Wales Online: The frail teenager set to spend all of her summer holidays in her bedroom by Mark Smith | 07 August 2019
“Most days she is in bed, but we try to make life as normal as it can be for her. We have to stay strong for her.”
There’s No Point in me having a Netflix subscription or an Audible account by Anna Wood | 07 August 2019
Cognitive symptoms are common for everyone who has M.E., but it is the cognitive fatigue which disables me the most.
The Care Act and M.E. – Positive Decision by the Ombudsman and Case Study| 06 August 2019
This ombudsman decision shines a light on the difficulty that some people with M.E. face in obtaining social care.
My daughter and the pervasive dangers of PACE in paediatric M.E. by Adam Johnson | 06 August 2019
Zoe was put under surveillance – monitors, lights on constantly, nurses watching her eat and humiliatingly insisting on escorting her to the loo…
The Guardian: ME and the perils of internet activism | 29 July 2019
The Guardian: ME and the perils of internet activism | 29 July 2019 Read More »
This latest article continues to shine an uncritical spotlight on an issue that we really don’t think stands up to scrutiny…
MEA Summary Review: The Role of Mitochondria in ME/CFS | 13 July 2019
MEA Summary Review: The Role of Mitochondria in ME/CFS | 13 July 2019 Read More »
This latest review looks at energy production, and the ongoing search for clues as to what might be causing problems in ME/CFS.
MEA Personal: Facing up to Mental Health Challenges | 11 July 2019
MEA Personal: Facing up to Mental Health Challenges | 11 July 2019 Read More »
We’ve been talking about mental health on social media. Russell explains how he’s faced up to these challenges over the years.
Advances in Understanding the Pathophysiology of ME/CFS | 08 July 2019
Advances in Understanding the Pathophysiology of ME/CFS | 08 July 2019 Read More »
When does an illness become a disease? Dr Komaroff explores what we know about the biological abnormalities in ME/CFS.
The Emotional Impact of a Long-term Physical Illness by Anna Redshaw | 08 July 2019
The Emotional Impact of a Long-term Physical Illness by Anna Redshaw | 08 July 2019 Read More »
“No human being can endure what we endure as M.E. sufferers and come away unscathed.”
Three ME patients reveal the accusations they have endured during their battle with the crippling condition | 24 May 2019
“I strongly believe that if I’d received different treatment from doctors, I would not be as ill as I am today,” Jennifer Chittick
ME Awareness: The PACE Trial: How a Debate Over Science Empowered a Whole Community | 09 May 2019
“This debate helps highlight how existing behavioural approaches and treatments are failing patients.” Carolyn Wilshire.
ME Awareness: Cambridge woman reveals the truth about living with a debilitating illness | 08 May 2019
“I now have no regular social life to speak off and have lost contact with most, if not all, of my friends from my old life.” Gemma Corvalan.
ME Awareness: Fit, football-mad Birmingham mum left unable to make it to the loo after devastating diagnosis | 06 May 2019
“Living with ME is like waking up with the worst flu and hangover combined you’ve ever had in your life, every single day.” Nicola Ingram.
ME Awareness: ‘My daughter, 21, who died weighing 5 1/2 stone, had ME on her death certificate – yet some still say it’s not real’ | 06 May 2019
“A neurologist even said “ME is not a real disease.” The medics made her doubt herself and feel ashamed.” Clare Norton.
ME Awareness: What has changed since my daughter Merryn died from ME? Clare Norton | 05 May 2019
“It is time for egos to be put aside, for the science to be listened to, for patients to be listened to and the Hippocratic Oath to be remembered – first, do no harm.” Clare Norton.
Stanford: Biomarker for Chronic Fatigue Syndrome Identified? | 30 April 2019
Stanford: Biomarker for Chronic Fatigue Syndrome Identified? | 30 April 2019 Read More »
“We clearly see a difference in the way healthy and chronic fatigue syndrome immune cells process stress.” Dr Ron Davis.
ME Research Summary: Something In The Blood by Simon McGrath | 27 April 2019
ME Research Summary: Something In The Blood by Simon McGrath | 27 April 2019 Read More »
Four independent groups have now found that a factor in the blood can affect cell metabolism/mitochondria in ME/CFS.
MEA Summary Review: A Critique of the CBT Model in ME/CFS by Dr Keith Geraghty | 27 April 2019
“There is little scientific credibility in the claim that the psycho-behavioural therapies should be primary treatments for this illness.”
MEA Summary Review: UK ME Biobank – MAIT Cells are Increased in Severe ME/CFS | 16 April 2019
We discuss what the new research means and how the Biobank contribution continues to evolve.
ME Biobank Research: Evidence of Clinical Pathology Abnormalities in People with ME/CFS | 12 April 2019
“This is the first report that serum CK concentrations are markedly reduced in severe ME/CFS.”