Karen Gordon: Family update on solicitors emails, Hickman line replacement and visit from hospital management
** Trigger Warning: Very upsetting content ** Karen Gordon who […]
Severe ME/CFS
British Association of Clinicians in ME/CFS (BACME): ME/CFS Tube Feeding Survey Report
British Association of Clinicians in ME/CFS (BACME): ME/CFS Tube Feeding Survey Report Read More »
** Trigger Warning: Contains upsetting content ** The British Association
Rebecca’s story: speaking out to advocate for greater awareness during Severe ME Week
Rebecca’s story: speaking out to advocate for greater awareness during Severe ME Week Read More »
“The reality is that there is currently no clear treatment
Hailee’s story: lived experience with severe ME
Hailee’s story: lived experience with severe ME Read More »
“Hope is what keeps me going. It is what helps
Naomi’s story: lived experience of Severe ME
Naomi’s story: lived experience of Severe ME Read More »
“I want to share my lived experience of severe ME as I
An Essay on Living with Severe ME
An Essay on Living with Severe ME Read More »
** TRIGGER WARNING: This post may be upsetting for some
MP Tessa Munt raises issues of the lack of specialist services for those severely affected by ME/CFS
Tessa Munt ©House of Commons/Roger Harris, cropped and shared under
Dr Charles Shepherd speaks on Good Morning Britain following Maeve Boothby Inquest
Dr Charles Shepherd speaks on Good Morning Britain following Maeve Boothby Inquest Read More »
**Trigger Warning: Upsetting content** Good Morning Britain Extracts “As we’ve
Camilla: My best friend has severe ME
Camilla: My best friend has severe ME Read More »
My best friend Chloé is bedridden with severe ME/CFS following a
Failings in the care of patients with Very Severe ME by Dr Nigel Speight
Failings in the care of patients with Very Severe ME by Dr Nigel Speight Read More »
In the UK over recent years there have been a succession of cases of very severe ME who have been mismanaged by the medical profession, in the worst cases with fatal consequences.
The Times: ‘Hospitals have no services for most severe ME cases, coroner told’
The Times: ‘Hospitals have no services for most severe ME cases, coroner told’ Read More »
Maeve Boothby-O’Neill, the daughter of the Times journalist Sean O’Neill, died 2 years ago after becoming bedbound.
Severe ME Week 2023: A parent’s perspective
Severe ME Week 2023: A parent’s perspective Read More »
Given the vast numbers of patients throughout the U.K. with