News | The ME Association- Part 202

The new NICE clinical practice guidelinesfor ME/CFS – due to be published on 22 August – will be the keynote topic under discussion at this year’s ME Association Annual Medical Meeting on Saturday, September 15.

‘HOW CAN CLINICAL TRIALISTS SERVE THE NEEDS OF CLINICIANS AND PATIENTS MORE EFFECTIVELY?’ NB: this report also contains information on a new MRC meeting regarding ME/CFS research.

Special double feature on ME as Radio Scotland explored one of the most misunderstood and controversial of diseases – ME.

ME CHARITY CALLS FOR MEDICAL RESEARCH COUNCIL TO STOP WASTING MONEY ON INAPPROPRIATE RESEARCH

The ME Association has been informed today that the NICE guideline on ME/CFS will now be published on Wednesday 22 August 2007.  

The next APPG meeting, chaired by Dr Des Turner MP, will take place: 1.30 – 3pm on Thursday 12 July 2007 in Committee Room 17, House of Commons, Palace of Westminster (entry via St Stephen’s entrance).

Minutes of the meeting of the All Party Parliamentary Group on M.E. held at 1.30pm, Thursday 17th May 2007 Committee Room 17, House of Commons

This is a brief summary of key issues that were discussed at The ME Association Board of Trustees meeting held in Buckingham on Friday 16 June 2007

Mr Dick Patterson, president of the Dorset ME Support Group, is pictured with members of his family after receiving his MBE from The Queen earlier today.

Yesterday evening, I learned that former MEA Chairman, Christine Llewellyn, died on Tuesday from acute heart failure.

With only two of the MSPs from the previous Cross-Party Group on ME in the Scottish Parliament available to join any new group following the election, Charlie Gordon (Glasgow Cathcart, Labour) has invited MSPs to volunteer to reform the Group for this parliament.

Another ME support group has signed up to the joint charities and support groups’ statement on the NHS Plus occupational health guidance for ME/CFS – bringing the total up to 25.

Charities applaud £340m package but push for rights from "Community Care" magazine, 24 May 2007 by Amy Taylor 

MAY BE REPOSTED   I am seeking information about people who are being seen/have been seen at the London Homeopathic Hospital but have now been told that they will no longer be able to have follow-up appointments there.

Daily Mail – June 6 Could these new drugs end the misery of chronic fatigue? by Roger Dobson

Bookings are now being taken for the UK’s sixth annual conference on tick-borne conferences, organised by Lyme Disease Action.

NOTICE FROM THE YOUNG ME SUFFERERS TRUST Our new telephone number

MAY BE REPOSTED I’m in the process of preparing a short MEA information sheet on the subject of travel insurance – a topic that we are often asked about at this time of year.

Please note that a permanent link to this policy statement will shortly be provided on this website, and the statement will also appear in the July issue of our quarterly ME Essential magazine. THE MEA RAMSAY RESEARCH FUND (RRF) One of the many scandalous aspects of ME/CFS is the fact that research into the underlying […]

From The Times, May 23 2007 by Mark Henderson, Science Editor