Lincolnshire ME/CFS Service

Address & Contact
c/o Manthorpe Centre Lincolnshire Partnership NHS Foundation Trust
Grantham and District Hospital, 101 Manthorpe Road,
Grantham
Lincolnshire
NG31 8DG
01476 464046
Website
Email: lpft.lincscfs-meservice@nhs.net

Asked to be referred as I was desperate for support. Unfortunately I didn't find support. They treated it as depression / tired all the time and definitely saw it as psychological. I felt they didn't actually understand fatigue! I got worse following their advice eg gradually increase activity. This was recently, since GET isn't recommend. I felt blamed and patronised, like a naughty school kid.
If I could leave zero stars I would. Absolutely dreadful service, based on the premise that the illness is entirely psychological. A very upsetting experience which I don’t care to repeat.
I was referred to this service in 2010 - didn't find the course I attended it very helpful and have just been left to manage on my own ever since with no follow up or further support.
  • The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome service (ME/CFS) is a specialist service that provides assessment and advice on ME/CFS management strategies.
  • The service is available to adults and children.
  • The ME/CFS service team consists of a wide range of skilled staff.
  • Our administrative team work from Grantham and District Hospital.  However, our clinical staff are part of the Community teams.
  • The aim of the ME/CFS service is to:
    • Offer specialist assessment to all adults and children
    • Support service users to improve their health
    • Teach adaptive coping strategies for effective management of ME/CFS
    • Take a patient centred approach to care
    • Work collaboratively with other health care professionals and services
    • Offer advice, education and support to carers, employers and education authorities on ME/CFS
  • The community team provides:
      • Individual assessments and formulations of patients’ problems/needs
      • Ten week group rehabilitation programmes (adults only)
      • Individual rehabilitation programmes
      • Education on ME/CFS
      • Liaison work with other professionals
Shopping Basket
Scroll to Top