NHS Ayrshire & Arran are set to receive funding for a combined Long Covid and ME/CFS service, which will transition from the existing post-Covid service based at Irvine Royal and sit within the broader rehabilitation services.
They are seeking feedback via a public survey.
We encourage people, particularly those living in and around the NHS Ayrshire & Arran area, to complete the survey and clearly express what safe, specialist ME/CFS care should look like.
Constructive, informed feedback is essential if services are to reflect current NICE guidance and lived experience.
The form is short and fairly simple to complete.
Survey link:
https://www.smartsurvey.co.uk/s/NHSAA_MECFS_Feedback/
Closing date: Friday 6 March 2026.
- 1️⃣ The MEA has not been involved in the development of this survey or the proposed service model.
- 2️⃣ Specialist ME/CFS referral services should be physician-led, in line with best practice for a complex multisystem condition. It is not currently clear that this is the case here.
- 3️⃣ ME/CFS referral services should not be described as “rehabilitation services.”
The term “rehabilitation” implies restoration to normal health through treatment. There is currently no curative treatment for ME/CFS, and services should focus on specialist medical management, symptom stabilisation, and harm avoidance.