Tessa Munt ©House of Commons/Roger Harris, cropped and shared under an Attribution 3.0 Unported (CC BY 3.0) licence.
** TRIGGER WARNING: This video and post contain upsetting content **
Last week, Tessa Munt MP, Chair of the APPG on ME, raised Savannah Victora-May's case in parliament. During the debate, the lack of specialist services for people with Severe ME was also raised.
You can read more about Savannah's situation and sign the petition set up by her friends here:
MEA Comment
We would like to express sincere thanks to MP Tessa Munt for the continued advocacy of ME/CFS patients.
The ME Association continue to work with others to advocate for better healthcare provision which includes dealing with cases that need urgent advocacy.
Dr Charles Shepherd,
Trustee and Hon. Medical Adviser to the ME Association,
Member of the 2018-2021 NICE guideline on ME/CFS committee,
Member of the 2002 Chief Medical Officer's Working Group on ME/CFS
More Information:
- MP Tessa Munt elected as the new Chair of the APPG on ME | January 30, 2026
- MP Tessa Munt chairs APPG on ME and shares an uplifting message for 2026! | December 15, 2025
- Parliamentary Debate on ME/CFS: ‘I will hold the minister’s feet to the fire’ MP Tessa Munt | November 20, 2025