Fundraising Feature: Emma triumphs with her Ben Nevis challenge to raise funds for M.E. | 11 June 2018
“The climb itself was both the toughest challenge we had ever done together, but also the most amazing…”
“The climb itself was both the toughest challenge we had ever done together, but also the most amazing…”
The Times: ME sufferer who was dismissed as hysterical vindicated in death | 29 May 2018 Read More »
“We had doctors saying we just don’t believe in ME. When everyone is saying that to you it’s like a nightmare you can’t get out of.”
Dr Shepherd reflects on the recent inquest findings and media reports into Merryn’s tragic death from M.E.
Inquest Ruling: Young drama student Merryn Crofts killed by M.E. | 18 May 2018 Read More »
Pathologist Daniel DuPlessis pointed out that Merryn had inflammation of the ganglia – gatekeepers to sensations in the brain.
A Record-breaking ME Awareness Week 2018. Thank You Everyone! | 18 May 2018 Read More »
A round-up of ME Awareness Week 2018. A special week that has broken all previous records.
Due to the stigma of the condition Merryn was “embarrassed” about having ME, and was reluctant to tell people that was what was wrong with her.
Pippa says that people simply don’t understand about living with a disability like M.E.
Treatment: Drugs and Weight Gain Read More »
Although taking a low dose amitriptyline has been very useful in reducing some of my pain and helping to correct my very erratic sleep pattern (frequent wakening during the night) I’ve put on a considerable amount of weight since taking this drug. My GP says that weight gain is a well recognised side-effect with this type of drug and that it can also occur with other drugs that are used for pain relief. I know from talking to other people with ME that weight gain can be a major problem with some drug treatments for ME. But why is this so? And are there any solutions?
Merryn Crofts died on May 23 last year, 10 days after her 21st birthday.
“The message is clear – CBT and GET are not effective ways of treating a serious neuroimmune disease. The sooner this message gets across to health professionals the better.”