Over the past year, the H4ME Team conducted a pilot project to enhance understanding, access to care, and service quality for individuals living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long Covid (LC).
This initiative documented significant outcomes over 12 months by evaluating existing health and social care provisions, identifying gaps, and proactively engaging with services to drive meaningful change. Despite the progress made, substantial challenges remain, including prolonged waiting times, inconsistent access to care, limited services for severe ME, and outdated treatment methodologies.
Addressing these critical areas will be essential in the future.
Nonetheless, the project made significant progress, including influencing service specifications, eliminating harmful practices, and enhancing referral pathways and clinical guidelines. A notable strength of this initiative has been its emphasis on collaboration and advocacy.
This infographic is a quick overview of the results and outcomes of the year-long project, presented in numbers.
You can find the full report here:
or a more accessible version here: