NICE ME/CFS Clinical Guideline Review: ME Association Submission re: Scoping Report | 02 August 2018
In our submission, we highlight the issues we believe NICE should either include or omit from the new clinical guideline on ME/CFS.
ME Association July Summary of ME/CFS Published Research | 02 August 2018
ME Association July Summary of ME/CFS Published Research | 02 August 2018 Read More »
This monthly summary lists all ME/CFS research published in the previous month and also provides a free download of all research ever published on the disease.
ME Association June Summary of ME/CFS Published Research | 04 July 2018
ME Association June Summary of ME/CFS Published Research | 04 July 2018 Read More »
The latest M.E. research abstracts for June 2018, and a newly updated and free-to-download M.E. Research Index.
MEA Summary Review: ME/CFS and the Biopsychosocial Model – By Dr Keith Geraghty | 29 June 2018
In a guest review, Dr Geraghty summarises his most recent study examining the BPS model in ME/CFS
BBC News: MP Carol Monaghan leads campaign for new ME treatment | 25 June 2018
BBC News: MP Carol Monaghan leads campaign for new ME treatment | 25 June 2018 Read More »
M.E. is incorrectly treated, lacks sufficient funding and is poorly understood by many in the medical profession.
NICE ME/CFS Clinical Guideline: Final scope consultation and lay member recruitment | 25 June 2018
The deadline for the NICE Scope Consultation and for Committee Recruitment is 26 July 2018.
The complete Ministerial response from the Parliamentary debate on M.E. treatment and research in Westminster Hall | 22 June 2018
A full transcript of the Ministerial response to the three-hour landmark debate on M.E. in Parliament.
The House: Carol Monaghan: We must change perceptions of the debilitating illness M.E. | 19 June 2018
Carol Monaghan, MP, is leading the debate on M.E. in Westminster Hall on Thursday, 21st June, 2018.
The Herald: After 25 years battling illness, actor prepares to showcase new film | 14 June 2018
The actor has adopted a holistic approach to self-care, at the centre of which lies a disciplined approach to sleep, nutrition, hydration and mental focus.
Carol Monaghan and other MPs secure Westminster Hall debate on M.E. | 07 June 2018
Carol Monaghan and other MPs secure Westminster Hall debate on M.E. | 07 June 2018 Read More »
Debate will take place on 21st June. Parliamentary briefing issued. Please invite your MP to attend!
ME Association May Summary of ME/CFS Published Research | 07 June 2018
ME Association May Summary of ME/CFS Published Research | 07 June 2018 Read More »
The latest ME research abstracts for the month of May, and a newly updated research index.
The Times: ME sufferer who was dismissed as hysterical vindicated in death | 29 May 2018
The Times: ME sufferer who was dismissed as hysterical vindicated in death | 29 May 2018 Read More »
“We had doctors saying we just don’t believe in ME. When everyone is saying that to you it’s like a nightmare you can’t get out of.”
The ME Association and Press Coverage of Merryn Crofts Inquest by Dr Charles Shepherd | 28 May 2018
Dr Shepherd reflects on the recent inquest findings and media reports into Merryn’s tragic death from M.E.
2018 CMRC Research Conference: Register Now for ME/CFS Bristol Conference | 25 May 2018
2018 CMRC Research Conference: Register Now for ME/CFS Bristol Conference | 25 May 2018 Read More »
The CMRC Research Conference is a fantastic opportunity for researchers and patients to network and to hear more about M.E. research developments.
Government Inquiry into support for children and young people with special educational needs and disabilities (SEND) | 23 May 2018
The Education Committee is seeking parental views on SEND which may affect children with M.E.
Inquest Ruling: Young drama student Merryn Crofts killed by M.E. | 18 May 2018
Inquest Ruling: Young drama student Merryn Crofts killed by M.E. | 18 May 2018 Read More »
Pathologist Daniel DuPlessis pointed out that Merryn had inflammation of the ganglia – gatekeepers to sensations in the brain.
ME Association Ramsay Research Fund invests in new study with ME/CFS Biobank to examine dysfunctional immune system and energy metabolism | 15 May 2018
New research that will examine both immune system dysfunction in M.E. and defects in the way that energy is being produced at a cellular level.
ME Awareness Day: BBC Newsbeat – Millions Missing London Protest | 14 May 2018
ME Awareness Day: BBC Newsbeat – Millions Missing London Protest | 14 May 2018 Read More »
“The way I describe it is I’m actually grieving the loss of my sister because she’s not around anymore.”
The Sun: Devastating Disease – Family of girl killed by ME reveal how they were told by doctors it was all in her head, before it robbed her of everything | 09 May 2018
Due to the stigma of the condition Merryn was “embarrassed” about having ME, and was reluctant to tell people that was what was wrong with her.
ME Awareness Week: BBC Newsbeat – Chronic fatigue: I was ‘held hostage by ME’ | 08 May 2018
I had just finished my GCSEs when I got ill. I noticed I was getting worn out uncharacteristically quickly.