ME Awareness Day: BBC Newsbeat – Millions Missing London Protest | 14 May 2018 Read More »
“The way I describe it is I’m actually grieving the loss of my sister because she’s not around anymore.”
Due to the stigma of the condition Merryn was “embarrassed” about having ME, and was reluctant to tell people that was what was wrong with her.
I had just finished my GCSEs when I got ill. I noticed I was getting worn out uncharacteristically quickly.
Dr Shepherd says the problem with GET is that it’s too rigid and pushes patients too far.
“Graded exercise therapy mistakenly assumes that ME/CFS fatigue and disability result from inactivity and deconditioning.”
Joan McParland found herself bed bound due to the debilitating, energy sapping condition ME, but she is now helping others with the illness to campaign for an improvement in services.
Huffington Post: I Am Stuck In The Prison That Is ME | 13 April 2018 Read More »
Have you ever laid in bed and felt so ill that you truly thought you were going to die?
The Countess of Mar writes on behalf of Forward ME to the Science Media Centre asking for a retraction of inaccuracies in their ‘factsheet’ on ME/CFS.
Merryn Crofts died on May 23 last year, 10 days after her 21st birthday.
The GETSET Trial: Letters to The Lancet and a response from the authors | 26 March 2018 Read More »
A total of five letters have now appeared in the Lancet critiquing elements of the GETSET trial, and the authors have now issued a response to all of them.
“Forced exercise above very low levels characteristically incapacitates most patients.”
“The message is clear – CBT and GET are not effective ways of treating a serious neuroimmune disease. The sooner this message gets across to health professionals the better.”
Dr Shepherd: ‘This new research demonstrates a defect in thyroid hormone activity rather than actual thyroid gland disease.’
“For people with ME/CFS, this is a very important piece of research involving clinical data collected by the ME Biobank.” Dr Charles Shepherd.
A controversial medical trial part-funded by the Department of Work of Pensions will emerge as “one of the greatest medical scandals of the 21st century” an MP today claimed.
There is an overlap in symptom presentation between Pernicious Anaemia and M.E. and the lack of routine testing in the current NICE guideline for ME/CFS has now been challenged.
A new study suggests that a blood test following exercise may be a very good way to differentiate between people who have ME/CFS and people who don’t.
A recent study from a research group at Newcastle University has found that patients with ME/CFS have significantly higher levels of a hormone called BNP in their blood and that this also correlated with significantly lower cardiac volumes.
Dr Charles Shepherd and Dr William Weir, met with Carol Monaghan MP yesterday, to discuss and advise on the Westminster Hall debate on the PACE trial that is taking place on 20th February.
The National Institutes of Health is trying hard to bring real hope — not false hope — to patients with ME/CFS, NIH director Francis Collins, MD, PhD, said during an exclusive interview with MedPage Today.
