Paediatric Specialist Fatigue Service
Address & Contact
Children’s Centre, B11
Royal United Hospital
Bath
Somerset
BA1 3NG
01225 821340
Website
Email: ruh-tr.paedscfsme@nhs.net
- The Paediatric Specialist Fatigue Service can provide assessment, diagnosis and treatment programmes for children and young people with Fatigue anywhere in the UK.
- The team comprises specialist Consultant Paediatricians and Psychiatrists, Psychologists, Physiotherapists and Occupational Therapists, and is led by Professor Esther Crawley, one of the few consultant paediatricians specialising in Chronic Fatigue in the country.
- Disabling fatigue is common after infections (as in Long-COVID) or in long-term conditions (cancer, inflammatory bowel disease, etc). Chronic Fatigue Syndrome or myalgic encephalomylopathy is also relatively common in children, affecting at least 1% of teenagers. ME/CFS is probably the largest cause of long-term absence from school.
- Despite this, there are very few teams in the UK who specialise in seeing children with long-term disabling fatigue, and even fewer who are able to see severely affected children in their home. We offer specialist individualised treatment tailored for children, adolescents and their families.
- We are committed to offering evidence based treatment. We have studied the revised NICE guidelines published on 29 October 2021. We are pleased to say that our service offers all of the aspects of treatment as recommended in the guidance.
- We offer holistic assessment and personalised care and support plans, developed together with the young person with ME/CFS and their family or carers. This includes exploring energy management, physical functioning and mobility, education support needs, managing symptoms and flare-ups, and supporting psychological and emotional well-being.