Index to Frequently Asked Questions in our ‘ME Essential’ magazine | 2006-2012


 
 
 
 
 
 
 
 
 
LEFT: The cover of our latest issue of our ME Essential quarterly magazine, Copies are posted to every member of the ME Association.

UPDATED: August 2012

Acne treatment and ME, including Roaccutane (Autumn 2011)

Activity management – gym based programme (Autumn 2009)

Acyclovir and oral herpes (Summer 2012, page 14)

Addisons disease (Winter 2009)

Alcohol intolerance (October 2007)

Alcohol intolerance – what is the cause? (Spring 2012, p15)

Amitriptyline (Summer 2010, p9)

Amitriptyline for headaches (Spring 2011)

Anaemia – iron deficiency (Autumn 2009)

Animal testing (Winter 2009)

Antibiotics – are they safe for people with ME/CFS? (April 2008)

Appetite – change in (Summer 2012, p14)


BENEFITS


Atos interviews – permission to record (Summer 2012, p19)

Benefit medical examinations at home (Spring 05)

Carer’s credits (Autumn 2011)

ESA appeals (Winter 2010 and Autumn 2011)

Industrial Injury Benefit (Winter 2010, p13)

Sickness certificates from a GP (Spring 2011)

Tribunal – attending one (Summer 2012, p14)


Beta blockers (April 2007)

Biobank – donations of blood samples (Spring 2011)

Blood donation and ME/CFS – can I give blood? (April 2008)

Blue Badge problems (April 2008)

Blue Badge refusals (Spring 2012, p15)

Body piercing – hazards of (Winter 2010, p12)

Book list (Autumn 2011)

Car driving – can I still drive? (February 2009)

Carer’s credits (Autumn 2011)

Cavity wall insulation (Winter 2012)

Changing a GP (Summer 2010, p8)

Chocolate (January 08)

Classification of ME/CFS (Winter 2012)
Classification: Illness or Disease? (Summer 2012, p15)

Coeliac disease (April 06)

Coeliac disease – home testing kits (January 08)

CD and wheat intolerance (Winter 2010, p13)

Cold fingers and toes (Spring 2010)

Contagious – is ME/CFS? Can it be passed to other family members (July 2008)

Cortisol – investigating low levels (November 2008)

Creatine kinase blood test (Winter 2010, p14)

Creatine supplements (April 06)

Critical Illness Insurance (Autumn 2009)

Curcumin for fatigue (Summer 2011)

Dental anaesthetics (Spring 2010)

Diagnosis – is it correct? (July 2008)

Disabled students allowance (Winter 2009)

Dry eyes (Autumn 2009)

DLA care component: cooking test (January 08)

Disability Discrimination Act (April 07)

Drugs, including statins, that can cause muscle problems (November 2008)


EMPLOYMENT


Employment problems (Autumn 05)

Employment: gradual return to work (Winter 2009)

Employment: ill health retirement criteria (Spring 2011)

Employment: should I tell my employer that I have ME/CFS (Spring 2011)

Employment: sickness certificates from a GP (Spring 2011)


Endometriosis (July 07)

Ehlers-Danlos syndrome (Spring 2011)

Epidemiology – how many people have ME/CFS (Winter 2012)

Epileptic type seizures in ME/CFS (Spring 2012, p15)

ESA Appeals – Winter 2010 (p11)

ESR blood test (Spring 2010)

Fertility (February 2009)

Gastric distress/motility problems (Winter 2009)


GENERAL PRACTICE


GPs – unhelpful: what to do (Jan 2008)

GPs – changing to another one (Summer 2010, p8)


Good days and bad days (Summer 2009)

Hair problems (Winter 2012)

Headaches (Winter 2009, p15)

Headaches – use of amitriptyline (Spring 2011)

Haemochromatosis – misdiagnosis (July 2008)

Heat sensitivity (July 07)

Herpes and acyclovir (Summer 2012, p14)

HIV/AIDS – as part of the differential diagnosis (Spring 2011)

Hospital services (February 2009)

Hyperacusis/sensitivity to loud noise (November 2008)

Hypermobility syndromes (Spring 2011; pwme contribution Spring 2012, pages 32 – 33)

Hypnotherapy (Summer 2012, p15)

Hypothalamic function (Spring 05 and Autumn 2011)

Ill health retirement (Spring 2011)

Immune system – overactivity (Summer 2012, p15)

Immunoglobulin treatment for chronic pain (Spring 2011)

Inherited – can ME/CFS be passed on to other family members? (October 07, p13)

Industrial Injury Benefit (Winter 2010, p13)


INSURANCE


Critical illness cover (Autumn 2009)

Life insurance (Winter 2012)

PHI disputes (April 2008)

XMRV problems (Summer 2010, p8)


Iron supplements – can they improve fatigue levels? (Spring 2012, p15)

Isoprinosine/Imunovir (January 06)

Itching and fatigue (November 2008)

Joint pains (Autumn 2009)

Lightning Process (Summer 2010, p10) – and issue 105 (pages 40-41)

Liver function tests (July 06)

Lumbar puncture (October 07)

Lyrica/pregabalin (Spring 2010)

Magnesium (Spring 2010)

Marshall Protocol (Summer 2011)


ME ASSOCIATION


Paying for MEA literature (Winter 2010, p13)


Medical Research Council – why are they so reluctant to fund biomedical research into ME/CFS? (July 2008)

Medicines and drugs – cautions when buying on-line (Spring 2012, pages 16-17)

Melatonin (Spring 05)

Memory and concentration problems (Summer 2009)

Menopause, HRT etc (January 08, p13)

Menopause – vaginal dryness/pain (Spring 2010)

Methyphenidate/Ritalin (July 07)

Mouth ulcers (Summer 2009)

Muscle symptoms (Winter 2010 – p11)

Muscle: creatine kinase blood test (Winter 2010, p14)

Naltrexone (Autumn 2009 and Winter 2012))

NICE guidelines and doctors freedom to prescribe (Summer 2010, p11)

Nimodipine – is this drug a new treatment for ME/CFS? (April 2008)

Ovarian cancer – part of the differential diagnosis (Summer 2011)

Overseas medical treatment and problems with entitlement to NHS care (November 2008)

Oxygen therapy (Winter 2010, p12)

Oxygen therapy – oxygen concentrators (Summer 2012, p15)

PACE trial and inclusion of ME sub-group (Summer 2012, p16)


PAIN RELIEF


See: Immunoglobulin, Pregabalin/Lyrica and TENS machine


Safety of over-the counter preparations (Spring 2012, p17)

Palpitations (Summer 2010, p11)

PHI/Permanent Health Insurance payment disputes (April 2008)

Pleconaril (Autumn 05)


POST-MORTEM RESEARCH


Post-mortem research – what to do if you want to leave your body to ME research (November 2008 and Spring 2010)

Still being able to donate other body parts (Spring 2011)


Post-viral fatigue syndrome – what is it? (Spring 2011)

Pregabalin/Lyrica for pain relief (February 2010)

Research – volunteering for (Summer 2009)

Research funding to NHS clinic – UK vs USA (Spring 2012, p17)

Restless legs syndrome (Spring 2011)

Roaccutane for acne (Autumn 2011)

Ribose – is it an effective supplement? (July 2008)


SERVICES


Cuts to NHS services for ME/CFS (Autumn 2011)

How to try and set an NHS clinic up post NICE (January 08)

Long NHS Waiting lists (Winter 2010, p12)

Refusal to refer (Spring 2012, p17)


SLEEP


Restless legs syndrome (Spring 2011)

Sleepiness during the day (April 07)

Sodium oxybate (Summer 2012, p16)


Social care assessments (Spring 2011)

SPECT scans (Summer 2010, p9)

Statins and muscle problems (November 2008, p10)

Steroids (Summer 2009)

TENS machine (Winter 2009, p112)

Test for ME (February 2009, p12-13)

Throat and voice symptoms (Winter 2010, p12)

Thyroid function and ME (Spring 2009)

Thyroid functions tests – regular monitoring (Summer 2011)

Tonsils removal (October 07)

Travel sickness (Summer 06)

Tremor in the hands (Autumn 2011)

Valganciclovir (October 07 and Autumn 2011)

Vegetarians and anaemia (Autumn 2009)

Vitamin B12 injections (October 06, p18)

Vitamin B12 testing (Summer 2011)

Vitamin C – high dose (Summer 2009)

Weight gain and how to lose weight (October 07)

Wheat intolerance (Winter 2010, p13)


XMRV and MLVs


XMRV – patient selection/criteria for research trials (February 2010)

XMRV – and insurance (Summer 2010, p8)


DRUG AND TESTING NOTES


Hydrogen sulphide urine test (August 2009)

Melatonin (as Circadin) becomes available on NHS prescription (July 2008)

Valganciclovir – meeting with Roche Pharmaceuticals (November 2008)


ME CONNECT HELPLINE

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