meeting, we will then ask for any feedback you might like to give.


  1. The 2018 Draft Scoping Report for the New NICE ME/CFS clinical guideline
  2. The 2015 Final Scoping Report for the Current NICE CFS/ME clinical guideline






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