Exeter ME patient's hospital care changed after campaign

Exeter ME patient’s hospital care changed after campaign

The BBC reports on a change made in the feeding regime for Alice Barrett, 25, at the Royal Devon and Exeter Hospital. She has severe ME/CFS and is unable to sit up and feed herself.


Ms Barrett was diagnosed with ME in November 2020 and had the disease moderately, before a major deterioration at the end of April 2022.

She was admitted to the RDE on 10 February.

Her family said they had taken expert advice which said Ms Barrett should be tube fed lying down.

They urged the RDE Trust to deviate from a policy of tube feeding patients at an angle of 30 degrees to avoid choking.

The trust said in a statement: “Our complete focus continues to be to provide Alice with the safest possible care.

The family said on a petition page: “The trust's guidelines state that you have to be at least 30 degrees for NG tube feeding.

“They have now adapted their guidelines which should help Alice tolerate being feed.

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