The Top 10+ priorities for research around ME / CFS have been identified.
These priorities have been determined as a result of rigorous work engaging with thousands of people living with myalgic encephalomyelitis, their families and carers, and health professionals working to support these people.
The report is supported by The Rt Hon, Sajid Javid, MP, Secretary of State for Health and Social Care who states:
“I welcome the publication of this Priority Setting Partnership which sets out the Top 10+ research priorities for ME/CFS. The Government recognises that myalgic encephalomyelitis (ME) is an under-researched area and pledges to support research funders and the academic community to respond to this independent report.”The Rt Hon, Sajid Javid, MP, Secretary of State for Health and Social Care
The list of priority research areas, as well as downloadable and audio versions of the project report, can be downloaded below:
“Now that we have the Top 10+, researchers, funders and government must work with people with ME/CFS to produce the highest quality research into these areas, and continue to prioritise ME”
Gemma Hoyes, PSP steering group member:
“We would like to thank all who took part in the surveys and workshops, the funders, Steering Group, James Lind Alliance and all who supported this project.”
“The ME Association and Forward-ME were represented by Russell Fleming (Communications Manager) on this ME/CFS PSP project. We'd like to thank everyone who took part and those members of the PSP who worked so hard to produce this report. We must now continue to work together to ensure that these identified priorities are fulfilled by seeking researchers who are able to find these answers and through collaborative arrangements with funders e.g. the MRC, NIHR, and other research-funding charities.”