ME Awareness: Living with ME, Self-isolation and Severe Asthma, by Leanne Swift | 29 May 2020
“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”
The Lost Years
ME Awareness: “Ted Hughes once said: ‘Poetry needs a reason’. It would appear ME is my reason to write,” by Ffion | 29 May 2020
“Everyone is talking to everyone else and, with so many good people on our side, things will change for us.”
ME Awareness: “What you need,” he said, “is a job harvesting cabbages,” by Ruth Rookledge | 25 May 2020
“For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real…”
ME Awareness: “These lost years have been a grieving process; a loss of a past life that seems so far away,” Naomi Gilchrist | 24 May 2020
“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”
ME Awareness: “I was living in a darkened room with my eyes shut for many long years,” Cheryl Russell | 23 May 2020
“It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20’s and 30’s to this illness.”
ME Awareness: “I would have been a terrific husband and father if not for ME,” by Russell Fleming | 22 May 2020
“Without doubt my biggest regret has been that I have not been able to have my own family.”
ME Awareness: “I have had symptoms of ME since I was a teenager – over 50 years ago,” by Ann Jones | 22 May 2020
“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”
ME Awareness: “I was training for the London Marathon, when I felt I’d got a virus that I couldn’t quite shift,” by Tracey Barraclough | 21 May 2020.
“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”
ME Awareness: “I went to my GP to be told that M.E. did not exist as a recognised illness!” by Wend Jordan | 20 May 2020
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
The ME Association: We Support, Inform, Advocate and Invest in Biomedical Research | 19 May 2020
We provide support, reliable information, a voice when needed, and funding for medical research.
ME Awareness: The Lost Years: Missionary forced to give up vocation to do battle with ME | 18 May 2020
“I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips.”
ME Awareness Press Release: Mum of tragic teen with devastating illness speaks out about years lost in lockdown | 18 May 2020
“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”
ME Awareness: Failure to accurately diagnose can lead to lifetime of misery and suffering by Debbie Mckno | 17 May 2020
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
ME Awareness: “While in many ways it was a relief to finally have a diagnosis, both I and my husband were devastated,” by Carolyn White | 17 May 2020
“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”
ME Awareness: Let us contact your GP or other healthcare professional and keep them informed about ME | 13 May 2020
We want to increase the flow of information to GPs and other healthcare professionals about M.E.
ME Awareness: “GP’s have not been given any training to recognise a patient with ME,” by Smita Dutta | 13 May 2020
“The GP’s I have seen treat everyone based on symptoms rather than the whole illness itself…”
ME Awareness: “When my youngest was 11, he asked me if I was going to die. I was horrified,” by Theresa Baynham | 13 May 2020
“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”
ME Awareness: The Lost Years by Wendy Coxhill | 11 May 2020
“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”
ME Awareness: The Lost Years by Rachel Hill | 10 May 2020
“I continue to be confined to the house. Sitting or standing up for more than 2 minutes makes me very lightheaded, so I spend 23 hours each day lying down.”
ME Awareness: The Lost Years by Tricia Marsh | 09 May 2020
“I repeatedly pushed myself to return to work. Every time I ended up off sick again. I was bewildered by a situation where the will to be well failed every time.”