S4C Documentary: Are ME patients being wronged by the government and NHS in Wales? | 14 June 2019
“Something needs to change. Help is needed from the top for that to happen,” Jonathan Vaughan.
“Something needs to change. Help is needed from the top for that to happen,” Jonathan Vaughan.
Scotland: Holyrood celebrates 20 years – ME patients don’t | 13 June 2019 Read More »
There has been little progress in enacting Needs Assessment Recommendations, and little adoption of Good Practice by doctors.
This meeting will discuss experiences of the current benefits process by people with M.E.
“Being diagnosed with ME was like a grieving process, grieving for the old me.” Gary Burgess.
MEA Website Survey: Loneliness and Social Isolation | 06 June 2019 Read More »
We would like to hear about how you deal with loneliness and social isolation.
Tartan pride: the Moran family take the Kiltwalk in their stride | 2 June 2019 Read More »
They’ve been raising money since 2006 – to honour Jim’s wife Maureen who’s had ME for 30 years.
“I am devastated to learn of Jen’s passing. There are tears flowing down my face as I type. Jen was such a force for good in our community.” Helen Hyland, ME Association.
“It is very hard to keep faith in a system which has failed to deliver meaningful support,” Phil Gawne.
“I strongly believe that if I’d received different treatment from doctors, I would not be as ill as I am today,” Jennifer Chittick
ME Awareness: The hidden illness mum and daughter want you to know about | 11 May 2019 Read More »
“I want to get better and lead a normal life. I didn’t choose to be ill like this.” Helen Wood.
ME Awareness: Baz takes his petition to Downing Street… | 10 May 2019 Read More »
“Research is the only way to get sufferers back on track and have the life they deserve.” Baz Hornsby
“You think about the person you could be but can’t. It is almost like losing your personality, losing yourself.” Milly Lowsley.
“This debate helps highlight how existing behavioural approaches and treatments are failing patients.” Carolyn Wilshire.
ME Awareness: The ME Show Special – The Real M.E. – Transcribed | 09 May 2019 Read More »
“Sometimes I feel like M.E. is all I am. But I am also a sister, a friend, a daughter, a partner, a colleague, a graduate and a police officer.” Stephanie.
ME Awareness: The Real ME – Recovery and Me – Gabby’s Story | 09 May 2019 Read More »
“I have shied away from anything that would remind me of that time, that illness; and I am absolutely terrified that my children will suffer with it.” Gabby Coles.
“I now have no regular social life to speak off and have lost contact with most, if not all, of my friends from my old life.” Gemma Corvalan.
“We kept our vows short, just a quick ‘I do’ really.” Emma Donnelly.
“I’ve had ten years of missing out on so many experiences, but also experiencing (enduring?) more than most people ever will.“ Jennifer Chittick.
ME Awareness: Seven things people with ME want you to know | 07 May 2019 Read More »
“My mind is always foggy – once I forgot my own birthday. If you could feel death, I’d say it is living with this.” Milly Lowsley.
“It’s like having flu, tying lead weights to your limbs and attempting to do an Ironman.” Katy Beardsworth.