Fundraising Feature: Emma triumphs with her Ben Nevis challenge to raise funds for M.E. | 11 June 2018
“The climb itself was both the toughest challenge we had ever done together, but also the most amazing…”
Carol Monaghan and other MPs secure Westminster Hall debate on M.E. | 07 June 2018
Carol Monaghan and other MPs secure Westminster Hall debate on M.E. | 07 June 2018 Read More »
Debate will take place on 21st June. Parliamentary briefing issued. Please invite your MP to attend!
ME Association May Summary of ME/CFS Published Research | 07 June 2018
ME Association May Summary of ME/CFS Published Research | 07 June 2018 Read More »
The latest ME research abstracts for the month of May, and a newly updated research index.
ME Association Website Survey: Why are we asking about the FODMAP diet? | 06 June 2018
ME Association Website Survey: Why are we asking about the FODMAP diet? | 06 June 2018 Read More »
Dr Shepherd explains why we are asking about FODMAP in our survey and how it might help with IBS.
NICE ME/CFS Clinical Guideline: Summary Report from Scoping Workshop by Dr Charles Shepherd | 30 May 2018
This is a summary of the stakeholder’s workshop that was held on Friday 25 May 2018 to discuss the current version of the new NICE guideline scoping report.
The Times: ME sufferer who was dismissed as hysterical vindicated in death | 29 May 2018
The Times: ME sufferer who was dismissed as hysterical vindicated in death | 29 May 2018 Read More »
“We had doctors saying we just don’t believe in ME. When everyone is saying that to you it’s like a nightmare you can’t get out of.”
The ME Association and Press Coverage of Merryn Crofts Inquest by Dr Charles Shepherd | 28 May 2018
Dr Shepherd reflects on the recent inquest findings and media reports into Merryn’s tragic death from M.E.
ME Association Fundraising: Running for M.E. and for people we care about | 26 May 2018
ME Association Fundraising: Running for M.E. and for people we care about | 26 May 2018 Read More »
This Bank Holiday weekend, three very special people are going to be fundraising hard for M.E., and for people they care deeply about.
Can you help? We need short video clips for a Sky One series ‘What’s up TV’ that will campaign for M.E. | 25 May 2018
Whats up TV are hoping to run a campaign about M.E. in their current series on Sky One.
2018 CMRC Research Conference: Register Now for ME/CFS Bristol Conference | 25 May 2018
2018 CMRC Research Conference: Register Now for ME/CFS Bristol Conference | 25 May 2018 Read More »
The CMRC Research Conference is a fantastic opportunity for researchers and patients to network and to hear more about M.E. research developments.
Government Inquiry into support for children and young people with special educational needs and disabilities (SEND) | 23 May 2018
The Education Committee is seeking parental views on SEND which may affect children with M.E.
Carol Monaghan, MP, Parliamentary Questions on ME/CFS and Biomedical Research Funding | 23 May 2018
The Minister of State for Health and Social Care responds to biomedical research question.
NICE ME/CFS Clinical Guideline: Draft Scoping Report Published Ahead of Stakeholder Meeting on Friday | 21 May 2018
The draft scoping report sets out the parameters by which NICE will create the content for the new guideline.
Inquest Ruling: Young drama student Merryn Crofts killed by M.E. | 18 May 2018
Inquest Ruling: Young drama student Merryn Crofts killed by M.E. | 18 May 2018 Read More »
Pathologist Daniel DuPlessis pointed out that Merryn had inflammation of the ganglia – gatekeepers to sensations in the brain.
A Record-breaking ME Awareness Week 2018. Thank You Everyone! | 18 May 2018
A Record-breaking ME Awareness Week 2018. Thank You Everyone! | 18 May 2018 Read More »
A round-up of ME Awareness Week 2018. A special week that has broken all previous records.
ME/CFS Biobank: Free samples and data available to selected researchers! | 18 May 2018
ME/CFS Biobank: Free samples and data available to selected researchers! | 18 May 2018 Read More »
We would particularly welcome applications from young researchers, researchers entering the field of ME/CFS, and researchers from localities where ME/CFS is under-recognised and/or research is particularly scarce.
Rochdale Online: Merryn Crofts Missing Millions Manchester | 17 May 2018
Rochdale Online: Merryn Crofts Missing Millions Manchester | 17 May 2018 Read More »
Merryn’s family attended Millions Missing Manchester, placing a pair of her pink Doc Martens outside the Town Hall.
ME Awareness Week: Thornbury mother and daughter team hold ME awareness event | 16 May 2018
Liz and Helen Wood have campaigned for the awareness event for a number of years, after Helen was diagnosed with the condition in 2005.
ME Awareness Week: ‘Please stop a while and think what it would be like…’ by Mary Corbett |15 May 2018
Last week Mary took the decision to share the other side of M.E. It’s a side that we all recognise, but we don’t always talk about.
ME Association Ramsay Research Fund invests in new study with ME/CFS Biobank to examine dysfunctional immune system and energy metabolism | 15 May 2018
New research that will examine both immune system dysfunction in M.E. and defects in the way that energy is being produced at a cellular level.