** TRIGGER WARNING: This post contains upsetting content **
Yesterday, The Times reported on Savannah Victora-May, 23, who has Severe ME and been in hospital for 11 months. Her case was raised in Parliament two weeks ago by Tessa Munt, MP and Chair of the APPG on ME. Savannah's family and friends have set up a petition for her, which you can see here.
Extracts:
Campaigners say the suffering of Savannah Victora-May, 23, highlights NHS inaction over recommendations that it set up specialist services for severe cases.
She has severe myalgic encephalomyelitis (ME) and her condition has deteriorated rapidly. Victora-May is unable to eat or drink and is in severe pain, drifting in and out of consciousness. She has lost 30kg since her admission in March and has eaten nothing since January 18.
Speaking from hospital via a friend, Victora-May described the pain as “like being lowered into a bath of acid and the acid rating gets turned up more and more every half hour”.
More Information:
- MP Tessa Munt raises issues of the lack of specialist services for those severely affected by ME/CFS | February 11, 2026
- Petition: Save Savannah Victora-May – Prevent Another ME/CFS Tragedy
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