Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.
“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”
“Yes, school was good, no I wasn’t lying. I just wanted to die. I didn’t care, I was happy to just slip away to stop existing. I was ten years old!”