Fundraising Feature: Emma triumphs with her Ben Nevis challenge to raise funds for M.E. | 11 June 2018
“The climb itself was both the toughest challenge we had ever done together, but also the most amazing…”
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The Times: ME sufferer who was dismissed as hysterical vindicated in death | 29 May 2018
The Times: ME sufferer who was dismissed as hysterical vindicated in death | 29 May 2018 Read More »
“We had doctors saying we just don’t believe in ME. When everyone is saying that to you it’s like a nightmare you can’t get out of.”
The ME Association and Press Coverage of Merryn Crofts Inquest by Dr Charles Shepherd | 28 May 2018
Dr Shepherd reflects on the recent inquest findings and media reports into Merryn’s tragic death from M.E.
Inquest Ruling: Young drama student Merryn Crofts killed by M.E. | 18 May 2018
Inquest Ruling: Young drama student Merryn Crofts killed by M.E. | 18 May 2018 Read More »
Pathologist Daniel DuPlessis pointed out that Merryn had inflammation of the ganglia – gatekeepers to sensations in the brain.
A Record-breaking ME Awareness Week 2018. Thank You Everyone! | 18 May 2018
A Record-breaking ME Awareness Week 2018. Thank You Everyone! | 18 May 2018 Read More »
A round-up of ME Awareness Week 2018. A special week that has broken all previous records.
The Sun: Devastating Disease – Family of girl killed by ME reveal how they were told by doctors it was all in her head, before it robbed her of everything | 09 May 2018
Due to the stigma of the condition Merryn was “embarrassed” about having ME, and was reluctant to tell people that was what was wrong with her.
ME Awareness Week: University, Work, Accessibility and M.E. from Pippa Stacey | 03 May 2018
Pippa says that people simply don’t understand about living with a disability like M.E.
Treatment: Drugs and Weight Gain
Treatment: Drugs and Weight Gain Read More »
Although taking a low dose amitriptyline has been very useful in reducing some of my pain and helping to correct my very erratic sleep pattern (frequent wakening during the night) I’ve put on a considerable amount of weight since taking this drug. My GP says that weight gain is a well recognised side-effect with this type of drug and that it can also occur with other drugs that are used for pain relief. I know from talking to other people with ME that weight gain can be a major problem with some drug treatments for ME. But why is this so? And are there any solutions?
‘Bed-bound and in unimaginable pain, watching my daughter waste away and die from ME was torture’ | 02 April 2018
Merryn Crofts died on May 23 last year, 10 days after her 21st birthday.
ME Association Press Release: Reanalysis of the PACE trial finds impressive claims are ‘not statistically reliable’ | 22 March 2018
“The message is clear – CBT and GET are not effective ways of treating a serious neuroimmune disease. The sooner this message gets across to health professionals the better.”