A vital ME Association-funded study into the genetic origins of ME/CFS enters a new phase today (Monday, February 12) – when a full-time research assistant joins the team at Glasgow Caledonian University.
The decision by researchers on the American CFS Name Change Advisory Board (meeting in Florida on 12 January 2007) to agree that a new name should be adopted for chronic fatigue syndrome (CFS) is obviously very welcome. At the same time they have expressed support for the use of the term ME, as myalgic encephalopathy […]
This is a summary of key points raised by The ME Association during the meeting at the House of Commons on Tuesday 6 February to discuss feedback to the Gibson Inquiry Report. A detailed summary of the meeting is being prepared for the March issue of ME Essential magazine.
Instead of having a traditional 50th birthday for family and friends, the minister of the United Reformed Church in the Scottish fishing port of Fraserburgh will be having a musical celebration instead.
Commons' Health Committee press notice, 2 February 2007
For the second year running, the annual "ME People's Day Event" in central London during ME Awareness Week is being organised by Di Newman, of the Peterborough ME and CFS Self-Help Group.
SAVED FROM A LIVING DEATH by Esther Rantzen For 14 years, Esther Rantzen’s daughter Emily had her life destroyed by ME. Trapped in a wheelchair, wasting away, she wanted to die. Now, thanks to radical "mind over matter" therapy, she’s cured herself.
Dozens of people have used this site’s search tool to find out more about the "Lightning Process", which was featured in the Daily Mail on February 6 and in other large articles this month in the regional press. The ME Association’s position on the subject is as follows:
For details about this informal and friendly group, which started in Glasgow just before Christmas, please click here
Minutes of the meeting of the All Party Parliamentary Group on M.E. Held 1.30pm, Thursday 16th November 2006 Committee Room 17, House of Commons
Sir Michael Rawlins, Chairman, National Institute for Health and Clinical Excellence, will appear before the next All-Party Parliamentary Group on M.E.
STATEMENT BY NATIONAL ME ORGANISATIONS ON DWP CFS/ME GUIDANCE DOCUMENT (VERSION 9) We are pleased that the DWP has acknowledged that there has been a 'black hole' with ME/CFS, resulting in many decision makers/adjudicators having trouble making correct allocations, and have agreed to address this.
As already notified to members in our ME Essential quarterly magazine, we shall be holding our Annual General Meeting on 17 February 2007.
MAY BE REPOSTED The ME Association has just received this communication from NICE
MAY BE REPOSTED Following a request from the Gibson Inquiry secretariat, The ME Association has forwarded a copy of the transcript and Powerpoint slides used by Dr Nigel Speight, Paediatric Adviser to The ME Association, when he presented evidence on ME/CFS in children and adolescents to the fourth oral hearing.
SUBMITTED FOR PUBLICATION Dear Sir, "Gently does it" says Edi Smockum on advising us about exercise when ill. Tiredness, muscle aches, chills and swollen lymph glands require rest. What excellent advice!
Gently does it By Edi Smockum There is no more challenging time to keep to a fitness regime than during an illness. Those with less than total commitment to training routines will find it hard to get back to them if they are out for any length of time. So how do you keep on […]
From The Times, 22 January 2007 ‘Fatigue Syndrome is not all in the mind’ – by Peta Bee
It is with great regret that we heard last night of the death of Mrs Angela Flack, a trustee of the Board of The ME Association.
The next meeting of the Group for Scientific Research into ME has been set for 6 February 2007 Further to the publication of the Group's Report at the end of last year, the GSRME is holding a meeting to discuss the Report, how to use it and how to keep the political momentum behind the […]