The Lancet still doesn’t seem to recognise the surge in post-COVID ME/CFS illness
We take issue with an editorial about the long-term effects of Long COVID in this weekend’s edition of The Lancet.
Exercise
Ian tells how he had to lower his sporting horizons after being struck down with M.E.
Ian Lazonby was a vet and a lawyer before glandular fever as an adult led to M.E. He talks about his experience with the condition, how he has recovered to an extent, and has accepted M.E.
London Landmarks Half Marathon 2021: help us rebuild our running team!
We have 20 guaranteed places for the 2021 London Half-Marathon. We’re calling for all able-bodied enthusiasts to please get in touch!
ME Association Statement on the NICE clinical guideline for ME/CFS and the NICE guideline for Post/Long Covid-19
In this statement we explain why we have been working to help people with Post/Long Covid and how these syndromes overlap with ME/CFS.
Forward-ME: NICE issue clarification about new Chronic Pain Guideline & expand on statement for GET in Post-Covid-19
NICE has confirmed that the Chronic Pain Guideline and recommendations do not apply to people with a diagnosis of ME/CFS.
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it!
Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.
Forward ME Letter re: Post-Covid/ME/CFS Management with Caution about Exercise
This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.
The ME Association End of Week Research Round-up
We highlight 3 studies from last week’s 6 ME/CFS research publications.
NHS England & Department of Health and Social Care Dismiss Concerns about Graded Exercise and Post-Covid Illness Management
The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.
The Times: Warning over conflicting medical advice to coronavirus recovery patients
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.
MEA Statement: NHS England Guidance on the Management of Post-Covid Fatigue Syndromes
The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.
The ME Association End of Week Research Round-up
Severe ME features in the two studies published this week: suggestions for healthcare improvements and CPET testing that confirms poor exercise capacity.
ME Awareness: “I was training for the London Marathon, when I felt I’d got a virus that I couldn’t quite shift,” by Tracey Barraclough | 21 May 2020.
“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”
British Medical Journal Opinion: Covid-19 and fatigue – a game of snakes and ladders | 20 May 2020
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.
ME Awareness: Failure to accurately diagnose can lead to lifetime of misery and suffering by Debbie Mckno | 17 May 2020
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
Fundraising: Out of the ruins of the London Landmarks Half Marathon comes a new way to help your charity | 27 March 2020
A brand-new event, The Local Landmarks Challenge, opens today for people able to run in support their charity.
Fundraising: When the going gets tough, the tough get going! | 25 March 2020
We hear from two champion fundraisers – one of whom is a postwoman – about how the current restrictions are affecting them.
The Sun: 5 signs your constant tiredness is actually chronic fatigue syndrome – as 90% of cases are missed | 15 August 2019
Dr Sarah Jarvis talks The Sun through the main signs your exhaustion could actually be a symptom of ME/CFS.
Advances in Understanding the Pathophysiology of ME/CFS | 08 July 2019
When does an illness become a disease? Dr Komaroff explores what we know about the biological abnormalities in ME/CFS.