News

SAVED FROM A LIVING DEATH by Esther Rantzen For 14 years, Esther Rantzen’s daughter Emily had her life destroyed by ME. Trapped in a wheelchair, wasting away, she wanted to die. Now, thanks to radical "mind over matter" therapy, she’s cured herself.

Dozens of people have used this site’s search tool to find out more about the "Lightning Process", which was featured in the Daily Mail on February 6 and in other large articles this month in the regional press. The ME Association’s position on the subject is as follows:

For details about this informal and friendly group, which started in Glasgow just before Christmas, please click here

Minutes of the meeting of the All Party Parliamentary Group on M.E. Held 1.30pm, Thursday 16th November 2006 Committee Room 17, House of Commons

Sir Michael Rawlins, Chairman, National Institute for Health and Clinical Excellence, will appear before the next All-Party Parliamentary Group on M.E.

STATEMENT BY NATIONAL ME ORGANISATIONS ON DWP CFS/ME GUIDANCE DOCUMENT (VERSION 9) We are pleased that the DWP has acknowledged that there has been a 'black hole' with ME/CFS, resulting in many decision makers/adjudicators having trouble making correct allocations, and have agreed to address this. 

As already notified to members in our ME Essential quarterly magazine, we shall be holding our Annual General Meeting on 17 February 2007.

MAY BE REPOSTED The ME Association has just received this communication from NICE

MAY BE REPOSTED Following a request from the Gibson Inquiry secretariat, The ME Association has forwarded a copy of the transcript and Powerpoint slides used by Dr Nigel Speight, Paediatric Adviser to The ME Association, when he presented evidence on ME/CFS in children and adolescents to the fourth oral hearing.

SUBMITTED FOR PUBLICATION Dear Sir, "Gently does it" says Edi Smockum on advising us about exercise when ill. Tiredness, muscle aches, chills and swollen lymph glands require rest. What excellent advice!

Gently does it By Edi Smockum There is no more challenging time to keep to a fitness regime than during an illness. Those with less than total commitment to training routines will find it hard to get back to them if they are out for any length of time. So how do you keep on […]

From The Times, 22 January 2007 ‘Fatigue Syndrome is not all in the mind’ – by Peta Bee

It is with great regret that we heard last night of the death of Mrs Angela Flack, a trustee of the Board of The ME Association. 

The next meeting of the Group for Scientific Research into ME has been set for 6 February 2007 Further to the publication of the Group's Report at the end of last year, the GSRME is holding a meeting to discuss the Report, how to use it and how to keep the political momentum behind the […]

There was a written answer in Parliament regarding the NICE guidelines

The Chairman of the National Institute for Clinical Excellence (Nice) has said that the outfit cannot cater to all parties needs and must sometimes make tough decisions.

Saturday, 3 March, Kidlington Community Education Centre, Oxford, 2.30pm Lecture by Mary Black, occupational therapist with the PACE Trial "Occupational Therapy and CFS/ME". Lecture organised by Oxfordshire ME Group for Action (OMEGA).

INTENDED FOR PUBLICATION Re: Healthnotes / 14 January 2007 /p63 Representatives from ME/CFS charities have tried unsuccessfully to ensure that new medical guidance to be issued by the Department of Work and Pensions in February properly reflects the fact that this is a serious and potentially very disabling neurological illness.

Hampshire Friends with ME have set up a new area branch in Eastleigh, a few miles to the north of Southampton. Local people wishing to make contact can phone Jackie Reeves on 02380 611544 or email Eastleigh area branch

Welcome to The ME Association, also registered as The ME Society. We provide information, support and practical advice for people who are affected by ME/CFS/PVFS (Myalgic Encephalopathy/Chronic Fatigue Syndrome/Post Viral Fatigue Syndrome), their families and carers. We also fund and support research, and offer education and training. Learn about all aspects of ME/CFS, written specifically […]