News

There was a written answer in Parliament regarding the NICE guidelines

The Chairman of the National Institute for Clinical Excellence (Nice) has said that the outfit cannot cater to all parties needs and must sometimes make tough decisions.

Saturday, 3 March, Kidlington Community Education Centre, Oxford, 2.30pm Lecture by Mary Black, occupational therapist with the PACE Trial "Occupational Therapy and CFS/ME". Lecture organised by Oxfordshire ME Group for Action (OMEGA).

INTENDED FOR PUBLICATION Re: Healthnotes / 14 January 2007 /p63 Representatives from ME/CFS charities have tried unsuccessfully to ensure that new medical guidance to be issued by the Department of Work and Pensions in February properly reflects the fact that this is a serious and potentially very disabling neurological illness.

Hampshire Friends with ME have set up a new area branch in Eastleigh, a few miles to the north of Southampton. Local people wishing to make contact can phone Jackie Reeves on 02380 611544 or email Eastleigh area branch

Welcome to The ME Association, also registered as The ME Society. We provide information, support and practical advice for people who are affected by ME/CFS/PVFS (Myalgic Encephalopathy/Chronic Fatigue Syndrome/Post Viral Fatigue Syndrome), their families and carers. We also fund and support research, and offer education and training. Learn about all aspects of ME/CFS, written specifically […]

This is the medical guidance which will be made available in February to Department for Work and Pensions decision-makers adjudicating on claims from people with ME/CFS for Disability Living Allowance and Carer's Allowance.

In a people's vote, The ME Association's entrant in last year's London Triathlon – Katharine Vile – has won a place in the elite Triathlon Academy where she will receive training from an Olympic coach to improve her technique.

A new clinical study offers hope of a therapy for the UK’s 250,000 adult and child ME sufferers Drug to be tested on ME patients by Rebecca Anne Smith, Times Online A new clinical study offers hope of a therapy for the UK’s 250,000 adult and child ME sufferers A new clinical study suggests there may […]

It should be explained that there are a number of different names for what is an illness of uncertain cause affecting many thousands of people. Currently it is estimated that some 250,000 people in Britain are affected by this illness.

Carlisle News and Star, January 9 A PIONEERING support group has been set up to help local sufferers of the debilitating condition ME.

Could ME be caused by too much adrenaline? By ROMA FELSTEIN Twelve months ago, Leonie Gough was so ill she spent most of her time in her bed. The 17-year-old had ME, a condition which left her barely able to eat, let alone walk. She hadn’t been able to go to school for three years […]

Please use the following details: Tel: 01280 818 964 or 818 968 (between 9.30am and 4.30pm) The ME Association 7 Apollo Office Court Radclive Road Gawcott Bucks MK18 4DF

Please contact Gill Briody Email:meconnect@meassociation.org.uk Tel: 01280 818 964 (between 9.30am and 4.30pm) The ME Association 7 Apollo Office Court Radclive Road Gawcott Bucks MK18 4DF

Non-members: If you wish to join The ME Association please read the section about becoming a member . If you have a question that is not answered on that page, please contact ME Connect . However, we regret that we are not able to advise you upon specific personal medical or benefit problems. Our Telephone […]

A Membership Form is available for download below which you can print, complete and send to Head Office. If for any reason you are unable to use this document, please contact ME Connect and we will be pleased to post you a copy. When we have received your completed Membership Form and subscription, we will […]

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The New Year has got off to a promising start for people with ME/CFS and their carers in England-Scotland border country – with the opening of a new ME/CFS group and academic project in Carlisle. Carlisle ME/CFS Support Group will be launched next week by Linda Danielis, a senior lecturer in Cumbria Business School at […]

Dick Patterson, president of Dorset ME Support Group, has been made MBE in the New Year's Honours List. Dick was chairman of the Dorset group for 17 years until he stood down from the post last year, when he was succeeded by Tim Stirgess.

The National Institute for Health and Clinical Excellence (NICE) has produced a draft guideline for ME/CFS which it has put out for comment. With its emphasis on CBT and graded exercise as therapies of first choice, it will set the pattern for assessment,  diagnosis and clinical management for years to come. The ME Association says […]