The Health Select Committee of the House of Commons will hold its final day of evidence in its inquiry into the National Institute for Health and Clinical Excellence (NICE) on Thursday, November 8.
News | The ME Association - Part 200
Former mayor ‘backstabbed’ in fraud benefit case
A former mayor and his wife were accused of swindling benefits because of political grudge against him, a court heard yesterday (October 24).
Closure of The MEACH Trust
In view of questions being asked, and the absence of any public statement, The ME Association asked the Charity Commission (CC) a number of questions last week regarding the decision to dissolve the MEACH TRUST charity on 21 August 2007.
Health minister: ‘no specific plans to improve ME/CFS services’
In Parliament, October 19 Answer to written question to the Health Secretary about specialist services for ME/CFS
Activive – regulatory update
A few months ago The ME Association started receiving queries about the medicinal claims being made for a product called Activive that was being sold over the internet.
Steve Craig’s online art gallery
From the October issue of The ME Association’s quarterly magazine, ME Essential, published this weekend. An artist, poet and teacher who went down with ME has opened an online art gallery to show his work.
ME/CFS occupational health guidance under review
From the October issue of The ME Association’s quarter magazine, ME Essential, published this weekend. A total of 25 ME charities and groups have now signed up to a statement repudiating the NHS Pus occupational health guidance for ME/CFS as "insulting to many people with this illness who have fought tooth and nail to keep […]
Please send a letter to your MP
To find out who your MP is click here and type in your postcode To download a copy of our latest political briefing paper, click here Please help us raise the profile of ME in Parliament.
Berkshire ME/CFS services campaign – update
Reading area ME Support Group and West Berkshire ME/CFS and FM Group tell us: For some years, we have been pressing for improvements in the care available to patients.
ME research: two years to walk The Amazon
Photo by Jeremy James The longest-ever expedition to be mounted to raise funds for ME research is now likely to take up to two years to complete, say explorers Ed Stafford and Luke Collyer.
Research – The James Lind Alliance
The James Lind Alliance website now has information and reports relating to two research meetings held in September 2007 (with the AMRC) and June 2007 (with The Lancet).
Concern over sick notes overhaul
From ‘Pulse’ the weekly newsletter for GPs Further moves towards relieving GPs of duties for writing sick notes have sparked controversy, after a GPC negotiator said he feared the issue was being hijacked by politicians seeking to cut social benefits.
Budget boost for Medical Research Council
From The Times, 10 October 2007 Government funding of medical research will rise by a record amount over the next three years as part of efforts to turn basic discoveries into new treatments.
Chocolate and ME in ‘Pulse’ medical magazine
Eating a daily dose of dark chocolate can help ease symptoms of chronic fatigue syndrome, report the Daily Mail and BBC News online.
Recognition in Catalonia
From Clara Valverde The Promoting Commission (the patient leaders who do the organizing) of the Catalan CFS-FMS Popular Legislative Initiative (CFS-FMS PLI)has received the Alternativa Award last September 29, 2007 in Barcelona, Spain.
Critical appraisal of chronic Lyme Disease
The New England Journal of Medicine (4 October 2007) has just published: ‘A critical appraisal of "Chronic Lyme Disease"
New ME/CFS group in Northamptonshire
A new ME/CFS group is to be set up in Crick, Northamptonshire – at the home of Mrs Patricia Lake, who is the wife of the vicar the Rev David Lake.
Grants for powered wheelchairs?
This is an anonymised version of an inquiry we have just received at The ME Association. if anybody can help by pointing us towards the right organisation, please email us.
New chief executive for the Medical Research Council
The Medical Research Council has announced that Sir Leszec Borysiewicz will be replacing Professor Colin Blakemore as Chief Executive.
Dark chocolate – new treatment for ME/CFS?
The UK media are today reporting that eating dark chocolate, which has a high cocoa content, may be an effective treatment for ME/CFS.