NICE ME/CFS Guideline Review: Publication of revised Scope, comments, and committee appointments | 16 October 2018
NICE publish the revised Scope and reveal some of the committee appointments.
MEA Summary Review: The search for biomarkers in ME/CFS using Raman spectroscopy | 06 September 2018
Charlotte explains the methods and results from this latest research from Dr Morten’s team in Oxford.
BMJ: Pressure grows on Lancet to review “flawed” PACE trial | 24 August 2018
BMJ: Pressure grows on Lancet to review “flawed” PACE trial | 24 August 2018 Read More »
The BMJ also reports on mounting pressure for the Lancet to respond to calls for independent reanalysis of the controversial PACE trial.
The Times: Call for review of ‘flawed’ ME research in Lancet letter | 21 August 2018
The Times: Call for review of ‘flawed’ ME research in Lancet letter | 21 August 2018 Read More »
Update: Prof. Fiona Watt – Executive chairwoman, Medical Research Council – has responded to The Times with an endorsement of the PACE Trial.
Tribute paid to Sir Alex Fergusson, an important M.E. campaigner who died recently | 10 August 2018
Sir Alex Fergusson, ex-MSP and an important ME campaigner, died on Tuesday 31st July, aged 69, following a short illness.
NHS to update classification system to reflect that M.E. is neurological disease | 06 August 2018
The current listing for M.E. and CFS in the NHS classification system to be replaced by ‘disorder of the nervous system’.
NICE ME/CFS Clinical Guideline Review: ME Association Submission re: Scoping Report | 02 August 2018
In our submission, we highlight the issues we believe NICE should either include or omit from the new clinical guideline on ME/CFS.
MEA Summary Review: ME/CFS and the Biopsychosocial Model – By Dr Keith Geraghty | 29 June 2018
In a guest review, Dr Geraghty summarises his most recent study examining the BPS model in ME/CFS
BBC News: MP Carol Monaghan leads campaign for new ME treatment | 25 June 2018
BBC News: MP Carol Monaghan leads campaign for new ME treatment | 25 June 2018 Read More »
M.E. is incorrectly treated, lacks sufficient funding and is poorly understood by many in the medical profession.
NICE ME/CFS Clinical Guideline: Final scope consultation and lay member recruitment | 25 June 2018
The deadline for the NICE Scope Consultation and for Committee Recruitment is 26 July 2018.
The complete Ministerial response from the Parliamentary debate on M.E. treatment and research in Westminster Hall | 22 June 2018
A full transcript of the Ministerial response to the three-hour landmark debate on M.E. in Parliament.
The House: Carol Monaghan: We must change perceptions of the debilitating illness M.E. | 19 June 2018
Carol Monaghan, MP, is leading the debate on M.E. in Westminster Hall on Thursday, 21st June, 2018.
The Herald: After 25 years battling illness, actor prepares to showcase new film | 14 June 2018
The actor has adopted a holistic approach to self-care, at the centre of which lies a disciplined approach to sleep, nutrition, hydration and mental focus.
Carol Monaghan and other MPs secure Westminster Hall debate on M.E. | 07 June 2018
Carol Monaghan and other MPs secure Westminster Hall debate on M.E. | 07 June 2018 Read More »
Debate will take place on 21st June. Parliamentary briefing issued. Please invite your MP to attend!
The Times: ME sufferer who was dismissed as hysterical vindicated in death | 29 May 2018
The Times: ME sufferer who was dismissed as hysterical vindicated in death | 29 May 2018 Read More »
“We had doctors saying we just don’t believe in ME. When everyone is saying that to you it’s like a nightmare you can’t get out of.”
The ME Association and Press Coverage of Merryn Crofts Inquest by Dr Charles Shepherd | 28 May 2018
Dr Shepherd reflects on the recent inquest findings and media reports into Merryn’s tragic death from M.E.
2018 CMRC Research Conference: Register Now for ME/CFS Bristol Conference | 25 May 2018
2018 CMRC Research Conference: Register Now for ME/CFS Bristol Conference | 25 May 2018 Read More »
The CMRC Research Conference is a fantastic opportunity for researchers and patients to network and to hear more about M.E. research developments.
Government Inquiry into support for children and young people with special educational needs and disabilities (SEND) | 23 May 2018
The Education Committee is seeking parental views on SEND which may affect children with M.E.
Inquest Ruling: Young drama student Merryn Crofts killed by M.E. | 18 May 2018
Inquest Ruling: Young drama student Merryn Crofts killed by M.E. | 18 May 2018 Read More »
Pathologist Daniel DuPlessis pointed out that Merryn had inflammation of the ganglia – gatekeepers to sensations in the brain.
ME Association Ramsay Research Fund invests in new study with ME/CFS Biobank to examine dysfunctional immune system and energy metabolism | 15 May 2018
New research that will examine both immune system dysfunction in M.E. and defects in the way that energy is being produced at a cellular level.