News | The ME Association- Part 7

‘A Girl Behind Dark Glasses’ has beaten 13 other books on the short list to win an award voted by readers themselves…

Complete lowdown on almost everything that’s happening in the ME/CFS world right now!

GET may not be suitable for treating post-covid syndrome according to NICE. This BMJ article explores the issue with comment from Prof. Paul Garner.

Help save your charity by taking part or supporting the Prudential My RideLondon event on 15 and 16 August!

If able, please support the ME Association: Two solo events have been arranged to help celebrate the 40th anniversary of the Great North Run!

This week we feature two published studies about ME/CFS which are about CBT and Mindfulness.

Pledge your support for the Big Give Challenge and help us to continue our campaign of accurate and timely information to health professionals!

Katie Meehan, Social Media Manager In the run-up to Severe M.E. Week (3rd August), we’re looking for people with Severe M.E. who would like to tell their stories. We want to talk about the key issues that affect arguably the most neglected section of our community, and plan on raising awareness throughout the week commencing Monday, […]

The Summer Magazine is a bumper 68-page issue with news, research, DecodeME, interviews, stories, recipes and much, much more. Become a member today!

In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.

Dr Anthony Fauci from the NIH in America, made an important statement about Post-Covid Syndrome and ME/CFS.

Severe ME features in the two studies published this week: suggestions for healthcare improvements and CPET testing that confirms poor exercise capacity.

New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.

During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?

The Express: Coronavirus sufferers may be experiencing a “post-Covid syndrome” according to expert Dr Charles Shepherd.

We highlight and explain 5 of the 10 research studies from last week and update our central research index which is available to download for free.

The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.

A free leaflet all about the exciting DecodeME research study. It’s the largest ever study examining DNA in people with ME.

We update our general leaflet on Covid-19 and ME/CFS and this is reproduced below along with all our range of free leaflets about the infection and lockdown.

“Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’.”