Sir John Savill, the recently appointed chief executive and deputy chair of the Medical Research Council, will be the main speaker at next week's meeting of the All Party Parliamentary Group on M.E.
All Party Parliamentary Group on M.E.
Chair: Annette Brooke, MP
Vice-Chairs: Countess of Mar, Ian Swales MP
Treasurer: Martin Vickers MP
Secretary: Russell Brown MP
AGENDA
Meeting to be held Tuesday 24th January at 3.30pm
Room N, Portcullis House
1. Welcome by the Chair
2. Speaker:
Prof Sir John Savill, Chief Executive, Medical Research Council
Followed by question and answer session
3. Minutes of the last meeting
4. Matters arising
5. Date of next meeting
6. Any other business
Please note: Meetings of the APPG on M.E. are not open to the public.
I have several questions that I wish someone would ask of Savill.
How can he spend ME funding on Hepatitis C and Sjogrens? ME is a neurological disease not the symptom fatigue.
When is the MRC going to remove all support for the PACE trial and the support of CBT and GET?
Why is the MRC allowing the use of a novel mitochondria test and not one which has a history of use and endorsement?
Why has the MRC not used clinically validated assays in their gamma retrovirus research and why have they ceased testing despite finding the viruses in people?