‘A Girl Behind Dark Glasses’ has beaten 13 other books on the short list to win an award voted by readers themselves…
News | The ME Association- Part 7
Forward-ME Group | Minutes of the meeting held on 10 July 2020
Complete lowdown on almost everything that’s happening in the ME/CFS world right now!
NICE cautions against using graded exercise therapy for patients recovering from COVID-19
GET may not be suitable for treating post-covid syndrome according to NICE. This BMJ article explores the issue with comment from Prof. Paul Garner.
Prudential My RideLondon – A festival of cycling to help save the UK’s charities!
Help save your charity by taking part or supporting the Prudential My RideLondon event on 15 and 16 August!
Fundraising: The Great North Run – Do it a different way this year!
If able, please support the ME Association: Two solo events have been arranged to help celebrate the 40th anniversary of the Great North Run!
The ME Association End of Week Research Round-up
This week we feature two published studies about ME/CFS which are about CBT and Mindfulness.
A challenge where YOU can help to drive change in medical attitudes towards ME!
Pledge your support for the Big Give Challenge and help us to continue our campaign of accurate and timely information to health professionals!
Raising Awareness of Severe ME – A Call for Your Case Studies|15th July 2020
Katie Meehan, Social Media Manager In the run-up to Severe M.E. Week (3rd August), we’re looking for people with Severe M.E. who would like to tell their stories. We want to talk about the key issues that affect arguably the most neglected section of our community, and plan on raising awareness throughout the week commencing Monday, […]
Out Now! The Summer Issue of ME Essential Magazine!
The Summer Magazine is a bumper 68-page issue with news, research, DecodeME, interviews, stories, recipes and much, much more. Become a member today!
Clinician’s Letter to NICE Results in Statement on Graded Exercise for Post-Covid-Syndrome
In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.
America’s top covid doctor turns ME/CFS into a subject for general discussion as the pandemic deepens
Dr Anthony Fauci from the NIH in America, made an important statement about Post-Covid Syndrome and ME/CFS.
The ME Association End of Week Research Round-up
Severe ME features in the two studies published this week: suggestions for healthcare improvements and CPET testing that confirms poor exercise capacity.
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on
New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.
ME Association Monthly Poll: Your Confidence in the NHS During Covid-19 Lockdown
During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?
Coronavirus warning as victims staying sick for MONTHS with ‘post-Covid syndrome’
The Express: Coronavirus sufferers may be experiencing a “post-Covid syndrome” according to expert Dr Charles Shepherd.
The ME Association End of Week Research Round-up and Index Update
We highlight and explain 5 of the 10 research studies from last week and update our central research index which is available to download for free.
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
Free Leaflet: DecodeME – The Largest Ever Genetics Study!
A free leaflet all about the exciting DecodeME research study. It’s the largest ever study examining DNA in people with ME.
Latest Free Leaflet Update: Covid-19 and ME/CFS by Dr Charles Shepherd
We update our general leaflet on Covid-19 and ME/CFS and this is reproduced below along with all our range of free leaflets about the infection and lockdown.
ME, Myself and I: Caution and Controversy
“Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’.”