The GETSET Trial: Letters to The Lancet and a response from the authors | 26 March 2018 Read More »
A total of five letters have now appeared in the Lancet critiquing elements of the GETSET trial, and the authors have now issued a response to all of them.
“Forced exercise above very low levels characteristically incapacitates most patients.”
“The message is clear – CBT and GET are not effective ways of treating a serious neuroimmune disease. The sooner this message gets across to health professionals the better.”
Dr Shepherd: ‘This new research demonstrates a defect in thyroid hormone activity rather than actual thyroid gland disease.’
“For people with ME/CFS, this is a very important piece of research involving clinical data collected by the ME Biobank.” Dr Charles Shepherd.
A controversial medical trial part-funded by the Department of Work of Pensions will emerge as “one of the greatest medical scandals of the 21st century” an MP today claimed.
There is an overlap in symptom presentation between Pernicious Anaemia and M.E. and the lack of routine testing in the current NICE guideline for ME/CFS has now been challenged.
A new study suggests that a blood test following exercise may be a very good way to differentiate between people who have ME/CFS and people who don’t.
NICE announces next steps in updating its guideline on ME/CFS | 16 February 2018 Read More »
NICE has also confirmed the next steps in the development of the new guideline, starting with a further workshop with stakeholder organisations on 25 May to discuss the scope of the guideline.
A recent study from a research group at Newcastle University has found that patients with ME/CFS have significantly higher levels of a hormone called BNP in their blood and that this also correlated with significantly lower cardiac volumes.
Dr Charles Shepherd and Dr William Weir, met with Carol Monaghan MP yesterday, to discuss and advise on the Westminster Hall debate on the PACE trial that is taking place on 20th February.
Jennifer Brea, the director of an award-winning film about the difficulties of living with ME, will join the calls for enhanced care during an event at the Scottish Parliament this evening.
The National Institutes of Health is trying hard to bring real hope — not false hope — to patients with ME/CFS, NIH director Francis Collins, MD, PhD, said during an exclusive interview with MedPage Today.
Dr Charles Shepherd summarises the key points to emerge from the NICE Stakeholders Engagement Workshop that took place on Tuesday 16th January 2018.
A new film sheds light on a condition that is largely ignored. Nathalie Wright reports on the struggles patients face to be taken seriously by doctors.
Nature News Feature: A reboot for chronic fatigue syndrome research | 04 January 2018 Read More »
This is an excellent feature article that focuses on the developing research situation in America, but also includes items relevant to the situation here in the UK.
A recent scientific trial has led to acrimonious debates over chronic fatigue syndrome, aka ME, and boosted interest in a secretive therapy that some call a “cult” and others call a “miracle”.
The Hippocratic Post: Unrest – a new film about ME | 27 November 2017 Read More »
The following article appeared in The Hippocratic Post, and was written by Rebecca Wallersteiner, on 25th November, 2017. It features comment from Sarah Staples, and Dr Charles Shepherd, from the ME Association.
“Despite the headline negative finding, we believe that this trial will still provide useful insights and contribute to a better understanding of M.E., and we also have the results from the Cyclophosphamide clinical trial to look forward to. We are very pleased that this knowledgeable, and valued, research team will continue with their work, trying to find answers to the M.E. puzzle.”
Cara Tomas is a PhD student working with Professor Julia Newton at the Institute of Cellular Medicine, and her research was featured in the New Scientist last week.
