NICE has confirmed that the Chronic Pain Guideline and recommendations do not apply to people with a diagnosis of ME/CFS.
Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.
This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.
We highlight 3 studies from last week’s 6 ME/CFS research publications.
The response from Stephen Powis at NHS England to the MEA’s concerns is very disappointing and dismissive…
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.
The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.
Severe ME features in the two studies published this week: suggestions for healthcare improvements and CPET testing that confirms poor exercise capacity.
“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
A brand-new event, The Local Landmarks Challenge, opens today for people able to run in support their charity.
We hear from two champion fundraisers – one of whom is a postwoman – about how the current restrictions are affecting them.
Dr Sarah Jarvis talks The Sun through the main signs your exhaustion could actually be a symptom of ME/CFS.
When does an illness become a disease? Dr Komaroff explores what we know about the biological abnormalities in ME/CFS.