March 2018

Trinity College: New research network will bolster our understanding of Chronic Fatigue Syndrome | 31 March 2018

There are substantial gaps in our knowledge of the impact of this complex disease, but the new ‘European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome mission is to address these.

Trinity College: New research network will bolster our understanding of Chronic Fatigue Syndrome | 31 March 2018 Read More »

There are substantial gaps in our knowledge of the impact of this complex disease, but the new ‘European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome mission is to address these.

We need your help to exhibit the ME Knitathon in Coventry Cathedral during ME Awareness Week | 29 March 2018

Lauren hopes to display the completed blankets in Coventry Cathedral during ME Awareness Week before donating them to people with severe M.E.

We need your help to exhibit the ME Knitathon in Coventry Cathedral during ME Awareness Week | 29 March 2018 Read More »

Lauren hopes to display the completed blankets in Coventry Cathedral during ME Awareness Week before donating them to people with severe M.E.

The GETSET Trial: Letters to The Lancet and a response from the authors | 26 March 2018

A total of five letters have now appeared in the Lancet critiquing elements of the GETSET trial, and the authors have now issued a response to all of them.

The GETSET Trial: Letters to The Lancet and a response from the authors | 26 March 2018 Read More »

A total of five letters have now appeared in the Lancet critiquing elements of the GETSET trial, and the authors have now issued a response to all of them.

ME Association Press Release: Reanalysis of the PACE trial finds impressive claims are ‘not statistically reliable’ | 22 March 2018

“The message is clear – CBT and GET are not effective ways of treating a serious neuroimmune disease. The sooner this message gets across to health professionals the better.”

ME Association Press Release: Reanalysis of the PACE trial finds impressive claims are ‘not statistically reliable’ | 22 March 2018 Read More »

“The message is clear – CBT and GET are not effective ways of treating a serious neuroimmune disease. The sooner this message gets across to health professionals the better.”

Frontiers Press Release: Chronic fatigue syndrome possibly explained by lower levels of key thyroid hormones | 20 March 2018

Dr Shepherd: ‘This new research demonstrates a defect in thyroid hormone activity rather than actual thyroid gland disease.’

Frontiers Press Release: Chronic fatigue syndrome possibly explained by lower levels of key thyroid hormones | 20 March 2018 Read More »

Dr Shepherd: ‘This new research demonstrates a defect in thyroid hormone activity rather than actual thyroid gland disease.’

The BACME Conference 2018: A summary report from Joan Crawford of Chester MESH | 16 March 2018

Members of the South Sefton ME/CFS Support Group and Chester MESH were were able to hand out leaflets and copies of the ME Association guide to clinical issues to attendees.

The BACME Conference 2018: A summary report from Joan Crawford of Chester MESH | 16 March 2018 Read More »

Members of the South Sefton ME/CFS Support Group and Chester MESH were were able to hand out leaflets and copies of the ME Association guide to clinical issues to attendees.

ME Association Press Release: People with M.E. ‘measurably more disabled’ than people with Multiple Sclerosis | 16 March 2018

“For people with ME/CFS, this is a very important piece of research involving clinical data collected by the ME Biobank.” Dr Charles Shepherd.

ME Association Press Release: People with M.E. ‘measurably more disabled’ than people with Multiple Sclerosis | 16 March 2018 Read More »

“For people with ME/CFS, this is a very important piece of research involving clinical data collected by the ME Biobank.” Dr Charles Shepherd.

Liverpool Echo: Disease like ‘living death’ means mum can only see toddler son a few minutes a day | 11 March 2018

‘He just wants to be with his mum – I’m so full of guilt. I’m supposed to be his mum and I can’t even see him’.

Liverpool Echo: Disease like ‘living death’ means mum can only see toddler son a few minutes a day | 11 March 2018 Read More »

‘He just wants to be with his mum – I’m so full of guilt. I’m supposed to be his mum and I can’t even see him’.

The CFS/ME Research Collaborative (CMRC) Announces Major Change in Policy and New Deputy Chair | 07 March 2018

The CMRC refocuses its research strategy, welcomes individuals with M.E. onto its executive, and Professor Chris Ponting replaces Professor Esther Crawley as Deputy Chair.

The CFS/ME Research Collaborative (CMRC) Announces Major Change in Policy and New Deputy Chair | 07 March 2018 Read More »

The CMRC refocuses its research strategy, welcomes individuals with M.E. onto its executive, and Professor Chris Ponting replaces Professor Esther Crawley as Deputy Chair.

The Alliance Neurological Programme and Neurological Alliance of Scotland – Lived Experience of Neurological Conditions Survey | 04 March 2018

This survey is for all conditions which present with recognisably neurological symptoms, whether or not these are accepted or catered for in current neurological services.

The Alliance Neurological Programme and Neurological Alliance of Scotland – Lived Experience of Neurological Conditions Survey | 04 March 2018 Read More »

This survey is for all conditions which present with recognisably neurological symptoms, whether or not these are accepted or catered for in current neurological services.

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