NHS and Groups

AIREDALE NHS FOUNDATION TRUST

The Your COVID Recovery programme has been developed to give a more personalised and tailored approach to care. It is designed to help individuals recover from the long term effects of coronavirus (Covid) and manage the effects both on their body and mind effectively, reducing the impact it has on their day-to-day life.

BARKING, HAVERING AND REDBRIDGE UNIVERSITY HOSPITALS NHS TRUST

The Long COVID Service is a multi-disciplinary service specifically set-up to support patients experiencing symptoms of Long COVID. The team is made up of the following members: • Occupational Therapists • Physiotherapists • General Practitioners • Rehabilitation Support Workers • Psychologically Trained Staff • Administrative Staff If you are referred and accepted by the Long COVID Service you can expect a telephone assessment with one of the above clinicians to further discuss your symptoms. These assessments typically last between 30-45 minutes and you will be asked to discuss your symptoms as well as the impact these are having on everyday life. Following the assessment, the clinician will discuss your symptoms with other members of the team to collectively agree the most appropriate way to support you.

BCUHB (West) CFS/ME Service

We are a part-time multidisciplinary (psychology led) NHS service for adults with CFS/ME. We provide diagnosis and CBT/GET on an individual or group basis. We accept only GP referrals accompanied with confirmation that the necessary exclusion blood/urine tests have been undertaken.

Birmingham Chronic Fatigue Service

We offer a responsive and accessible service through a multidisciplinary approach for service users aged 16 or above with CFS of any degree of severity. Referrals are requested through Single Point of Access - Birmingham and Solihull Mental Health Foundation Trust.We accept referrals from GPs and other services. We accept out-of-area referrals but funding may need to be secured before an appointment can be offered.For service users with a previously established diagnosis of CFS, initial triage assessments are carried out by a nurse or an occupational therapist.For those service users without a diagnosis, the initial assessment will be carried out by a consultant neuropsychiatrist. This will include exclusion of secondary causes of chronic fatigue based on clinical history. Additional investigations including lab tests, imaging studies and onward referrals to other specialists may be requested as clinically indicated.After the initial assessment and the confirmation of diagnosis the multidisciplinary team will discuss each case and decide on follow up care which may progress through further appointments with a consultant, nurse or occupational therapist, or through group format.Our intervention is based on principles of energy management and pacing, delivered individually or through group format. Our consultant neuropsychiatrist may also recommend pharmacological treatment as indicated.

BLACKPOOL TEACHING HOSPITALS NHS FOUNDATION TRUST

The Long Covid Service aims to provide help and support to local patients suffering from Long Covid symptoms. The service is open to adults who have been suffering with symptoms for 12 weeks or more. You do not need to have been treated in hospital for Covid to be referred to the service. The Long Covid Team is made up of different healthcare professionals, a Doctor, Clinical Specialist Occupational Therapist, Psychological Wellbeing Worker and a Rehabilitation Support Worker. The Team will complete a holistic assessment, talking through the care and support available, setting goals and helping patients to manage and recover from Long Covid symptoms

BOLTON NHS FOUNDATION TRUST

We run a long Covid service to support and manage patients living in Bolton suffering with the long term effects of COVID-19. Long COVID is recognised as the signs and symptoms that develop during or after an infection consistent with COVID-19, and continue for more than 4 weeks after the acute illness stage, and are not explained by an alternative diagnosis. Referrals into the service are made via your GP, who will first rule out other illnesses to make sure that you are getting the right care.

Bristol CFS/ME Service

Age 18 upwards
All severity
Bristol, North Somerset and Gloucestershire
Referrals accepted form Primary Care and Secondary Care
We offer diagnostic assessments
We offer a range of therapy options tailored to individual need
Staff include Occupational Therapists, Physiotherapists and Psychological therapists
We offer remote access options of telephone and video appointments

Buckinghamshire Chronic Pain and Fatigue Management Services

The service aims to help people who have chronic pain and/or fatigue who have not responded to other interventions. Following face-to-face or telephone screening, if a client meets the criteria for the service they will then be offered an assessment to establish suitability for the programme.
The service provides chronic fatigue management programmes (CFMPs) at Rayners Hedge in Aylesbury. The CFMPs are led by members of the interdisciplinary team and each group has up to 10 participants and meets weekly for 2.5 hours for 10 weeks. All participants are offered an individual review following completion of the programme and a follow up at six months.

North Team: 01296 393319 (Aylesbury - pain and fatigue management)
South Team: 01494 734318 (Amersham - pain management).
Referrals accepted from GPs, consultants, and other healthcare and social care professionals.

CALDERDALE AND HUDDERSFIELD NHS FOUNDATION TRUST

The clinic brings together a wide range of healthcare professionals including doctors, physiotherapists, occupational therapists, and psychologists to offer both physical, psychological and rehabilitation needs assessments. The Calderdale Post Covid assessment clinic can only be accessed throuh a GP referral

Cambridge and Peterborough CFS/ME service for Children and Young People

Referrals from medical professionals for children and young people up to the age of 19 years whilst still in education.

Central Lancashire Moving Well CFS/ME Service

Out patient clinic based service for patients presenting with moderate and mild CFS/ME.
From age 16 upwards.
For patients who have a GP Preston, Chorley and South Ribble.
GP referral only.
Diagnostic and intervention from MDT.
MDT includes OT, Physio, Nurse, Pharmacist, Psychology and GPwsi.
Provide face to face assessment and intervention, telephone and consultation via media teleconferencing.
Follow bio-psycho-social model and offer 1:1 and group intervention.

CENTRAL LONDON COMMUNITY HEALTHCARE NHS TRUST

What will the service provide? THE CLCH Long COVID Assessment Service will virtually assess and triage patients with Long Covid symptoms, ensuring they are rapidly signposted or referred directly onwards to the appropriate intervention, service or specialist clinic to meet their needs.

Cornwall and Isles of Scilly CFS/ME Service

Children and adults Moderate to severe Cornwall and Isles of Scilly (patients with a GP here) Specialty Lead/Service Manager (OT), Clinical Lead Psychologist, 3 B6 AHPs, 1 B7 OT Referrals through Referral Management System, primarily GPs for adults from aged 17, and from Paediatricians for children up to the age of 16. Medic/Specialty Lead provide assessment and diagnosis. Psychological one to one interventions, primarily virtual (video/phone) bur face to face available dependent on clinical needs. Occupational therapy one to one and group interventions, primarily virtual (Video/phone) though some home visits as indicated by clinical need.

CWM TAF MORGANNWG UNIVERSITY HEALTH BOARD

  • Welcome to the Primary Fatigue Service. This service provides help and support for people living with Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/CFS), Long COVID, and Post Viral Fatigue, where other medical causes have been ruled out.
  • The Primary Fatigue Service Team includes Physiotherapy, Occupational Therapy, a Therapy Technical Instructor, Psychologist, Psychology Assistant, a GP with Special Interest in ME/CFS, Long COVID or Post Viral Fatigue and a Clerical Officer.
  • Referrals are via your GP, Consultant or other Healthcare professional following some simple tests to rule out other causes.
  • You will be offered an assessment with one of our therapists. This can be at one of our clinics, on the phone or at your home. This is where you can tell us your story, and we can work out your condition management plan together. The assessment doesn’t have to be all in one go. We can adapt the length of the sessions to suit your needs.
  • Your management plan might include one-to-one support with one or more of the therapists, or you may benefit from the CAMAU group programme. Most importantly, your plan will be designed to fit around your needs.
  • CAMAU is the Welsh word for “Steps”, and the programme takes a stepped approach to building the tools that can help you manage your condition, including PEM/PESE, sleep, nutrition and finding some pleasure and quality of life. Helping you to gain the skills and knowledge to self-manage and live well with your condition.
  • The CAMAU Programme supports people to understand and manage multiple symptoms, to find a baseline and to learn about planning, pacing and prioritising activity. The programme is available at different community venues in the Cwm Taf Morgannwg region, for people living in Bridgend, Merthyr Tydfil or Rhondda Cynon Taf throughout the year, and is also available online.

Derbyshire Chronic Fatigue Syndrome (CFS)/ME Service (Adults)

The CFS/ME Service provides specialist assessment and treatment for adults who have been diagnosed with chronic fatigue syndrome/ME. Most patients are assessed and treated by specialist therapists, some are seen by the consultant. Treatment is either one to one or group basis. Severely affected patients can be seen at home.

DERBYSHIRE COMMUNITY HEALTH SERVICES NHS FOUNDATION TRUST

The Long Covid Assessment Clinic is for Derbyshire residents suffering from persistent and fluctuating symptoms or complications for weeks/months after a presumed or confirmed initial COVID-19 infection. We are a small team that accepts referrals from GPs’. We have access to wider Medical & Therapy teams within the county including Hospital Consultants, Health Psychology, Speech and Language Therapy, Occupational Therapy, Physiotherapy, Dietician and other relevant services.

Dorset CFS/ME Services

The Dorset-wide CFS/ME service offers specialist assessment, diagnosis, intervention and review. The team offers interventions to those with mild/moderate or severe CFS/ME. More information

The Dorset-wide CFS/ME service for children and young people also offers a specialist service and can be accessed here

Dorset Children and Young People’s Chronic Fatigue Service

The Dorset Children and Young People’s Chronic Fatigue service offers specialist assessment, diagnosis, intervention and review to young people under 18 years of age. The team offers interventions to those with mild/moderate or severe CFS/ME.

East and North Herts Chronic Fatigue/ME service for young people

We are a Specialist Multidisciplinary Team (MDT) Consultant Psychologist, Specialist Nurse and Physiotherapist. Our cases can vary from mild symptoms to severe symptoms

We have close links with the Educational Support Team for Medical Absence (ESTMA).
We see children and young people up until the age of 18 in education under the care of the acute paediatricians.

Referrals come from acute paediatricians within the Trust aswell as out of area (Essex and Bedfordshire) Paediatricians and GPs.

We offer assessment with an individualised treatment plan. Clinic appointments are face to face, virtual or telephone)

EAST LONDON NHS FOUNDATION TRUST

The Bedfordshire Chronic Fatigue Service

  • We help clients to understand and manage their symptoms so that they can have a better quality of life and engage in activities which are most meaningful to them.
  • For those who do not receive a diagnosis of chronic fatigue syndrome, the team will offer advice and signpost to more appropriate services.
  • This service offers NICE recommended management approaches including specialist physiotherapy, occupational therapy (OT) and psychology.
  • We are also happy to provide advice and consultation to other health professionals to assist them in the management of their patients living with fatigue.

EAST SUSSEX HEALTHCARE NHS TRUST

The PCASS team consists of Occupational Therapists, Physiotherapists, Nurses, Care Co-ordinators, and Rehab Support Workers who aim to provide a holistic virtual assessment, first line advice, education on self-management strategies, and access to appropriate resources. We are also able to complete referrals to specialist services as required.

EPSOM AND ST HELIER UNIVERSITY HOSPITALS NHS TRUST

We have an integrated Post-Covid Service, which includes a specialist clinic run by a multi-disciplinary team of respiratory doctors and nurses, physiotherapists and psychological support and a post-covid Rehabilitation Service.

Essex Chronic Fatigue Service

The Essex Chronic Fatigue Service is a county-wide service for adults and is run from Southend University Hospital. We are a rehabilitation Service with outpatient assessments and therapy sessions held at venues throughout Essex. Our treatment aims to work with you towards recovery and management of your symptoms.

Fatigue Service, Royal Free London NHS Foundation Trust

The Fatigue service is a Physician lead outpatient service providing assessment, diagnosis and treatment for adults (16+ years) experiencing fatigue symptoms. Fatigue can present in different ways and the team is involved with the care and rehabilitation for people with: CFS/ME; Post viral fatigue; Fatigue syndrome; Fatigue due to other health conditions.

FIRST COMMUNITY HEALTH AND CARE CIC

During your treatment with the team, you may be seen by some or all of the following professionals depending on your needs: Physiotherapists, Occupational therapists, Speech and language therapists, Dietitian, Rehabilitation assistants. As a team we are here to help you through your recovery.

George Eliot Hospital CFS Clinic, Nuneaton

The CFS clinic consists of a multi-disciplinary team of consultants and includes registrars, junior doctors, physician associate and occupational therapist.

Aims/Focus

The service at GEH is focused on the following aims:

  • Offer a specific diagnosis of CFS and exclude other conditions that can mimic these.
  • Management of treatable conditions which can exacerbate CFS.
  • Offer support and advice on the patient’s concerns, including treatment of some symptoms.
  • Promote and empower individuals to self-manage the condition.

GUY'S AND ST THOMAS' NHS FOUNDATION TRUST

We'll assess how your symptoms affect your day-to-day life. Our service is led by allied health professionals, with support from consultants. This is known as a multi-disciplinary team. The team includes: physiotherapists, occupational therapists, clinical psychologists, respiratory and internal medicine consultants, dietitians Our post-COVID assessment clinics are on Tuesday, Wednesday and Friday, 1pm to 5pm.

HEREFORD AND WORCESTERSHIRE HEALTH AND CARE TRUST

  • We are a specialist part-time service that delivers support and treatment to people over the age of 18 with ME/CFS within community settings across Herefordshire and Worcestershire.
  • ME/CFS is a long-term illness with a wide range of symptoms. The most common symptom is debilitating fatigue, worsened by activity and not adequately relieved by rest.
  • ME/CFS is a fluctuating condition that affects everyone differently, and symptoms and their severity can change over a day, week or longer. It varies in long-term outlook from person to person – although a proportion of people recover or have a long period of remission, many will need to adapt to living with ME/CFS.
  • The impact that symptoms have on each person’s life varies but can generally be improved with the use of self-management strategies, support and advice. Relapses and flare-ups are not uncommon but with experience and awareness, these can be managed to reduce the impact they have on daily life.
  • As we have found that virtual appointments (via video call) are beneficial in helping people manage their fatigue, the majority of our interventions are now offered in this way. If, however, you would prefer a telephone call or face-to-face appointment, please let us know as this can be arranged.
  • As a service we aim to maximise functional independence by promoting self-management, with the overall aim of enhancing the individual's quality of life.
  • Once a referral has been accepted, all patients are invited to attend an initial assessment. This is a chance for us to introduce our service and what we can offer, find out more about the person’s symptoms and how they affect daily life, and to provide some basic information about the condition.
  • A personalised care and support plan will be agreed in collaboration with the therapist and patient. A family member or friend is also welcome to attend this appointment.
  • The main aspect of our treatment is our Lifestyle Management group programme, held over 9 sessions. It offers patients the opportunity to learn more about the ways in which they can manage their condition, with the aim of improving functional independence and quality of life.

HEREFORD AND WORCESTERSHIRE HEALTH AND CARE TRUST

How can I access the post covid syndrome service?

  • If you are experiencing any of the symptoms as listed on the NHS guidance pages, and have had symptoms of COVID-19 for 4 weeks or more, you should contact your GP.
  • Your doctor will ask about your symptoms and the impact they’re having on your life and give advice on how to manage and monitor your symptoms at home. They may suggest some tests to find out more about your symptoms and rule out other things that could be causing them.
  • These might include:
    • blood tests
    • checking your blood pressure and heart rate
    • a chest X-ray.
  • If appropriate, you may then be referred to our specialist rehabilitation service.

Herefordshire & Worcestershire PCS service

  • Our service provides an assessment and rehabilitation service to support and manage symptoms of Post covid syndrome. The Multi-Disciplinary Team (MDT) includes:
    • A GP
    • Occupational Therapists
    • Physiotherapists
    • Psychologist
  • Our staff will carry out a more in-depth assessment of your symptoms and the impact these have on your life. This will be carried out either online, over the phone or – where appropriate and with appropriate safeguards – face to face. Further recommendations for more specialist advice or treatment will be provided and if appropriate, you may also require further specialist multidisciplinary support.
  • Our service provides a rehabilitation service that offers a range of professional skills and self-management resources to help you deal with the specific issues you are facing and manage your symptoms as you recover from COVID-19. Support may include a virtual group or 1:1 support.
  • COVID-19 is a new illness and while the service is aware of recent developments and latest investigations around the world, we are not able to offer these new investigations or treatments until they are advised by the National Institute for Health and Care Research and NHS England.

HERTFORDSHIRE COMMUNITY NHS TRUST

The service is delivered by a multi-disciplinary team which includes a community GP, pharmacists, physiotherapists, pulmonary rehabilitation, respiratory nurses, speech and language therapists, dietitians, occupational therapists and clinical psychologists. The team works closely with colleagues in social care, acute hospitals, mental health and the voluntary sector to deliver a holistic approach to each patient’s care.

Hillingdon CFS/ME Service

NHS service for adults with chronic fatigue CFS/ME, providing assessment and treatment in line with NICE guidelines. Group or individual treatment incorporates CBT and GET. See service website for areas covered.

HOMERTON HEALTHCARE NHS FOUNDATION TRUST

The clinic is based at the Homerton Hospital and co-led by a respiratory consultant and respiratory physiotherapist. At this clinic, your symptoms will be assessed to see if further investigations or an onward referral to another care speciality is required.

Kent & Medway CFS/ME Service

KINGSTON HOSPITAL NHS FOUNDATION TRUST

Leeds and West Yorkshire ME/CFS Specialist Service

The Leeds and West Yorkshire ME/CFS Service is a specialist NHS service for people with Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS).We are currently completing implementation of the NICE Guideline. The service is for adults aged over 17 years. Individual treatment plans and different options for treatment help people make sense of their condition and work towards recovery.The aims of our service are to:

  • improve your quality of life – people say we are giving them their lives back
  • help you on a journey towards recovery
  • help you to continue in education and work if this is important to you
  • help you understand your condition
  • involve and support your carers, family and friends too
The service provides:
  • 90 minute assessments by a specialist team and we devote time to gain a shared understanding of your condition
  • individual or group programmes to help you recover
  • the opportunity for you to access a range of professionals, including 14 qualified NHS clinicians
  • liaison with your GP during your recovery
  • different options for treatment, including home-based rehabilitation and home visits for people whose lives are severely affected by ME/CFS
  • consultations and advice by video conferencing and telephone if needed
  • consistently good outcomes to improve your quality of life
High patient satisfaction results show we are valued by people who use the service.

Leicester CFS Service

Sees adults aged 16-65.
Accepts referrals from primary care, general hospitals, and colleagues within the mental health services.
Preference for GP referral. GPs are requested to complete a screening form on referral.

LINCOLNSHIRE COMMUNITY HEALTH SERVICES NHS TRUST

The service was established on the 21 of December 2020 and works alongside system partners by bringing together existing rehabilitation services from across the Lincolnshire Health and Care System. Multiple services meet virtually to discuss which services might be best placed to help patients with their recovery, personalised care plans are created, and patients receive regular follow up from the team. Referrals are to be made via your GP.

Lincolnshire ME/CFS Service

  • The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome service (ME/CFS) is a specialist service that provides assessment and advice on ME/CFS management strategies.
  • The service is available to adults and children.
  • The ME/CFS service team consists of a wide range of skilled staff.
  • Our administrative team work from Grantham and District Hospital.  However, our clinical staff are part of the Community teams.
  • The aim of the ME/CFS service is to:
    • Offer specialist assessment to all adults and children
    • Support service users to improve their health
    • Teach adaptive coping strategies for effective management of ME/CFS
    • Take a patient centred approach to care
    • Work collaboratively with other health care professionals and services
    • Offer advice, education and support to carers, employers and education authorities on ME/CFS
  • The community team provides:
      • Individual assessments and formulations of patients’ problems/needs
      • Ten week group rehabilitation programmes (adults only)
      • Individual rehabilitation programmes
      • Education on ME/CFS
      • Liaison work with other professionals

Liverpool Specialist ME/Chronic Fatigue Syndrome Service

  • The Liverpool Specialist ME/CFS Therapy Team provides an outpatient service for adults experiencing mild to moderate ME/CFS symptom presentation.

LOCALA COMMUNITY PARTNERSHIPS CIC

We have established a Multidisciplinary Team ‘The Post Covid MDT’ with our partners. This team will support the co-ordination of Post Covid patients, who have had symptoms for 12 weeks or longer, and have been referred by their GP or hospital. The Post Covid MDT will refer people to those existing services that can best meet their needs.

LONDON NORTH WEST UNIVERSITY HEALTHCARE NHS TRUST

You must be referred by your GP to be seen in our post COVID clinic. Your GP will fill in an assessment form which will help us understand more about your symptoms. We will also ask for you to have some tests before your appointment. These include A recent chest X-ray, Blood tests, Oxygen saturation and desaturation tests. Your appointment is likely to take at least two hours, so please be prepared to stay with us.

Lothian ME/CFS Service

This is a Lothian-wide service for patients who have been given, and accepted, a diagnosis of ME/CFS. It is staffed by Specialist Physiotherapists and Applied Psychologists. The programme is a rehabilitative, time-limited, specialised treatment service with its basis in graded activity and cognitive behavioural principles.

Manchester CFS/ME Service for Children and Young People

We are a multi-disciplinary team offering individualised evidence based treatment packages incorporating Cognitive Behaviour Therapy, Graded Exercise Therapy, Sleep Hygiene and Activity Management and work generically on a one-to-one basis with patients and their families. We have diverse professional backgrounds including Paediatrics, Clinical Psychology, Nursing, Physiotherapy, Occupational Therapy and Social Work.

Manx Care ME/CFS and Long Covid Service

  • We are an adult service seeing people 18 years old and upwards. We cover all of the Isle of Man and support people with all severities of the condition (mild, moderate and severe) where other medical causes have been ruled out. We accept referrals from GP’s, consultants and other healthcare professionals.
  • We are a multidisciplinary team which includes a Team Lead, GP with special interest, Psychologist, Occupational Therapist, Physiotherapist, Therapy Technical Instructor and an admin officer.
  • We offer a holistic assessment from one of the specialist team and a range of therapy options addressing psychological and physical health which is tailored to meet your individual needs to support you in effectively managing your condition. These can be offered in an individual or group setting.
  • We are able to offer face to face outpatient appointments, virtual and telephone appointments and home visits.

ME/CFS Team North, Mid, East Devon and Exeter

• Adult service only • Low to severe cases seen • We cover North, Mid, East Devon and Exeter • From GPs and Long-covid pathway only • we are therapy led so are unable to provide diagnostic assessments or advice on medication • We offer 1:1 appointments for initial assessments and a follow up appointment. These can be – face to face (just for initial assessments) or via Attend Anywhere or telephone. • Thereafter we offer a 7 week online group programme looking at activity management, sleep strategies, effective rest and relaxation, diet, exercise, impact of thoughts, memory and concentration, self-care planning and managing set-backs. Although we do also offer further 1:1 sessions for those unable to attend the group programme. • We have an establishments 2.5 Whole Time Equivalent specialist Occupational Therapists

MID CHESHIRE HOSPITALS NHS FOUNDATION TRUST

  • Following a referral from your GP, we carry out an assessment of your physical, cognitive and psychosocial needs.
  • We will also work with you to develop goals that may help with your recovery.
  • We can refer you to community therapies to help you with range of issues which may include fatigue, anxiety, breathlessness, mood disturbance, memory and cognitive changes (problem solving).

MIDLANDS PARTNERSHIP NHS FOUNDATION TRUST

The Long COVID Service is open to all MPFT staff and patients who live within Staffordshire and Stoke-on-Trent. It aims to provide help and support to those with Post COVID Syndrome, which is commonly known as Long COVID. Long COVID may present with some long-term side effects including breathlessness, poor sleep, fatigue, a cough, or anxiety and low mood.

National CFS Diagnostic and Specialist Rehabilitation Service, Essex Neurosciences

The CFS service at Queen’s Hospital, Romford, is currently accepting nationwide outpatient referrals. We are also able to offer telephone consultations. Referrals need to be made by a General Practitioner or Consultant Neurologist.
We accept GP and Consultant Neurologist referrals in writing, to: Neurology Consultant Dr Abhijit Chaudhuri.
For further information please contact our Administrator Tracy Grover on: 01708 435000 extension 2647 / Tracy.Grover@bhrhospitals.nhs.uk

National Inpatient Centre for Psychological Medicine (NICPM): ME/CFS Inpatient Service

The National Inpatient Centre for Psychological Medicine delivers biopsychosocial holistic care for people with complex medically unexplained symptoms and physical / psychological comorbidities.The NICPM is an eight-bed specialist inpatient unit based at Leeds General Infirmary. It is a unique service which has a history over many years of delivering services within Leeds and West Yorkshire, and since 2009 has been successfully treating patients from across the UK.Our team specialise in helping people with the following types of problems:

  • Severe and complex medically unexplained symptoms and illness.
  • Psychological difficulties affecting the management of long-term physical health conditions (physical / psychological comorbidities) at a serious level of severity.
  • Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS) – we provide the inpatient care for the Leeds and West Yorkshire ME/CFS service.
Approximately half of our beds are commissioned for Leeds residents and half for people from across the UK. For Leeds residents we also provide a service for people with mixed physical and psychological difficulties which may be complicated but at a more moderate or lower level of severity.Our aim is to help people make significant improvements to their health and quality of life. Our clinical outcomes are often very good and patient feedback is very positive as you will see in our annual reports at the end of this page.We are proud of our highly experienced team who provide outstanding care. The professionals in our team include:
  • Liaison psychiatry doctors
  • Nurses
  • Occupational therapists
  • Physiotherapists
  • Cognitive behavioural therapists
  • Dieticians
  • Pharmacists
  • Administrators.
We have a very experienced and expert team who, between them, have a broad range of specialist training, including in general/physical medicine, mental health, physical, occupational, and cognitive behavioural therapies.We can also draw on expertise from other teams including:
  • Medical and surgical teams within the general hospital system, across the full range of specialties
  • Psychosexual and relationship therapists.

NHS Stockport Foundation Trust

We are a specialist multidisciplinary team who offer guidance and support to people 16 years and over with ME/Chronic Fatigue Syndrome.

The Stockport ME/CFS Service is available to adults who have a diagnosis of ME/CFS and are registered with a GP in the Stockport and Tameside & Glossop areas. We aim to support people to self-manage their condition and adapt our treatment plan to individual needs.

Our Expertise
Our team consists of nurses, an occupational therapist, physiotherapists and a CBT Therapist who have specialist knowledge of ME/CFS and experience of working with all levels of severity.

How to Use the Service
Referrals to the service are made by GP or hospital consultant. We do not currently accept self-referrals. Once your referral has been triaged by our team you will receive a letter offering an initial telephone assessment. This assessment is important as it allows us to assess the symptoms and the impact they are having on an individual. It helps assess what and where treatment interventions are delivered.

Following your initial telephone assessment, we will offer you an appointment at one of our clinics or a home visit if necessary. At this appointment we will agree a management plan with you and identify the number of sessions you are likely to require.

Norfolk and Suffolk ME/CFS Service

Adults and children Norfolk and Suffolk (based on the GP practice the patient is registered with)

Referrals accepted from GPs

We use the CDC Criteria to guide diagnosis.

The team consists of 9 Specialist therapists who provide treatment follow up which is based around the NICE Guidelines mainly Activity Management. We also have two GPWSI who provide a diagnostic service plus a Specialist Practitioner who is the service lead.

We offer telephone, video and some face to face. We are also in the process of setting up virtual groups

NORFOLK COMMUNITY HEALTH AND CARE NHS TRUST

The Post-Covid Service offers assessment and support for those experiencing persistent symptoms after a suspected or confirmed case of Covid-19. We offer initial assessments by telephone, followed by further assessment and rehabilitation at one of our clinics if required. Our team can offer physical, cognitive, and physiological guidance and support. Follow-up clinics are offered at a range of bases throughout Norfolk. Where patients present with specific access needs, we can also offer home visits if needed.

NORTH CUMBRIA INTEGRATED CARE NHS FOUNDATION TRUST

The new service allows input from different professionals and can also allow a series of physical, cognitive or psychological assessments where needed. The treatment can range from self-care advice to patients having access to a range of healthcare professionals who can support with physical and mental health conditions. It also means patients can have access to the right healthcare professionals at the right point throughout their recovery.

NORTH EAST LONDON NHS FOUNDATION TRUST

Long COVID support is available for all our local residents in north east London. We are working hard to make sure they can get access to these services. This includes providing training and guidance for our GPs too.The support is made up of a range of services including: Occupational Therapists, Physiotherapists, General Practitioners, Rehabilitation Support Workers, Psychologically Trained Staff, Administrative Staff.

North of Tyne CFS/ME Service

Patients over the age of 16 (separate services for children) Please see eReferral System for guidelines on referral requirement. Referrals from GPs must be made via NHS eReferral system. Therapy team access is via medical assessment team only (direct referral to therapy team from primary care is not permitted). Referrals from outside the North of Tyne area can be accepted for medical assessment only: therapy services for other areas are locality based. Referrals to Dr G.P.Spickett, Consultant Clinical Immunologist.

North West Fatigue Clinic

At North West Fatigue Clinic, we use evidence based treatment to treat adults with CFS/ME either at our clinic in Blackburn, Lancashire, or via SKYPE. We offer specialist assessment with a Specialist Occupational Therapist and Specialist Nurse to aid in the diagnosis of CFS/ME, followed by individual treatment. We also provide training for health professionals/employers. Self-referrals and referrals from health professionals are accepted via telephone, email and through our website.

NORTHAMPTONSHIRE HEALTHCARE NHS FOUNDATION TRUST

This service supports people post covid infection. The service is based on rehabilitation and therapy to support self-management recovery. The service is mainly in people's own home, in groups or via remote support. The team includes therapists with a range of experience in supporting rehabilitation in short and long-term conditions.

NORTHERN CARE ALLIANCE NHS FOUNDATION TRUST

Our Long COVID Rehabilitation Service offer Dietetics, Occupational Therapy, Physiotherapy and Speech and Language Therapy support. Rehabilitation consists of both face to face appointments and an on-line programme of symptom management support with fatigue, breathlessness, brain fog, exercise, anxiety, sleep, relaxation, food and nutrition, swallowing and communication . We also offer support if you are struggling to return to or stay in work due to your symptoms

Nottingham Childrens Hospital CFS/ME Service for Children and Young Adults

Service for Children and Young People age 10 - 18 years diagnosed with CFS/ME who live in Nottingham and Nottinghamshire. Currently no service available for severely-affected patients .

NOTTINGHAM CITY CARE PARNERSHIP

Your medical team or GP will look at your problems and how you are coping after having COVID and decide if you need to go to a post-COVID service. NHS England has set up post-COVID services to support your physical and mental health while you are getting better from COVID, following time in hospital or if you still have problems after having COVID. You may be supported by: Doctors, Nurses, Physiotherapists – healthcare professionals that support patients to get moving again after an injury or illness for example respiratory physiotherapists to help with breathing problems, Occupational therapists – healthcare professionals that support patients to get back the skills they need for daily living, Psychologists – healthcare professionals that support patients who have been in stressful situations or are facing changes to their ability to function or live as they did before because of the symptoms of long COVID

Nottingham CityCare MOSAIC Service

The MOSAIC service covers many conditions, including CFS/ME, for patients who are registered with a GP in Nottingham City. The service brings together experienced physiotherapists, occupational therapists, hospital consultants, pain practitioners, CFS/ME practitioners, pharmacists and well-being practitioners. Patients are seen by the most appropriate clinician according to their needs, at the right time and in a community location close to their home.

Following an assessment, patients may be referred for further diagnostics or offered a range of interventions specific to their needs. Typically this may include musculoskeletal physiotherapy or occupational therapy, individual biopsychosocial treatment, pain or CFS/ME management programmes, self-management workshops, medication review clinics, injections if indicated or onward referral for surgery in hospital if required. The MOSAIC service also works closely with other healthcare and voluntary sector organisations, providing access to services such as psychological therapies or exercise groups in the community. Our focus is on education and self-management support to best help you manage your condition in the long term.

Nottinghamshire PICS CFS/ME Service

The CFS/ME service for Nottinghamshire CCG is delivered by PICS (Primary Integrated Community Services Ltd). Patients can be referred from the following CCG areas: Nottingham West, Nottingham North and East, Rushcliffe, and Newark and Sherwood.
PICS is a community pathway where a multidisciplinary team of specialist clinicians help patients with spinal and other persistent pain conditions as well as patients with chronic fatigue syndrome (CFS) to get the right diagnosis and treatment, manage their symptoms better and improve their quality of life.The service provides holistic patient centred care within a biopsychosocial framework, with individual treatment or group work depending on patient need. A highly skilled cognitive behavioural therapist (CBT) provides supervision for all staff and work with local substance misuse services and IAPT providers to ensure the mental wellbeing of our patients is looked after.
The service employs a wellbeing practitioner to facilitate the self care part of the pathway. The wellbeing practitioner promotes self-management, forged partnerships with local voluntary groups, undertaken goal setting, exercise referral schemes and weight loss programmes.

Oxfordshire CFS/ME Service

We are a community based service, working with adults and young people over 14 with mild/moderate/severe CFS/ME with an Oxfordshire GP. We provide an individualised programme of group or 1:1 therapy supporting a person towards a place of self management and recovery.

Persistent Physical Symptoms Research and Treatment Unit

Internationally recognised NHS service providing assessment and evidence-based treatment for chronic fatigue syndrome and persistent physical symptoms. We see adults of any age and adolescents aged 11-18 years, including severely affected.
We also see people with a range of conditions including: chronic physical symptoms/disability in long term conditions; fibromyalgia; IBS; non-cardiac chest pain; dysfunctional breathing; chronic pain.
We offer expert assessments and clinical recommendations, cognitive behaviour therapy (CBT), graded exercise therapy, family-focused CBT for adolescents, and, home-based and telephone treatment for people who are not able to attend the unit. (Home-based service is London area only).
We accept referrals from across the UK, from any health professional. Preferred referral method is via letter. All referrals need to be funded by the CCG.

Portsmouth ME/CFS Service

  • We are a team of specialist health professionals.
  • We provide assessment and treatment for patients who have symptoms consistent with ME/CFS and who are aged 16 and over and are registered with a Portsmouth City GP.
  • Our team is made up of a specialist occupational therapist, a specialist physiotherapist and a psychologist, along with administrative support.
  • We support GPs and other medical professionals with the process of diagnosing ME/CFS. Our treatments are based on a self-management approach.
  • We help people to understand the condition and support them to find ways to stabilise the symptoms and build up their energy resources gradually.
  • We work with people who are mildly or moderately affected and those who are severely affected.
  • Treatment is individually tailored to help each person to manage their symptoms and improve their functioning and overall quality of life.
  • The approaches we use are recommended by the National Institute of Health and Care Excellence (NICE).
  • We offer both individual and group treatments. The length of sessions varies from up to an hour for individual sessions to 2 hours for group sessions, with breaks included.
  • Appointments can take place at our hospital base, or via video or telephone consultation. Occasionally we see people in their homes.

PROVIDE

We are a team of Doctors, Nurses, Physiotherapists, Occupational Therapists, clinical psychologists, speech and language therapists and other health professionals, who deliver treatment that aims to help peoples’ recovery and help them manage their condition. We do this through assessment, advice, support groups, education and rehabilitation. There is no cure to long COVID, but it can improve with the correct advice and management.

ROYAL UNITED HOSPITALS BATH NHS FOUNDATION TRUST

  • The Paediatric Specialist Fatigue Service can provide assessment, diagnosis and treatment programmes for children and young people with Fatigue anywhere in the UK.
  • The team comprises specialist Consultant Paediatricians and Psychiatrists, Psychologists, Physiotherapists and Occupational Therapists, and is led by Professor Esther Crawley, one of the few consultant paediatricians specialising in Chronic Fatigue in the country.
  • Disabling fatigue is common after infections (as in Long-COVID) or in long-term conditions (cancer, inflammatory bowel disease, etc). Chronic Fatigue Syndrome or myalgic encephalomylopathy is also relatively common in children, affecting at least 1% of teenagers. ME/CFS is probably the largest cause of long-term absence from school.
  • Despite this, there are very few teams in the UK who specialise in seeing children with long-term disabling fatigue, and even fewer who are able to see severely affected children in their home. We offer specialist individualised treatment tailored for children, adolescents and their families.
  • We are committed to offering evidence based treatment. We have studied the revised NICE guidelines published on 29 October 2021. We are pleased to say that our service offers all of the aspects of treatment as recommended in the guidance.
  • We offer holistic assessment and personalised care and support plans, developed together with the young person with ME/CFS and their family or carers. This includes exploring energy management, physical functioning and mobility, education support needs, managing symptoms and flare-ups, and supporting psychological and emotional well-being.

ROYAL UNITED HOSPITALS BATH NHS FOUNDATION TRUST

  • The Bath Centre for Fatigue Services is a national service providing outpatient based specialist services for adults experiencing long-standing fatigue linked to a variety of illnesses.
  • People referred to our service might have Chronic Fatigue linked to a neurological or other long standing condition, such as joint hypermobility syndrome, Myalgic Encephalomyelopathy/Chronic Fatigue Syndrome (ME/CFS) or Long Covid (Post-Covid Syndrome) or Cancer Related Fatigue (CRF).
  • The ethos of our service is based on supported self management. This approach enables people to better manage their conditions and regain some control over day to day activities and routines.
  • Services are provided in a variety of locations in Bath and Wiltshire and via online platforms, telephone and face to face clinics.
  • We offer specialist assessment and treatments taliored to your needs. These are based on best practice principles and are delivered by a team of highly skilled health professionals.
  • Interventions are available to support you with everyday activity management including work related needs. We are also able to advise and signpost you to more appropriate services if necessary.

Salford ME/CFS Clinical Health Psychology Service

  • The ME/CFS Service supports people who have a diagnosis of (CFS), also referred to as Myalgic Encephalomyelitis (ME). You might also have had your difficulties labelled as Fibromyalgia, or Post-Viral Fatigue Syndrome.
  • There is a multidisciplinary team based at Salford Royal that includes:
    • Psychologists
    • Assistant Psychologist
    • Specialist Medical Consultants
    • Physiotherapists
  • The team offer assessment and treatment alongside an outpatient service, individual therapy and group programmes.
  • ME/CFS Group Course:

This 6-week course is designed to help people to understand the main strategies for managing the condition.  Each week a new topic is covered, including:

    • Pacing
    • The effects of stress
    • Sleep patterns
    • Acceptance
    • Goal setting
    • Managing your mood
    • Planning for setbacks
    • Gentle stretching and movement
    • Relaxation/meditation practices are also part of the programme.

The groups are interactive and allow members to meet other people with ME/CFS.  This can be a validating experience as people with ME/CFS can often report feeling isolated and misunderstood.

 The course also requires you to complete supplementary ‘home practises’ between sessions, or doing gentle stretch and movement exercise.

  • Individual Therapy:

Our team are experienced in delivering a wide range of therapeutic approaches. These include:

    • Cognitive Behavioural Therapy (CBT)
    • Acceptance and Commitment therapy (ACT)

These approaches look at relationships between our thoughts, behaviours and mood.  ME/CFS, like most other chronic conditions, is commonly accompanied by low mood and/or stress, which can make the condition worse.  These approaches may help us adopt techniques to manage these symptoms as well as adopting helpful behavioural changes, such as pacing.

 

SHROPSHIRE COMMUNITY HEALTH NHS TRUST

The Long Covid Clinic service is for patients in Shropshire, Telford and Wrekin with Long Covid. The Clinic provides both face-to-face and virtual appointments, which means it can offer telephone and video appointments to people for an initial assessment so they don’t have to travel.

SOMERSET FOUNDATION TRUST

  • Somerset CFS/ME Service is a County-wide service. The aim of the service is to help adults 18 years+ with mild to moderate CFS/ME develop strategies and skills to better manage their condition so that their overall quality of life and independence is improved.
  • We currently only accept referrals from GP’s.
  • The team consists of a Health Psychologist, Administrator and 2 Occupational Therapists.
  • We are a team of specialists with many years of experience of helping people live as well as possible with the condition.
  • Since the pandemic we have been offering clients appointments via the telephone or video consultation.
  • We will continue to review the guidelines related to returning to face-to-face appointments. As a service we do not offer home visits.

SOMERSET NHS FOUNDATION TRUST

  • The Somerset Post COVID Assessment Service exists to:

    • Assess whether you have post-COVID-19 syndrome.

    • Give you specific advice to how to manage your symptoms.

    • Refer you to specialist therapists, as required.

  • If you live in Somerset and have been accepted by the Post COVID-19 Assessment Service following a referral, you will be offered a support group.

South of Tyne and Wear Children's and Young People's Chronic Fatigue Syndrome Service

We provide comprehensive multidisciplinary team (MDT) services to children and young people (up to 18 years of age) with Chronic Fatigue Syndrome of all severity in the Sunderland, South Tyneside and Gateshead areas.

South of Tyne CFS Service

The South of Tyne CFS Service is a specialist multidisciplinary service. We offer outpatient treatment to adults with Chronic Fatigue Syndrome from Gateshead, South Tyneside, and Sunderland areas who are referred by their GP. Treatment is tailored to the individual following assessment and is delivered either through individual appointments or in a group programme.

South Tees CFS and ME Service

  • During specialist assessment for CFS or ME, consultants take a detailed history of your symptoms and personal circumstances, which may take 45 minutes to complete.
  • We are a team of clinicians with specialist skills, training and experience in CFS and ME.
  • We are based in the centre for clinical infection, at The James Cook University Hospital in Middlesbrough.
  • The therapy we offer aims to:
    • Improve your understanding of CFS/ME
    • Develop your self-management skills to regulate symptoms and manage setbacks
    • Develop your coping strategies to promote well-being
    • Support you to increase activity levels in a safe and measured way
    • Empower you to manage your health independently
  • We offer a maximum of 12 appointments which may take place in a group setting or individual appointments.
  • Develop your self-management skills to regulate symptoms and manage setbacks.
 

SOUTH TEES HOSPITALS NHS FOUNDATION TRUST

Our long COVID clinic to take referrals from GP practices and secondary care for people experiencing “brain fog”, anxiety, depression, breathlessness, fatigue and other debilitating symptoms

South West London and Surrey CFS/ME Service

  • The South West London and Surrey ME/CFS Specialist Service provides diagnosis, management and support for adults with Myalgic Encephalomyelitis (ME/CFS).
  • The service opened in 2005 as part of the Department of Health's chronic fatigue clinical network collaborative to introduce services for individuals with ME/CFS.
  • The Service bases its advice on management on the NICE guidelines for ME/CFS (NG206, 2021).
  • The multidisciplinary team includes a clinical lead, Dr Stanimira Lazarova, clinical nurse specialists, clinical psychologists, an occupational therapist and a physiotherapist.  The Service is based at the Malvern Centre on the old Sutton Hospital site.

South Yorkshire/North Derbyshire ME/CFS Specialist Service

The service is available to individuals who have a provisional diagnosis of ME/CFS, are registered with a GP within the region, and who have been unable to self-manage their condition with the advice and management provided from primary care.The service provides an initial assessment where a range of treatment options will be explored. The aims of the interventions offered are to work collaboratively with individuals in helping them to identify how they are currently coping with their ME/CFS symptoms and then working with them to develop personalised strategies to self-manage their condition.The therapies offered provide a range of specialist, evidence-based, therapeutic interventions to individuals with a diagnosis of ME/CFS. All interventions within the ME/CFS Service are based on current NICE Guideline. This may include practical or psychological interventions to enable individuals to maximise their potential and make sustainable improvements.

St Leonard's Locomotor Service

General City and Hackney service based in primary care. Includes extended-scope physiotherapy, locomotor pain service, and other therapy options for patients with various conditions. Referral by GP letter or e-RS (City and Hackney area). http://www.homerton.nhs.uk/gps-referrers/

Staffordshire Chronic Fatigue Syndrome Service

The Chronic Fatigue Syndrome Service is a small multidisciplinary service made up of Psychology and Occupational Therapy input within the Physical Health Psychology Service at Cannock Chase Hospital in Staffordshire. All referrals to the CFS service are received from G.P’s within the geographical areas of Staffordshire. We also accept referrals from medical consultants form the Royal Wolverhampton Trust. The G.P/ consultant making the referral should provide a confirmed diagnosis of Chronic Fatigue Syndrome. We do not have a medic and therefore the service is unable to provide a diagnosis. GP’s/ Consultants can complete our CFS referral form or write a confirmation letter. We accept referral age 16 and over and the majority of referrals are of people with moderate CFS. However we do see some severe patients. We can provide group and time limited individual input. These can cover • .The understanding and acceptance of CFS • Thoughts and feelings in relation to CFS • Activity and resting advice • Guidance on sleep, memory and concentration issues • Managing stress • Problem solving techniques • Coping strategies • The importance of relaxationGroups also provide the opportunity to meet others online/ face to face who have CFS, therefore reducing the feelings of isolation that can often be experienced.We can see patient’s face to face, via telephone or online video consultation.

STOCKPORT NHS FOUNDATION TRUST

The new clinic includes a number of clinicians who specialise in the presentations associated with ‘Long-COVID’. They are there to provide ongoing additional specialist support and assessment for these patients, providing support in areas such as respiratory and fatigue techniques, advice on self management, and support with returning to work or education.

Sussex Paediatric CFS/ME Service

Sussex-wide CFS/ME service

Adult outpatient service offering assessment, diagnosis and treatment for those with CFS/ME. Self management programmes in various locations across Sussex.

TAMESIDE AND GLOSSOP INTEGRATED CARE NHS FOUNDATION TRUST

Initially we speak to the patient on the phone and signpost them to the right service for them depending on their symptoms, the patient is then assessed by the specialised therapy team.  Our new clinic provides access to a number of different specialities including chronic fatigue, musculoskeletal, cardiac rehabilitation and mental health support.”

THE NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION TRUST

The Your COVID Recovery programme has been developed to give a more personalised and tailored approach to care. It is designed to help individuals recover from the long term effects of coronavirus (Covid) and manage the effects both on their body and mind effectively, reducing the impact it has on their day-to-day life.

THE ROTHERHAM NHS FOUNDATION TRUST

Currently only recruited to the Long Covid assessment service so the rehab offer is limited until the staff start in the rehabilitation/treatment element of the service

Torbay and South Devon CFS/ME

age range seen: Up to 18
severity seen: Any severity
geographic boundaries: Torbay and South Devon
Who you accept referrals from: Primary Care
Do you provide diagnostic assessments: Yes
what therapy programmes you offer: Specialist Physiotherapy led group and individual therapy MDT/TAF meetings including schools
What staff make up your team: Consultant Paediatrician with interest in ME/CFS Specialist Physiotherapist (Pain and Fatigue)
Paediatric Psychologist (for advice to clinicians, not funded to provide 1:1/F2F appointments
Remote access options: (video/telephone/home visits) Video Appointments
Telephone Appointments
About to commence use of Patients Know Best (Home | Patients Know Best)

TRACCS, University College Hospital

The Treatment and Rehabilitation for Adolescents with Complex Conditions Service (TRACCS) is a merger between UCL Hospital and Great Ormond Street Hospital specialist services for children and adolescents. The service includes assessment and treatment for adolescents and younger children with CFS/ME. GP enquiries via 020 3447 9489.

UNIVERSITY COLLEGE LONDON HOSPITALS NHS FOUNDATION TRUST

Referral are accepted from GP practices or other hospital clinics in North Central London to a single point of access. From here referrals are triaged by the clinic team and this may require a telephone consultation and completion of a questionnaire. Patients will be directed to the most appropriate part of the service to meet their needs efficiently. Some will need to attend an appointment at UCLH in person where they will be assessed by physicians and therapists with expertise in this field from a number of different specialty backgrounds. Onward referrals and investigations are arranged if needed.

UNIVERSITY HOSPITALS OF LEICESTER NHS TRUST

The Your COVID Recovery programme has been developed to give a more personalised and tailored approach to care. It is designed to help individuals recover from the long term effects of coronavirus (Covid) and manage the effects both on their body and mind effectively, reducing the impact it has on their day-to-day life.

UNIVERSITY HOSPITALS OF MORECAMBE BAY NHS FOUNDATION TRUST

Vitality360

THIS IS A PRIVATE SERVICE AND DOES NOT ACCEPT NHS REFERRALS.
We provide effective evidence-based rehabilitation delivered by leading fatigue and pain specialists. We are all experienced in supporting people with CFS/ME, fatigue, fibromyalgia and chronic pain. We can provide physiotherapy, occupational therapy, Cognitive Behavioural Therapy (CBT), Graded Exercise Therapy (GET), specialist dietetics and psychotherapy.

WALSALL HEALTHCARE NHS TRUST

As part of the service anyone aged 18 or over, who has been discharged from Walsall Manor Hospital with covid-19, will receive a post covid information booklet outlining simple measures that can be taken to ease symptoms and contacts for other sources of help. They will also receive a follow up call from a trained professional who will identify any ongoing problems which need specific treatments, including psychological support and if required a face-to-face assessment or virtual support and rehabilitation

WARRINGTON AND HALTON TEACHING HOSPITALS NHS FOUNDATION TRUST

Warrington and Halton Teaching Hospitals are very proud to have a dedicated Post COVID clinic (known as the Long COVID Service), with our own Nurse Coordinator, together with a doctor as the clinic lead. After being referred to the clinic by your GP, you will be sent the details of a telephone appointment, which will be held with our Nurse Coordinator, who will then refer you on the service which will best be able to help you to improve your health.

West Berkshire ME/CFS service

We see patients who are over 18 years who have a GP within West Berkshire. Referrals have to come from their GP and recent blood tests need to have been completed. We do not offer diagnostic assessments but require the GP to have made the ME/CFS diagnosis.
We are a team of physiotherapists and psychologists who work largely within a Acceptance and Commitment Therapeutic approach. We offer individual interventions as well as a Stabilisation group programme.
We are able to offer video, telephone or face to face appointments.

Wigan ME/CFS Service

The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Service:

  • Adheres to the NICE Guideline (53) for ME/CFS
  • Recognises and promotes the importance of early diagnosis and intervention
  • Provides a Consultant in Rehabilitation Medicine Led Assessment
  • Provides intervention on a 1:1 and or group basis
  • Assessment and Intervention takes place in our clinic setting or via home visit dependent on identified need.
Interventions include:
  • Medical Management
  • Activity Management/Pacing
  • Stress and Lifestyle Management incorporating Cognitive Behavioural Strategies
  • Assessment, advice and onward referral for aids and adaptations.
  • Support and advice to carers, relatives and other health professionals.
Available to:
  • Adults aged 18 years and over, 17 years if no longer in full time education or those aged 16 years that are considered by all agencies involved in their care to be better placed with adult services.
  • The service is for residents who are registered with a GP in Wigan Borough.

Worcestershire CFS/ME Service

We offer a part-time, community-based service to adults (18 years +) who have a confirmed diagnosis of CFS/ME. Referrals are accepted from agreed Consultants or General Practitioners.
The service adopts a ‘person centred’, holistic approach and works collaboratively with other agencies as required. It is made up of a multidisciplinary team, with a range of skills and backgrounds; this includes Occupational Therapy and Clinical Psychology. Intervention can involve 1:1 sessions and/or group work, with an emphasis on self-management and peer support. We also offer an on-going Recovery and Management group for those who have been discharged from the service.
The service is countywide, with clinics being held throughout Worcestershire, however group work is solely Worcester-based at present. We are not able to offer home visits.

YORK AND SCARBOROUGH TEACHING HOSPITALS NHS FOUNDATION TRUST

Our post-COVID multi-disciplinary team (MDT) is made up of one consultant in respiratory medicine, a specialist respiratory nurse, a specialist respiratory physiotherapist, a consultant clinical psychologist, and two senior occupational therapists.

Yorkshire Fatigue ME/CFS Service (CHCP)

We provide an assessment and rehabilitation service for people in York and North Yorkshire who have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). We offer comprehensive assessments and we then decide together on a treatment plan to meet your needs.

  • We see adults with ME/CFS where treatable medical causes have been addressed.
  • Assessments are with a Specialist Occupational Therapist or Special Interest GP.
  • We offer group or individual treatment sessions, following the STEP Programme
  • We accept referrals for people with mild, moderate and severe ME/CFS.
  • We can provide sessions by telephone or Teams video call or face-to face.
  • We have some capacity to offer home visits for people who are severely affected.
The STEP ProgrammeThe STEP Programme helps you to understand the things that can affect your symptoms.  It takes you through stages of stabilising and then when you are able to, we will support you with gradually increasing your activity levels.  A qualified therapist will assess your needs and how you can use the programme to help your recovery.The STEP programme has been designed to address all of the factors that can contribute to the dysregulated physiological responses that generate the symptoms of ME/CFS. More information about Dysregulation is available in the BACME Understanding Dysregulation in ME/CFS.

 ESSEX PARTNERSHIP UNIVERSITY NHS FOUNDATION TRUST

Our long COVID clinic supports people suffering with symptoms of long COVID across Harlow, Epping and the Uttlesford. The service will carry out a comprehensive assessment, your type of assessment will depend on preference or need. Afterwards you will be given information, guidance, rehabilitation, physical and mental health support with regular follow ups to help you manage and overcome your symptoms.

CAMBRIDGESHIRE & PETERBOROUGH NHS FOUNDATION TRUST

What happens when you are referred to our service? At assessment stage you will have a booked appointment with one of our clinical screeners to talk about and review your symptoms. They will then decide the next steps. We have a wide scale of input to offer including an eight-week virtual programme, in-person home visits, and a personalised online recovery platform.

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