Merryn’s Story: Severe ME Week 2020
Merryn’s Story: Severe ME Week 2020 Read More »
Caring for someone with Very Severe M.E is both an […]
2020
The ME Association End of Week Research Round-up
The ME Association End of Week Research Round-up Read More »
This week we feature three new research studies including a critical review of genetic research ahead of the DecodeME study.
Severe ME Week 2020: Sophia’s Story
Severe ME Week 2020: Sophia’s Story Read More »
The 8th August is Understanding & Remembrance Day for Severe
A long cross-country walk dedicated to his mum and to the ME Association
A long cross-country walk dedicated to his mum and to the ME Association Read More »
M.E. changed his mum from “being called Tigger because she was always so full of life” to someone who now has to count every ounce of energy used in case it runs out and leaves her floored for days.
Severe ME: Why is improvement subject to such harsh judgement and not celebrated?
Severe ME: Why is improvement subject to such harsh judgement and not celebrated? Read More »
“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
The English Channel is no longer in lockdown and these relay swimmers can’t wait to cross it!
The ME Association were nominated for this challenge because of Emily who has been housebound with M.E. for 9 years.
My Severe ME by Alison Love
My Severe ME by Alison Love Read More »
It all started for me in 1992, when I was
Music industry backs Kara Jane’s bid for MEA charity album chart success
Music industry backs Kara Jane’s bid for MEA charity album chart success Read More »
The album is out on Saturday, but the single is out now! Help Kara raise funds for the Post-Mortem Tissue Bank to advance vital research into M.E.
The Untold Stories: Severe ME Week 2020
The Untold Stories: Severe ME Week 2020 Read More »
We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
How it feels to have Very Severe M.E. by Ruth Braham
How it feels to have Very Severe M.E. by Ruth Braham Read More »
“It is incessant, inescapable torture. You are trapped. Completely powerless. You’re in agony with countless unbearable symptoms…”
Severe ME Week: How might healthcare be improved?
Severe ME Week: How might healthcare be improved? Read More »
In this introduction you will find a discussion about the need for suitable healthcare. Also background about severe and very severe M.E. and the support that is available.
The ME Association End of Week Research Round-up and Index Update
The ME Association End of Week Research Round-up and Index Update Read More »
We have updated the central index of ME/CFS published research for July, and include 4 new studies published this week.
My Mummy and M.E. by Holly Peretti
My Mummy and M.E. by Holly Peretti Read More »
Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.
Register Now! The International Association CFS/ME Virtual Conference
Register Now! The International Association CFS/ME Virtual Conference Read More »
The IACFS/ME Virtual Conference is open to all and will be held on Friday 21 August from 3.00PM – 8.30PM UK time.
Meet The Scientist: Professor Chris Ponting – DecodeME
Meet The Scientist: Professor Chris Ponting – DecodeME Read More »
Chris Ponting talks about the DecodeME study that seeks to understand the causes of M.E. and could help advance the discovery of effective treatments.
Update: Post-Covid Fatigue, Post/Long-Covid Syndromes, and ME/CFS
Update: Post-Covid Fatigue, Post/Long-Covid Syndromes, and ME/CFS Read More »
Dr Charles Shepherd explains why we have been devoting so much time and effort to covering issues relating to Post-COVID Syndromes.
Kara Jane’s Musical Legacy – A new single and album will raise funds for vital research into ME!
Severe M.E. Week will get off to a rousing start when Kara Jane Spencer releases an album and single she recorded from bed!
The ME Association End of Week Research Round-up
The ME Association End of Week Research Round-up Read More »
This week 5 new studies have been published and and we highlight 3 of them.
Jessica Taylor-Bearman wins The People’s Book Prize!
Jessica Taylor-Bearman wins The People’s Book Prize! Read More »
‘A Girl Behind Dark Glasses’ has beaten 13 other books on the short list to win an award voted by readers themselves…
Forward-ME Group | Minutes of the meeting held on 10 July 2020
Forward-ME Group | Minutes of the meeting held on 10 July 2020 Read More »
Complete lowdown on almost everything that’s happening in the ME/CFS world right now!