IMAGE DESCRIPTION: Photo of the ME Association Staff and Trustees at the event. Photo of Jeremy Jeffs and David Allen, MEA Chairman, at the exhibition. Heading - ‘Lives We Cannot Live’ Exhibition highlights. Photographs by Jeremy Jeffs, presented by The ME Association

Lives We Cannot Live: Photography exhibition at London’s Oxo Tower Wharf: highlights

The ME Association has been proud to present ‘Lives We Cannot Live,’ a thought-provoking photographic exhibition by documentary film-maker and photographer Jeremy Jeffs, displayed in the iconic Oxo Tower Wharf on London’s South Bank this September.

The exhibition, which was held across five days, reflected the stark realities of daily life for people with ME/CFS through a collection of more than 50 striking images. 

Opening night brought a range of guests from the ME/CFS community together and included well-received speeches. The ME Association Trustees produced an overview of the charity and future plans, while Jeremy Jeffs provided an insight into the inspiration behind the exhibition, and Professor Danny Altmann addressed the historic challenges with ME/CFS research along with a shared commitment to drive progress.

The exhibition showcased the visually impactful images of more than 20 people from across the country, and some of those photographed were able to join us on the opening night.

Across the duration of the exhibition, many visitors were welcomed through the doors, helping to raise awareness and create a better understanding of ME/CFS and the impact that it has on people’s lives.

Staff - Martine Ainsworth Wells

“Lives We Cannot Live has been a resounding success, and we have been delighted to present the exhibition in such a prestigious London venue – one which has served as an effective platform to tell the stories of those affected by ME/CFS. 

The images displayed were a powerful representation of people who often feel invisible and lost by society, and these photographs have made a long-lasting impression on visitors to the exhibition. It was wonderful to see so many people come together to support ‘Lives We Cannot Live’ and help to drive greater awareness and understanding of ME/CFS.”  Martine Ainsworth-Wells, trustee and campaigns director at The ME Association

What did people think?

We asked people vising the exhibition to let us know how it made them feel. Here are some of their responses:

“Grateful to have someone bring to life my illness and for others to see”
“Overwhelmed but also somewhat relieved to see my Dad represented in so many other people”
“It was harrowing but great to see my illness represented”
“Really shows in pictures how ME affects people”
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