The Lost Years

ME Awareness: Living with ME, Self-isolation and Severe Asthma, by Leanne Swift | 29 May 2020

“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”

ME Awareness: Living with ME, Self-isolation and Severe Asthma, by Leanne Swift | 29 May 2020 Read More »

“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”

ME Awareness: “Ted Hughes once said: ‘Poetry needs a reason’. It would appear ME is my reason to write,” by Ffion | 29 May 2020

“Everyone is talking to everyone else and, with so many good people on our side, things will change for us.”

ME Awareness: “Ted Hughes once said: ‘Poetry needs a reason’. It would appear ME is my reason to write,” by Ffion | 29 May 2020 Read More »

“Everyone is talking to everyone else and, with so many good people on our side, things will change for us.”

ME Awareness: “These lost years have been a grieving process; a loss of a past life that seems so far away,” Naomi Gilchrist | 24 May 2020

“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”

ME Awareness: “These lost years have been a grieving process; a loss of a past life that seems so far away,” Naomi Gilchrist | 24 May 2020 Read More »

“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”

ME Awareness: “I was living in a darkened room with my eyes shut for many long years,” Cheryl Russell | 23 May 2020

“It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20’s and 30’s to this illness.”

ME Awareness: “I was living in a darkened room with my eyes shut for many long years,” Cheryl Russell | 23 May 2020 Read More »

“It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20’s and 30’s to this illness.”

ME Awareness: “I was training for the London Marathon, when I felt I’d got a virus that I couldn’t quite shift,” by Tracey Barraclough | 21 May 2020.

“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”

ME Awareness: “I was training for the London Marathon, when I felt I’d got a virus that I couldn’t quite shift,” by Tracey Barraclough | 21 May 2020. Read More »

“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”

ME Awareness: “I went to my GP to be told that M.E. did not exist as a recognised illness!” by Wend Jordan | 20 May 2020

“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”

ME Awareness: “I went to my GP to be told that M.E. did not exist as a recognised illness!” by Wend Jordan | 20 May 2020 Read More »

“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”

ME Awareness Press Release: Mum of tragic teen with devastating illness speaks out about years lost in lockdown | 18 May 2020

“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”

ME Awareness Press Release: Mum of tragic teen with devastating illness speaks out about years lost in lockdown | 18 May 2020 Read More »

“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”

ME Awareness: Failure to accurately diagnose can lead to lifetime of misery and suffering by Debbie Mckno | 17 May 2020

“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”

ME Awareness: Failure to accurately diagnose can lead to lifetime of misery and suffering by Debbie Mckno | 17 May 2020 Read More »

“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”

ME Awareness: “While in many ways it was a relief to finally have a diagnosis, both I and my husband were devastated,” by Carolyn White | 17 May 2020

“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”

ME Awareness: “While in many ways it was a relief to finally have a diagnosis, both I and my husband were devastated,” by Carolyn White | 17 May 2020 Read More »

“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”

ME Awareness: “When my youngest was 11, he asked me if I was going to die. I was horrified,” by Theresa Baynham | 13 May 2020

“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”

ME Awareness: “When my youngest was 11, he asked me if I was going to die. I was horrified,” by Theresa Baynham | 13 May 2020 Read More »

“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”

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