ME Awareness Week: BBC Newsbeat – Chronic fatigue syndrome treatment ‘should be withdrawn’ | 08 May 2018
Dr Shepherd says the problem with GET is that it’s too rigid and pushes patients too far.
ME Awareness Week: Workwell Foundation – Graded exercise for ME/CFS is ‘detrimental to the health of patients and should not be recommended’ | 07 May 2018
“Graded exercise therapy mistakenly assumes that ME/CFS fatigue and disability result from inactivity and deconditioning.”
The Irish News: Hope for ME: Co Down woman’s campaign for the thousands living with chronic fatigue syndrome | 02 May 2018
Joan McParland found herself bed bound due to the debilitating, energy sapping condition ME, but she is now helping others with the illness to campaign for an improvement in services.
Huffington Post: I Am Stuck In The Prison That Is ME | 13 April 2018
Huffington Post: I Am Stuck In The Prison That Is ME | 13 April 2018 Read More »
Have you ever laid in bed and felt so ill that you truly thought you were going to die?
ME Association March Summary of ME/CFS Published Research | 09 April 2018
ME Association March Summary of ME/CFS Published Research | 09 April 2018 Read More »
The monthly summary of ME/CFS research publications for March 2018.
Forward ME to Science Media Centre ‘Retract and replace your factsheet on CFS/ME’ | 05 April 2018
The Countess of Mar writes on behalf of Forward ME to the Science Media Centre asking for a retraction of inaccuracies in their ‘factsheet’ on ME/CFS.
‘Bed-bound and in unimaginable pain, watching my daughter waste away and die from ME was torture’ | 02 April 2018
Merryn Crofts died on May 23 last year, 10 days after her 21st birthday.
The GETSET Trial: Letters to The Lancet and a response from the authors | 26 March 2018
The GETSET Trial: Letters to The Lancet and a response from the authors | 26 March 2018 Read More »
A total of five letters have now appeared in the Lancet critiquing elements of the GETSET trial, and the authors have now issued a response to all of them.
Forward ME Letter to The Times: Patients with ME/CFS ‘are not simply “deconditioned” as claimed by many psychiatrists’ | 23 March 2018
“Forced exercise above very low levels characteristically incapacitates most patients.”
ME Association Press Release: Reanalysis of the PACE trial finds impressive claims are ‘not statistically reliable’ | 22 March 2018
“The message is clear – CBT and GET are not effective ways of treating a serious neuroimmune disease. The sooner this message gets across to health professionals the better.”
Frontiers Press Release: Chronic fatigue syndrome possibly explained by lower levels of key thyroid hormones | 20 March 2018
Dr Shepherd: ‘This new research demonstrates a defect in thyroid hormone activity rather than actual thyroid gland disease.’
ME Association Press Release: People with M.E. ‘measurably more disabled’ than people with Multiple Sclerosis | 16 March 2018
“For people with ME/CFS, this is a very important piece of research involving clinical data collected by the ME Biobank.” Dr Charles Shepherd.
Government-funded ME/CFS trial ‘one of greatest medical scandals of 21st century’ | 20 February 2018
A controversial medical trial part-funded by the Department of Work of Pensions will emerge as “one of the greatest medical scandals of the 21st century” an MP today claimed.
Pernicious Anaemia: symptoms, diagnosis, Vitamin B12, ME/CFS and the NICE guideline review | 16 February 2018
There is an overlap in symptom presentation between Pernicious Anaemia and M.E. and the lack of routine testing in the current NICE guideline for ME/CFS has now been challenged.
Stanford Scope: Exercise elevates blood signature difference between people with, without ME/CFS | 16 February 2018
A new study suggests that a blood test following exercise may be a very good way to differentiate between people who have ME/CFS and people who don’t.
NICE announces next steps in updating its guideline on ME/CFS | 16 February 2018
NICE announces next steps in updating its guideline on ME/CFS | 16 February 2018 Read More »
NICE has also confirmed the next steps in the development of the new guideline, starting with a further workshop with stakeholder organisations on 25 May to discuss the scope of the guideline.
MEA Summary Review: Elevated BNP levels in ME/CFS associate with cardiac dysfunction | 14 February 2018
A recent study from a research group at Newcastle University has found that patients with ME/CFS have significantly higher levels of a hormone called BNP in their blood and that this also correlated with significantly lower cardiac volumes.
Westminster Hall Debate: The PACE trial and its effect on people with M.E. – A meeting with Carol Monaghan MP | 08 February 2018
Dr Charles Shepherd and Dr William Weir, met with Carol Monaghan MP yesterday, to discuss and advise on the Westminster Hall debate on the PACE trial that is taking place on 20th February.
The Press and Journal: The ME generation want better care across Scotland | 30 January 2018
Jennifer Brea, the director of an award-winning film about the difficulties of living with ME, will join the calls for enhanced care during an event at the Scottish Parliament this evening.
MedPage Today: An interview with Francis Collins, Director of the NIH in America, about the priorities for ME/CFS | 18 January 2018
The National Institutes of Health is trying hard to bring real hope — not false hope — to patients with ME/CFS, NIH director Francis Collins, MD, PhD, said during an exclusive interview with MedPage Today.