The House: Carol Monaghan: We must change perceptions of the debilitating illness M.E. | 19 June 2018
Carol Monaghan, MP, is leading the debate on M.E. in Westminster Hall on Thursday, 21st June, 2018.
The Herald: After 25 years battling illness, actor prepares to showcase new film | 14 June 2018
The actor has adopted a holistic approach to self-care, at the centre of which lies a disciplined approach to sleep, nutrition, hydration and mental focus.
Carol Monaghan and other MPs secure Westminster Hall debate on M.E. | 07 June 2018
Carol Monaghan and other MPs secure Westminster Hall debate on M.E. | 07 June 2018 Read More »
Debate will take place on 21st June. Parliamentary briefing issued. Please invite your MP to attend!
ME Association May Summary of ME/CFS Published Research | 07 June 2018
ME Association May Summary of ME/CFS Published Research | 07 June 2018 Read More »
The latest ME research abstracts for the month of May, and a newly updated research index.
The Times: ME sufferer who was dismissed as hysterical vindicated in death | 29 May 2018
The Times: ME sufferer who was dismissed as hysterical vindicated in death | 29 May 2018 Read More »
“We had doctors saying we just don’t believe in ME. When everyone is saying that to you it’s like a nightmare you can’t get out of.”
The ME Association and Press Coverage of Merryn Crofts Inquest by Dr Charles Shepherd | 28 May 2018
Dr Shepherd reflects on the recent inquest findings and media reports into Merryn’s tragic death from M.E.
2018 CMRC Research Conference: Register Now for ME/CFS Bristol Conference | 25 May 2018
2018 CMRC Research Conference: Register Now for ME/CFS Bristol Conference | 25 May 2018 Read More »
The CMRC Research Conference is a fantastic opportunity for researchers and patients to network and to hear more about M.E. research developments.
Government Inquiry into support for children and young people with special educational needs and disabilities (SEND) | 23 May 2018
The Education Committee is seeking parental views on SEND which may affect children with M.E.
Inquest Ruling: Young drama student Merryn Crofts killed by M.E. | 18 May 2018
Inquest Ruling: Young drama student Merryn Crofts killed by M.E. | 18 May 2018 Read More »
Pathologist Daniel DuPlessis pointed out that Merryn had inflammation of the ganglia – gatekeepers to sensations in the brain.
ME Association Ramsay Research Fund invests in new study with ME/CFS Biobank to examine dysfunctional immune system and energy metabolism | 15 May 2018
New research that will examine both immune system dysfunction in M.E. and defects in the way that energy is being produced at a cellular level.
ME Awareness Day: BBC Newsbeat – Millions Missing London Protest | 14 May 2018
ME Awareness Day: BBC Newsbeat – Millions Missing London Protest | 14 May 2018 Read More »
“The way I describe it is I’m actually grieving the loss of my sister because she’s not around anymore.”
The Sun: Devastating Disease – Family of girl killed by ME reveal how they were told by doctors it was all in her head, before it robbed her of everything | 09 May 2018
Due to the stigma of the condition Merryn was “embarrassed” about having ME, and was reluctant to tell people that was what was wrong with her.
ME Awareness Week: BBC Newsbeat – Chronic fatigue: I was ‘held hostage by ME’ | 08 May 2018
I had just finished my GCSEs when I got ill. I noticed I was getting worn out uncharacteristically quickly.
ME Awareness Week: BBC Newsbeat – Chronic fatigue syndrome treatment ‘should be withdrawn’ | 08 May 2018
Dr Shepherd says the problem with GET is that it’s too rigid and pushes patients too far.
ME Awareness Week: Workwell Foundation – Graded exercise for ME/CFS is ‘detrimental to the health of patients and should not be recommended’ | 07 May 2018
“Graded exercise therapy mistakenly assumes that ME/CFS fatigue and disability result from inactivity and deconditioning.”
The Irish News: Hope for ME: Co Down woman’s campaign for the thousands living with chronic fatigue syndrome | 02 May 2018
Joan McParland found herself bed bound due to the debilitating, energy sapping condition ME, but she is now helping others with the illness to campaign for an improvement in services.
Huffington Post: I Am Stuck In The Prison That Is ME | 13 April 2018
Huffington Post: I Am Stuck In The Prison That Is ME | 13 April 2018 Read More »
Have you ever laid in bed and felt so ill that you truly thought you were going to die?
ME Association March Summary of ME/CFS Published Research | 09 April 2018
ME Association March Summary of ME/CFS Published Research | 09 April 2018 Read More »
The monthly summary of ME/CFS research publications for March 2018.
Forward ME to Science Media Centre ‘Retract and replace your factsheet on CFS/ME’ | 05 April 2018
The Countess of Mar writes on behalf of Forward ME to the Science Media Centre asking for a retraction of inaccuracies in their ‘factsheet’ on ME/CFS.
‘Bed-bound and in unimaginable pain, watching my daughter waste away and die from ME was torture’ | 02 April 2018
Merryn Crofts died on May 23 last year, 10 days after her 21st birthday.