NICE cautions against using graded exercise therapy for patients recovering from COVID-19
GET may not be suitable for treating post-covid syndrome according to NICE. This BMJ article explores the issue with comment from Prof. Paul Garner.
2020
Prudential My RideLondon – A festival of cycling to help save the UK’s charities!
Prudential My RideLondon – A festival of cycling to help save the UK’s charities! Read More »
Help save your charity by taking part or supporting the Prudential My RideLondon event on 15 and 16 August!
The ME Association End of Week Research Round-up
The ME Association End of Week Research Round-up Read More »
This week we feature two published studies about ME/CFS which are about CBT and Mindfulness.
A challenge where YOU can help to drive change in medical attitudes towards ME!
A challenge where YOU can help to drive change in medical attitudes towards ME! Read More »
Pledge your support for the Big Give Challenge and help us to continue our campaign of accurate and timely information to health professionals!
Raising Awareness of Severe ME – A Call for Your Case Studies|15th July 2020
Raising Awareness of Severe ME – A Call for Your Case Studies|15th July 2020 Read More »
Katie Meehan, Social Media Manager In the run-up to Severe
Clinician’s Letter to NICE Results in Statement on Graded Exercise for Post-Covid-Syndrome
In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.
America’s top covid doctor turns ME/CFS into a subject for general discussion as the pandemic deepens
Dr Anthony Fauci from the NIH in America, made an important statement about Post-Covid Syndrome and ME/CFS.
The ME Association End of Week Research Round-up
The ME Association End of Week Research Round-up Read More »
Severe ME features in the two studies published this week: suggestions for healthcare improvements and CPET testing that confirms poor exercise capacity.
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on Read More »
New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.
ME Association Monthly Poll: Your Confidence in the NHS During Covid-19 Lockdown
ME Association Monthly Poll: Your Confidence in the NHS During Covid-19 Lockdown Read More »
During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?
Coronavirus warning as victims staying sick for MONTHS with ‘post-Covid syndrome’
Coronavirus warning as victims staying sick for MONTHS with ‘post-Covid syndrome’ Read More »
The Express: Coronavirus sufferers may be experiencing a “post-Covid syndrome” according to expert Dr Charles Shepherd.
The ME Association End of Week Research Round-up and Index Update
The ME Association End of Week Research Round-up and Index Update Read More »
We highlight and explain 5 of the 10 research studies from last week and update our central research index which is available to download for free.
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd Read More »
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
Free Leaflet: DecodeME – The Largest Ever Genetics Study!
Free Leaflet: DecodeME – The Largest Ever Genetics Study! Read More »
A free leaflet all about the exciting DecodeME research study. It’s the largest ever study examining DNA in people with ME.
Latest Free Leaflet Update: Covid-19 and ME/CFS by Dr Charles Shepherd
Latest Free Leaflet Update: Covid-19 and ME/CFS by Dr Charles Shepherd Read More »
We update our general leaflet on Covid-19 and ME/CFS and this is reproduced below along with all our range of free leaflets about the infection and lockdown.
ME, Myself and I: Caution and Controversy
ME, Myself and I: Caution and Controversy Read More »
“Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’.”
MRC: Largest Genetic Study into ME is Launched!
MRC: Largest Genetic Study into ME is Launched! Read More »
The £3.2 million study is jointly funded by the MRC and hopes to aid development of diagnostic tests and targeted treatments.
The ME Association End of Week Research Round-up
The ME Association End of Week Research Round-up Read More »
This week 5 new research studies have been published. We provide a lay summary of several of them.
The DecodeME Genetics Study: Letters to The Times
The DecodeME Genetics Study: Letters to The Times Read More »
Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn Read More »
The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.