This is a brief summary of key issues that were discussed at The ME Association Board of Trustees meeting held in Buckingham on Friday 16 June 2007
Mr Dick Patterson, president of the Dorset ME Support Group, is pictured with members of his family after receiving his MBE from The Queen earlier today.
Yesterday evening, I learned that former MEA Chairman, Christine Llewellyn, died on Tuesday from acute heart failure.
With only two of the MSPs from the previous Cross-Party Group on ME in the Scottish Parliament available to join any new group following the election, Charlie Gordon (Glasgow Cathcart, Labour) has invited MSPs to volunteer to reform the Group for this parliament.
Another ME support group has signed up to the joint charities and support groups’ statement on the NHS Plus occupational health guidance for ME/CFS – bringing the total up to 25.
Charities applaud £340m package but push for rights from "Community Care" magazine, 24 May 2007 by Amy Taylor
MAY BE REPOSTED I am seeking information about people who are being seen/have been seen at the London Homeopathic Hospital but have now been told that they will no longer be able to have follow-up appointments there.
Daily Mail – June 6 Could these new drugs end the misery of chronic fatigue? by Roger Dobson
Bookings are now being taken for the UK’s sixth annual conference on tick-borne conferences, organised by Lyme Disease Action.
NOTICE FROM THE YOUNG ME SUFFERERS TRUST Our new telephone number
MAY BE REPOSTED I’m in the process of preparing a short MEA information sheet on the subject of travel insurance – a topic that we are often asked about at this time of year.
Please note that a permanent link to this policy statement will shortly be provided on this website, and the statement will also appear in the July issue of our quarterly ME Essential magazine. THE MEA RAMSAY RESEARCH FUND (RRF) One of the many scandalous aspects of ME/CFS is the fact that research into the underlying […]
From The Times, May 23 2007 by Mark Henderson, Science Editor
The longest-ever expedition to be mounted to raise funds for ME research will start at the beginning of April next year – when former British Army captain Ed Stafford and professional outdoor instructor Luke Collyer take on the world’s second largest river. They plan to take a year to walk 4,000 miles from the source […]
MAY BE REPOSTED COMMITTEE ROOM 17: HOUSE OF COMMONS
The following statement was posted on the official website of the Group for Scientific Research into ME, led by Dr Ian Gibson MP, on Friday, 18 May:
Group on Scientific Research into ME 8th May 2007 4pm Room W2 HOC Agenda
If anyone intending to come to the New Horizons: International Conference on ME/CFS Biomedical Research http://www.meresearch.org.uk/newhorizons.html (on Friday 25th May 2007, at the Edinburgh Conference Centre, part of the campus of Heriot-Watt University, Edinburgh, UK) has not yet registered, please register by email or phone ASAP. The registration fee is £60, and included in this […]
The Independent Extra : Education First Letter Thursday 17 May
We have just been notified of this Italian-language ME/CFS website and chat forum. CFSItalia The site administrator tells us: CFSItalia’s aim is to brief patients, health care professionals and people with suspected CFS (Chronic Fatigue Syndrome) by publicising studies, research, centres of diagnosis addresses, recent findings, pathogenesis hypotheses, treatments and their results. In the Forum, […]