Leeds and West Yorkshire ME/CFS Specialist Service

Address & Contact
The Newsam Centre
Seacroft Hospital, York Road
Leeds
Yorkshire
LS14 6WB
0113 85 56330 / 0113 85 56331 / 0113 85 56334
Website
Email: cfsme.lypft@nhs.net

I was diagnosed with chronic multi-factorial fatigue by the service in 2023. As I did not meet the diagnostic criteria for CFS I was discharged from the service. I was not provided with any advice or support despite experiencing many of the same symptoms e.g. Fatigue, PEM, sleep disturbance.I understand that the service now offer people who do not meet the criteria for CFS/ME one session.
I didn't get a diagnosis, just a letter that said 'yes they have symptoms that sound like CFSME which they may have' which has caused me issues years later despite attending the services. As other said, you don't get treatment, it's more informative/ management processes with OTs and a focus on CBT & mindfulness. I was hoping to see a medical specialist but there were no CFSME consultants.
This is not a treatment service. It is a symptom management service. Uses education, changes in routine, some psyche therapy & pacing. Clinical reports provided are useful for PIP etc
Continued care needed post rehabilitation programme. Unfortunately GPs don't know enough about ME/associated issues - this is where continued care is needed, including dietetic and physio input.
It’s a very “one size fits all” approach. There are only 4 sessions of group therapy and 4 individual sessions and that’s it. It is not supportive enough.
Welcome to the Leeds and West Yorkshire ME/CFS Service, which is a specialist NHS service for people with Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS).

**We are currently updating our website to provide you with the most up to date information. Thank you for your patience whilst this process is ongoing**

Our service is extremely popular – and we’ve seen a big surge in demand over the last three years. We think this is because of greater awareness of ME/CFS and also the impact of the Covid pandemic.  This has resulted in increased waiting times to access the service.

If you are referred to us today, you can expect to wait around 10 months for a first appointment.

Please note that these are average figures. Your own waiting time may be shorter or longer than this.

We are working as hard as we can to reduce the initial waiting time, and we are proud that our service is accessible to all. However, please be aware that you will have to wait for an assessment with us.

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