Beyond Radio: Family stages protest outside Lancaster hospital calling for teenager to be allowed home
The worried family of a seriously ill teenager have staged […]
Moving house when you have ME/CFS
Moving house when you have ME/CFS Read More »
Moving house can be stressful but add ME/CFS into the mix and the challenge of moving is multiplied 10-fold…
The ME Association Disability Rating Scale
The ME Association Disability Rating Scale Read More »
An improved version of the Disability Rating Scale that can be used by people with ME/CFS and Long Covid.
The ME Association: Raynaud’s Disease Website Survey Results
The ME Association: Raynaud’s Disease Website Survey Results Read More »
“Raynaud’s phenomenon is where your blood stops flowing properly to
Visible: The pacing app for people with ME/CFS and Long Covid
Visible: The pacing app for people with ME/CFS and Long Covid Read More »
Visible is a free mobile phone app designed for those suffering with ME/CFS or Long Covid.
Patient Reported Outcome Measures (PROMs) in ME/CFS
Patient Reported Outcome Measures (PROMs) in ME/CFS Read More »
A welcome review of the Chalder Fatigue Scale has prompted a statement from Professor Tyson about the PROMs project she is leading…
Physio’s for ME achieve funding success for vagus nerve study!
Physio’s for ME achieve funding success for vagus nerve study! Read More »
Physio’s for ME We are thrilled to announce that we
BBC News: Long Covid blood clues could prompt future trials
BBC News: Long Covid blood clues could prompt future trials Read More »
People with long Covid have evidence of continuing inflammation in their blood..
Seven years on and Richard asks for a momento of his achievement
Seven years on and Richard asks for a momento of his achievement Read More »
A running hero of ours from yesteryear has got in
University of Minnesota: No need to avoid exercise with Long Covid diagnosis, researchers say
Recommendations that people with long COVID, or post-COVID condition (PCC),
Deborah wants to say absolutely nothing on World ME Day
Deborah wants to say absolutely nothing on World ME Day Read More »
Deborah Jenkins has promised to shut up. Not to say
The Mirror: hospitalised teen fears she is going to die because doctors don’t agree that she has ME
Millie McAinsh says she’s ‘constantly hurting’ and claims doctors ‘won’t listen’ to her wishes…
Queensland health apologises over Long Covid comments
Queensland health apologises over Long Covid comments Read More »
Queensland’s Acting Chief Health Officer this weekend apologised for the distress caused by the research..
Researchers develop online tool for Long Covid
Researchers develop online tool for Long Covid Read More »
An online tool to support people living with Long Covid aims to encourage people to seek help from healthcare professionals…
RCoA: Podcast: The perioperative management of patients with ME/CFS and Long Covid
RCoA: Podcast: The perioperative management of patients with ME/CFS and Long Covid Read More »
Anaesthesia On Air, the podcast from the Royal College of Anaesthetists about ME/CFS and Long Covid.
Is Low Cortisol a Marker of Long Covid?
Is Low Cortisol a Marker of Long Covid? Read More »
Low levels of cortisol are now being reported in Long Covid. This review is questioning the validity of these findings…
Jessie will be Hannah’s shining star in half marathon!
Jessie will be Hannah’s shining star in half marathon! Read More »
Two best pals who have stood by each other through
Job done! But please keep us in the frame for the next round
Job done! But please keep us in the frame for the next round Read More »
TOGETHER, WE DID IT! WE WON £1,000 IN THE LATEST
Cambridge: Long Covid costs UK economy £1.5billion each year!
Cambridge: Long Covid costs UK economy £1.5billion each year! Read More »
Cambridge macroeconomics‘ new report draws on the latest available evidence
Appearing on Channel 4’s Location, Location, Location, while living with ME/CFS
Appearing on Channel 4’s Location, Location, Location, while living with ME/CFS Read More »
“I felt from the beginning that there was a strong desire from the whole team to not only understand what I was living with, but to help me in any way they could.”