‘ME woman Beth French swims 26 miles to Scilly’ | BBC News | 23 June 2014
‘ME woman Beth French swims 26 miles to Scilly’ | BBC News | 23 June 2014 Read More »
From BBC News, 23 July 2014. A woman who was […]
Alliance launch England-wide survey into neurological care | 22 July 2014
Alliance launch England-wide survey into neurological care | 22 July 2014 Read More »
The Neurological Alliance have launched an online survey to collect information about the experiences people have had with their care.
TGI Friday! Our weekly round-up of recently published research abstracts and related items | 18 July 2014
From the European Journal of Neuroscience, 5 July 2014/ Induction
Let’s stitch together a ‘Memory Quilt’ for Severe ME Day on 8 August 2014
Let’s stitch together a ‘Memory Quilt’ for Severe ME Day on 8 August 2014 Read More »
For some of us, the chance to lie around in
TGI Friday! Our weekly round-up of recently published research abstracts | 11 July 2014
TGI Friday! Our weekly round-up of recently published research abstracts | 11 July 2014 Read More »
One study only for your attention this week – from that ME/CFS centre of research excellence on Australia’s Gold Coast.
Acclaimed County Durham doctor banned from prescribing vitamin B12 | The Journal, Newcastle | 8 July 2014
Dr Joseph Chandy banned from prescribing vitamin B12 for fatigue syndrome
Forward-ME meeting and the NICE Guideline on ME/CFS | statement by the ME Association | 10 July 2014
Mark Baker (pictured) admits NICE ME/CFS Guideline is failing patients – but decision out of NICE’s hands
Forward-ME Group | Minutes of meeting at House of Lords | 25 June 2014
Forward-ME Group | Minutes of meeting at House of Lords | 25 June 2014 Read More »
Present: Countess of Mar (Chairman) Dr Charles Shepherd (MEA) Sonya
Professor Lipkin to guest at special London seminar on September 3 | how to get tickets
Professor Lipkin to guest at special London seminar on September 3 | how to get tickets Read More »
We are delighted to announce that leading US-based researcher Professor
Minutes of the APPG on ME meeting and the AGM | 1 July 2014
Minutes of the APPG on ME meeting and the AGM | 1 July 2014 Read More »
Minutes of AGM held on Tuesday, 1 July, at 1pm,
TGI Friday! Our weekly round-up of recently published research abstracts | 4 July 2014
TGI Friday! Our weekly round-up of recently published research abstracts | 4 July 2014 Read More »
From Frontiers in Neurology, 23 June 2014. Full text available
Health services research + Meridian News report | NHS failing people severely affected by ME/CFS | 1 July 2014
Easy-to-collect information but little by way of provision in this NHS survey of 49 adult ME/CFS services
Discussing the new law that allows a ‘named person’ for every child in Scotland | BBC 1 ‘Sunday Politics’ | 29 June 2014
Lesley Scott puts the Tymes Trust case against – in this well-argued programme on BBC Scotland
We need your views on how the DWP can help people with ME/CFS get back into work – if they want to do so | 27 June 2014
We can’t do a Homer! Dr Shepherd needs some good ideas for his DWP meeting on July 3.
TGI Friday! Our weekly round-up of recently published ME/CFS research abstracts and related items | 27 June 2014
One report this week – a marathon runner’s internal injury misdiagnosed as chronic fatigue syndrome.
Parliamentary Question | are ME/CFS patients being denied their own choice of consultant? | 24 June 2014
The Countess of Mar rejoined the ME/CFS ‘awkward squad’ when she asked this corker of a question.
Lift off for the ‘Ball with no bounce’ | Andy Beaumont premieres his new song | Anglesey, Friday July 11
And a charity music night in aid of the ME Association!