February marks Raynaud's disease or Raynaud's phenomenon awareness month. The ME Association is helping to raise awareness of this condition as the symptoms can affect people with ME/CFS and Long Covid.

Scleroderma and Raynaud’s UK (SRUK)
SRUK is the only national charity dedicated to improving the lives of people with scleroderma and Raynaud's disease/phenomenon.

“Raynaud's disease (Ray-nodes) means that the small blood vessels in the extremities such as the hands, feet, fingers or toes are over-sensitive to even the slightest changes in temperature, cold conditions and sometimes emotional stress.”

“In some cases, it is another health condition that causes the blood vessels to overreact, leading to Raynaud's symptoms. This is called secondary Raynaud's. The chances of having secondary Raynaud's are very low, since only 10% of people with Raynaud's will develop an associated condition.”

Do you experience any symptoms of Raynaud’s disease? *

• Yes
• No

Have you been diagnosed with Raynaud’s disease?

• Yes
• No

Do you have ME/CFS and/or Fibromyalgia?

• ME/CFS
• Fibromyalgia
• Both
• Neither

Do you have family members with Raynaud’s disease?

• Yes
• No
• Don't Know

Which of the following symptoms of Raynaud’s do you experience?

• extreme sensitivity to cold
• white fingers and toes
• poor circulation
• pain
• numbness
• pins and needles
• skin problems/deterioration
• tingling and throbbing (when circulation improves)
• Other (please specify)

Other symptom(s)

What do you feel might be your triggers of Raynaud’s disease?

• Changes in temperature
• Cold weather
• Stress
• Underlying condition (please specify)
• Other (please specify)

Other triggers

Do you take medication for Raynaud’s disease?

• Yes
• No

Do you also have any of the following conditions:

• Postural Orthostatic Tachycardia Syndrome (PoTS)
• Lupus (systemic lupus erythematous)
• Scleroderma
• Sjögren’s Syndrome
• Rheumatoid arthritis
• Blood disorder
• Thyroid disorders
• Other

Other condition(s)

Submit