Tag: The Lost Years

“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”

“Everyone is talking to everyone else and, with so many good people on our side, things will change for us.”

“For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real…”

“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”

“It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20’s and 30’s to this illness.”

“Without doubt my biggest regret has been that I have not been able to have my own family.”

“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”

“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”

“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”

We provide support, reliable information, a voice when needed, and funding for medical research.

“I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips.”

“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”

“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”

“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”

We want to increase the flow of information to GPs and other healthcare professionals about M.E.

“The GP’s I have seen treat everyone based on symptoms rather than the whole illness itself…”

“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”

“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”

“I continue to be confined to the house. Sitting or standing up for more than 2 minutes makes me very lightheaded, so I spend 23 hours each day lying down.”

“I repeatedly pushed myself to return to work. Every time I ended up off sick again. I was bewildered by a situation where the will to be well failed every time.”