News | The ME Association - Part 205

The ME Association’s much praised response to the draft NICE guideline – first published in the December 2006 issue of our quarterly ME Essential magazine – is now available on this website to read and to print off. The document is 6,650 words in length and was written by our medical adviser Dr Charles Shepherd […]

To mark ME Awareness Day on Saturday 12th May 2007 Shropshire and Wrekin ME Support will launch their Development Plan on the original iron bridge in Ironbridge, Shropshire. Liz Lynne MEP, one of the group’s patrons, will attend.

ME group blasts NHS by Marie Levy, Evening Gazette   People with ME on Teesside have been deserted by the NHS according to a North-east campaign group.

The ME Association is pleased to announce two new Patrons: 

This is a brief summary of key issues that were discussed at The ME Association Board of Trustees meeting held in Buckingham on Tuesday 17 April 2007

A woman killed herself after becoming increasingly frustrated at the failure of medical tests to confirm her belief that she had a serious illness, an inquest has heard.

Victims give clues to the answers The development of an autopsy protocol may help unlock some of the mysteries of chronic fatigue syndrome, writes Julie Robotham.

ME Essential, the quarterly magazine of The ME Association, is now out. At 44 pages, it’s our biggest issue in years.

MAY BE REPOSTED The Melvin Ramsay Society is a medical and scientific study group. The membership, which consists of doctors and other health professionals who believe that ME/CFS is a physical illness, organise scientific and clinical meetings and seminars which we pay for out of our membership fees. The next meeting of the Melvin Ramsay […]

Legacy paper The Cross Party Group on M.E. (M.E. as defined by the World Health ,Organisation) will formally break up before the Scottish Parliament elections in May 2007. The Group leaves the following legacy paper to the Cross Party Group that will reform following the elections so that the work that has been carried out […]

From Dr Fred Kavalier’s "Casebook" health@independent.co.uk NEW FOREST CONCERNS  

Ticked off By Alastair Robertson MY WIFE’S BEST FRIEND from Somerset writes to say her dogs have had ticks ALL winter. Can you beleeeeve it!!!! Like a great many women with dogs, and some, I am sure, without, my wife’s best friend writes in exclamation marks. I don’t mind; it’s very nice that she writes. […]

Before Members of the Scottish Parliament stood down earlier this week, 2 April 2007, prior to elections on 3 May, a number of Parliamentary groups and committees prepared legacy papers to inform the work of the next session. One of the first of these to publish was the Cross Party Group on M.E. (myalgic encephalomyelitis […]

In an interview in the March edition of US jazz monthly Downbeat, famed jazz saxophonist David Sanborn (61) revealed that he has been increasingly suffering from Post-Polio Syndrome. He was diagnosed with Polio aged three, in St Louis, and spent a year in an iron lung followed by 2 years in bed. During this convalescence, […]

Did you know that it’s Tick Prevention Week?  http://www.tickpreventionweek.org/  

Source: Philadelphia Business Journal Date:   March 30, 2007 Author: John George <jgeorge@bizjournals.com>  Read article on Philadelphia Business Journal website Hemispherx finalizing fatigue drug filing

From Vincent Costa <vincentdcosta@rediffmail.com>: I would like to announce a new Web site – ME India. It’s the first one in India for people with ME It hopes to bring about the awareness of M.E to the very people who suffer from it, as we estimate it to be about 4 million or so in […]

Virtual school gives Lorna reason in life A YEAR ago teenage ME sufferer Lorna Woodman was stuck in her bedroom wondering if she would ever get a chance to study again. Now the 18-year-old is about to take her first round of AS-levels after signing up to an online school that allows her to study […]

Carlisle’s new support group for people with ME/Chronic Fatigue Syndrome got off to a flying start on Monday (March 26) – when dozens of visitors turned up for its first public event at the University of Central Lancashire’s Cumbria Business School.

Sports-mad boy’s battle with ME By Tarik Al Rasheed JUST over a year ago Jordan Vautrinot was a healthy sports-mad 11-year-old boy. But now he needs a wheelchair, can no longer attend school and finds spending even a short while out of bed absolutely exhausting.