ME Awareness Week

For ME Awareness Week 2021 we will be discussing health and social care and the recent experiences of people with ME/CFS.

We need to raise awareness of what is happening now and try to discern how the new NICE clinical guideline might help to change current practices for the better or build on existing good practice.

While we wait for the new guideline to be published (18 August 2021), we have time to consider what we want to change and how we might work with the NHS to improve the current situation.

It is our hope that with the new clinical guideline, people with, or who are suspected of having, ME/CFS, can also reengage with the NHS and that awareness of the condition will mean more instances of best practice are felt by more people.

Nobody should feel that engaging with the NHS will mean they might encounter disbelief or that they will have to fight to get the care they deserve.

MEA Awareness Posters

Please feel free to use the posters and graphics to help raise awareness and spread our message so that we try and reach people who might have symptoms but not a diagnosis, who might have a diagnosis but not yet be part of the online community, and to others outside the patient community who might not understand the disease.

Clicking on any of the above images will download a PDF of the poster. To use any of these images in social media right click (PC) or control click (Mac) and choose the option to save the image to your machine.

The Lost Years

Symptoms Graphics

Fundraising Leaflets

  • FUNDRAISING SUPPLIES AND SUPPORT CHECKLIST for general use during the year

    We will be delighted to supply free kit to both your principal fundraisers and to people who turn out to support you on the day – so don’t be shy to ask! If you’ve any doubt on this score, please contact me for further information.

  • FUNDRAISING SUPPLIES AND SUPPORT CHECKLIST for use in the Go Blue for ME annual campaign

    We have a range of posters, leaflets and other supplies to help your fundraising and to help you explain ME to others. Please complete this form and return it to us - by post if you like or, to get quicker results, by emailing a scan of the completed form to me and we’ll try to get the supplies out to you by return.

  • ME Association - Go the Extra Mile for ME!

    How you choose to fundraise for the ME Association is entirely up to you. We are here to provide support and encouragement and to help put the FUN into fundraising. This leaflet will help you decide how you want to raise funds.

  • ME Association – About Us – What we do and why we do it

    This free leaflet has been written by Neil Riley, Chairman of the ME Association. It provides an overview of what we do as a national charity, who we are, and how we try to meet the needs of the ME/CFS community in the UK. It explains how we support, inform, campaign, and invest in biomedical research.

  • ME Association – ME Hurts!

    This leaflet carries factual information and comments from people with ME/CFS and their loved ones, who explain what it feels like to have an often-misunderstood neurological disease.

  • ME Association – Research Summary – The Pathology of ME/CFS

    This Free factsheet provides a summary of what biomedical research is telling us about ME/CFS. It considers key symptoms, common triggers, and explains emerging evidence of disease pathology.

  • ME Association – The Ramsay Research Fund

    The ME Association believes that investment in biomedical research is a key priority and we have invested more than £1million in recent years.

  • ME Association – The Telephone Helpline

    We deal with each person individually, in a sensitive and professional manner. Every communication is kept completely confidential. ME Connect is staffed by a fully trained and supervised team of volunteers – most of whom have personal experience of ME/CFS. CALL ME CONNECT 0344 576 5326. Available 365 days a year, between: 10am-12noon, 2pm-4pm, 7pm-9pm

  • ME Association – What you need to know about ME/CFS

    Myalgic encephalopathy/encephalomyelitis (also known as chronic fatigue syndrome) or ME/CFS is a complex multisystem disease with a wide range of disabling symptoms. This Free Factsheet provides information to help in the understanding of ME/CFS, its symptoms and management options.

  • ME/CFS/PVFS – Your Questions Answered

    Topics discussed in this leaflet, include: Nomenclature – a disease of many names, Who gets ME/CFS/PVFS, How does ME/CFS start, What marks ME/CFS out from other causes of chronic fatigue and more

  • NICE Clinical Guideline on ME/CFS – A Summary of the 2020 Draft

    This highlights the main points from the new draft guideline as they could prove helpful when in discussion with primary or secondary care providers ahead of the guidelines final publication.

Other Resources

  • ME Association – About Us – What we do and why we do it

    This free leaflet has been written by Neil Riley, Chairman of the ME Association. It provides an overview of what we do as a national charity, who we are, and how we try to meet the needs of the ME/CFS community in the UK. It explains how we support, inform, campaign, and invest in biomedical research.

  • ME Association – Research Summary – The Pathology of ME/CFS

    This Free factsheet provides a summary of what biomedical research is telling us about ME/CFS. It considers key symptoms, common triggers, and explains emerging evidence of disease pathology.

  • NICE Clinical Guideline on ME/CFS – A Summary of the 2020 Draft

    This highlights the main points from the new draft guideline as they could prove helpful when in discussion with primary or secondary care providers ahead of the guidelines final publication.

ME Association Video

ME Awareness Week Blogs

Please support our vital work

We are a national charity working hard to make the UK a better place for people whose lives have been devastated by an often-misunderstood neurological disease.

If you would like to support our efforts and ensure we are able to inform, support, advocate and invest in biomedical research, then please donate today.

Just click the image opposite or visit our JustGiving page for one-off donations or to establish a regular payment. You can even establish your own fundraising event.

Or why not join the ME Association as a member and be part of our growing community? For a monthly (or annual) subscription you will also receive ME Essential – quite simply the best M.E. magazine!


ME Association Registered Charity Number 801279


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