Farming Life: Cumbrian farmer features in unique photography exhibition highlighting ME/CFS
The experiences of Cumbrian farmer, Andrew Jackson (58), who has […]
News
Ask your MP to sign the Early Day Motion!
Ask your MP to sign the Early Day Motion! Read More »
Ask your MP to sign the Early Day Motion (EDM)
Have Your Say on Disability And Employment/Volunteering
Have Your Say on Disability And Employment/Volunteering Read More »
We first ran this survey in 2022; we are updating
Disabled people call for an independent PIP review; add your name
Disabled people call for an independent PIP review; add your name Read More »
Disabled people’s organisations have published an open letter calling for
Journal of Clinical Medicine: Autonomic Dysfunction in ME/CFS
Journal of Clinical Medicine: Autonomic Dysfunction in ME/CFS Read More »
ME/CFS patients exhibit a substantial autonomic symptom burden that correlates
MP John Milne writes to Wes Streeting
MP John Milne writes to Wes Streeting Read More »
Under a heading “Concerns regarding ME/CFS Strategy in the Final
Metro: I thought I had food poisoning – it was far worse
Metro: I thought I had food poisoning – it was far worse Read More »
I couldn’t get out of bed. I felt drained, constantly.
Parliamentary questions on ME/CFS and Long Covid research funding, and the Epsom and St Helier NHS Foundation Trust service
MP Tom Morrison, Liberal Democrats asked Ashley Dalton, Parliamentary Under-Secretary
The Duchess of Kent has passed away age 92
The Duchess of Kent has passed away age 92 Read More »
We are very sorry to learn that the Duchess of
BBC News: Martha’s rule rolled out to all acute hospitals in England
BBC News: Martha’s rule rolled out to all acute hospitals in England Read More »
Martha’s rule rolled out to all acute hospitals in England
Kara Jane’s family are hosting a fundraising event, and you’re invited!
Kara Jane’s family are hosting a fundraising event, and you’re invited! Read More »
A special fundraising event is due to be held on
News Medical: Research reveals molecular details of ME/CFS and long COVID
News Medical: Research reveals molecular details of ME/CFS and long COVID Read More »
“While what gives rise to ME/CFS remains obscure, understanding the
Clinical Assessment Toolkit Project – The Final Survey
Clinical Assessment Toolkit Project – The Final Survey Read More »
UPDATE 12/09/2025: We have now reached the required number of
The ME Association awards Decode ME the Howes Goudsmit Award 2025
The ME Association awards Decode ME the Howes Goudsmit Award 2025 Read More »
The ME Association are pleased to announce that we have
DHSC announces plans to create new genomics population health service
DHSC announces plans to create new genomics population health service Read More »
On the 28th August, 2025, the Department for Health and
Photo Exhibition: ‘Lives We Cannot Live’ by Jeremy Jeffs
Photo Exhibition: ‘Lives We Cannot Live’ by Jeremy Jeffs Read More »
‘Lives We Cannot Live’ is a ground-breaking new exhibition featuring
Watch the Decode ME Results Webinar online
Watch the Decode ME Results Webinar online Read More »
The initial results for Decode ME, the largest genetic study
Welfare reform round-up: new independent disability panel, applications opening soon
Welfare reform round-up: new independent disability panel, applications opening soon Read More »
Alongside the promised Personal Independence Payment (PIP) review, the Government
SEND reforms: protect legal rights and embed the 2021 NICE Guideline for children with ME/CFS or Long Covid
Parents and campaigners are raising urgent concerns about the government’s
Dr Charles Shepherd interviewed about the state of ME/CFS in the UK on Paradigms podcast
Dr Charles Shepherd interviewed about the state of ME/CFS in the UK on Paradigms podcast Read More »
Dr Ken Friedman (Associate Professor of Pharmacology and Physiology, New