IMAGE DESCRIPTION: An image of a candle with the hashtag #LightForKara. A picture of Kara singing into a microphone from her bed (top right) and the ME Association logo (bottom right)

BBC News: Kara Jane Spencer: Severely ill singer who recorded hit album dies

The BBC has reported on the sad death of Kara Jane Spencer who sadly passed away at the age of 32.


A seriously ill singer who recorded a hit debut album following an online appeal two years ago has died.

Kara Jane Spencer, 32, from Derbyshire, had a severe form of ME that left her unable to walk and requiring full-time nursing care.

In May 2020 she issued an appeal for musicians and producers to help her complete her first album.

MEA Comment

Dr Charles Shepherd, Honorary Medical Adviser to the ME Association said:

We are very sorry to hear that Kara Jane Spencer has died. She was at home with her family by her side.

Kara was indeed a very special young woman who embraced life with love, generosity and endless determination.

Kara was also a very accomplished singer and songwriter who has raised a considerable amount of money for the ME Association's Ramsay Research Fund over the past few years.

The ME Association sends our condolences to her family at this very sad time.


Donations have been pouring in via the Kara Jane Sings JustGiving page. The appeal was to raise £100,000 for ME Association to aim for the Ramsay Research Fund.

In an announcement on her website, the family has said they want to raise that £100,000 as a lasting tribute to this beautiful woman. Can you donate to try to help them reach their target?

Social Media

If you'd like to send a message of condolences on social media, many within the ME/CFS community are using the hashtag #LightForKara alongside an image of a candle.

Dr Charles Shepherd,
Trustee and
Hon. Medical Adviser
to the ME Association.
Member of the 2018-2021 NICE Guideline Committee.
Member of the 2002 Independent Working Group on ME/CFS.

Dr Charles Shepherd
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