Ehlers-Danlos Support UK will be marking their 25th anniversary with a residential conference in Loughborough over the weekend of 7th-9th September.
The event will be held at Burleigh Court Conference Centre at Loughborough University.
Ehlers-Danlos Syndrome is a genetic connective tissue condition characterized by skin extensibility, joint hyper-mobility and tissue fragility. There are six different types of EDS. Jo-Anne Knight from Penrith in Cumbria described the one she suffers from – hypermobility syndrome – in the most recent issue of our ME Essential magazine.
The ME Association’s medical adviser, Dr Charles Shepherd, commented:
In view of the overlap between some aspects of ME/CFS and hypermobility syndromes (including Ehlers Danlos syndrome), the MEA is now in contact with the EDS. Some of the presentations at this conference may be ofinterest to people with ME/CFS who have significant problems with autonomic dysfunction and Postural Orthostatic Tachycardia Syndrome.
To read details of the event at the EDS UK website, please click HERE.