The Duchess of Kent has passed away age 92
The Duchess of Kent has passed away age 92 Read More »
We are very sorry to learn that the Duchess of […]
News
BBC News: Martha’s rule rolled out to all acute hospitals in England
BBC News: Martha’s rule rolled out to all acute hospitals in England Read More »
Martha’s rule rolled out to all acute hospitals in England
Kara Jane’s family are hosting a fundraising event, and you’re invited!
Kara Jane’s family are hosting a fundraising event, and you’re invited! Read More »
A special fundraising event is due to be held on
News Medical: Research reveals molecular details of ME/CFS and long COVID
News Medical: Research reveals molecular details of ME/CFS and long COVID Read More »
“While what gives rise to ME/CFS remains obscure, understanding the
Clinical Assessment Toolkit Project – The Final Survey
Clinical Assessment Toolkit Project – The Final Survey Read More »
UPDATE 12/09/2025: We have now reached the required number of
The ME Association awards Decode ME the Howes Goudsmit Award 2025
The ME Association awards Decode ME the Howes Goudsmit Award 2025 Read More »
The ME Association are pleased to announce that we have
DHSC announces plans to create new genomics population health service
DHSC announces plans to create new genomics population health service Read More »
On the 28th August, 2025, the Department for Health and
Photo Exhibition: ‘Lives We Cannot Live’ by Jeremy Jeffs
Photo Exhibition: ‘Lives We Cannot Live’ by Jeremy Jeffs Read More »
‘Lives We Cannot Live’ is a ground-breaking new exhibition featuring
Watch the Decode ME Results Webinar online
Watch the Decode ME Results Webinar online Read More »
The initial results for Decode ME, the largest genetic study
Welfare reform round-up: new independent disability panel, applications opening soon
Welfare reform round-up: new independent disability panel, applications opening soon Read More »
Alongside the promised Personal Independence Payment (PIP) review, the Government
SEND reforms: protect legal rights and embed the 2021 NICE Guideline for children with ME/CFS or Long Covid
Parents and campaigners are raising urgent concerns about the government’s
Dr Charles Shepherd interviewed about the state of ME/CFS in the UK on Paradigms podcast
Dr Charles Shepherd interviewed about the state of ME/CFS in the UK on Paradigms podcast Read More »
Dr Ken Friedman (Associate Professor of Pharmacology and Physiology, New
BACME: ME/CFS Tube Feeding Survey
BACME: ME/CFS Tube Feeding Survey Read More »
British Association of Clinicians in ME/CFS (BACME) are conducting a
Annals of Medicine: Mitochondrial function is impaired in long COVID patients
Annals of Medicine: Mitochondrial function is impaired in long COVID patients Read More »
On the 12th August, 2025, the following paper, ‘Mitochondrial function
ME Essential: Winter 2022: Men don’t talk about things – or do they?
ME Essential: Winter 2022: Men don’t talk about things – or do they? Read More »
Along with ME/CFS, David, who also suffers with Postural Tachycardia
ME Essential: Summer 2023: There is always hope!
ME Essential: Summer 2023: There is always hope! Read More »
By Rachel White Before I developed Myalgic Encephalomyelitis, I was
The Times: Medical Misogyny and ME/CFS Research: MEA writes to the Times Editor in response to published letters
The Times published the following letters (9th August 2025) in
Saga of Royal Free Disease by Dr Melvin Ramsay is now an e-book!
Saga of Royal Free Disease by Dr Melvin Ramsay is now an e-book! Read More »
Dr Melvin Ramsay’s book, ‘Myalgic Encephalomyelitis and PostViral Fatigue States:
Sunday Times: Sarah Boothby: As my daughter died of ME, the state met in secret to blame me
**Trigger Warning: Upsetting Content – also discusses the wrongly assumed
Kara Jane’s Father interviewed on Channel 5 News
Kara Jane’s Father interviewed on Channel 5 News Read More »
Kara Jane Spencer was a singer and songwriter living with