Researchers develop online tool for Long Covid
Researchers develop online tool for Long Covid Read More »
An online tool to support people living with Long Covid aims to encourage people to seek help from healthcare professionals…
March 2024
RCoA: Podcast: The perioperative management of patients with ME/CFS and Long Covid
RCoA: Podcast: The perioperative management of patients with ME/CFS and Long Covid Read More »
Anaesthesia On Air, the podcast from the Royal College of Anaesthetists about ME/CFS and Long Covid.
Is Low Cortisol a Marker of Long Covid?
Is Low Cortisol a Marker of Long Covid? Read More »
Low levels of cortisol are now being reported in Long Covid. This review is questioning the validity of these findings…
Jessie will be Hannah’s shining star in half marathon!
Jessie will be Hannah’s shining star in half marathon! Read More »
Two best pals who have stood by each other through
Job done! But please keep us in the frame for the next round
Job done! But please keep us in the frame for the next round Read More »
TOGETHER, WE DID IT! WE WON £1,000 IN THE LATEST
Cambridge: Long Covid costs UK economy £1.5billion each year!
Cambridge: Long Covid costs UK economy £1.5billion each year! Read More »
Cambridge macroeconomics‘ new report draws on the latest available evidence
Appearing on Channel 4’s Location, Location, Location, while living with ME/CFS
Appearing on Channel 4’s Location, Location, Location, while living with ME/CFS Read More »
“I felt from the beginning that there was a strong desire from the whole team to not only understand what I was living with, but to help me in any way they could.”
Byline Times: ‘A Rollercoaster Of Awful Emotions’
Byline Times: ‘A Rollercoaster Of Awful Emotions’ Read More »
Millie McAinsh’s family sought help when the ME sufferer could no longer eat – only for her to to be sectioned…
America: ‘ME/CFS is unambiguously biological, with multiple organ systems affected…’ Dr Avindra Nath
Led by neurologist Avindra Nath, MD, the researchers report several physiological differences between people with ME/CFS and healthy volunteers.
Failings in the care of patients with Very Severe ME by Dr Nigel Speight
Failings in the care of patients with Very Severe ME by Dr Nigel Speight Read More »
In the UK over recent years there have been a succession of cases of very severe ME who have been mismanaged by the medical profession, in the worst cases with fatal consequences.
Open Access Government: Understanding the impact of ME/CFS with Dr Charles Shepherd
Open Access Government: Understanding the impact of ME/CFS with Dr Charles Shepherd Read More »
ME/CFS is a disabling, multisystem, and often long-term illness that involves the brain, muscle, and immune system.
Australia: ‘Long Covid may be no different from other post-viral syndromes’
Australia: ‘Long Covid may be no different from other post-viral syndromes’ Read More »
Queenland’s Chief Health Officer Dr John Gerrard, said it was “time to stop using terms like ‘long Covid”…
The Guardian: Letters: Why ME/CFS is still so poorly researched and treated
The Guardian: Letters: Why ME/CFS is still so poorly researched and treated Read More »
‘George Monbiot has written an excellent critique of why the medical profession is still failing to provide proper care for people with ME/CFS…’
Appraisal: NICE Guideline on ME/CFS: diagnosis and management
Appraisal: NICE Guideline on ME/CFS: diagnosis and management Read More »
The NICE Guideline rejects the notion that ME/CFS is caused by deconditioning….
BMJ: Cognitive dysfunction in Long Covid – and in ME/CFS!
BMJ: Cognitive dysfunction in Long Covid – and in ME/CFS! Read More »
A recent review published by the British Medical Journal on Long Covid… that didn’t consider the notable overlap with ME/CFS…
Time’s running out – could you spare us a minute?
Time’s running out – could you spare us a minute? Read More »
Time’s running out, please, for people to nominate us in
The Guardian: The outdated treatment of ME/CFS patients is a national scandal!
The Guardian: The outdated treatment of ME/CFS patients is a national scandal! Read More »
The new evidence-led thinking has yet to penetrate parts of the health system: some patients are still being mistreated.
But Kieran couldn’t make it to the finishing line
But Kieran couldn’t make it to the finishing line Read More »
Spring was in the air, and in the soles of
Putting their best feet forward for Kieran
Putting their best feet forward for Kieran Read More »
In a tribute to the support we’ve given them, six
Renaissance for the sport at Pot Black, Bury St Edmunds
Renaissance for the sport at Pot Black, Bury St Edmunds Read More »
Colin Freeman has got charity fundraising in his home county