The challenges carers face when caring for people with ME/CFS
The challenges carers face when caring for people with ME/CFS Read More »
Pretending everything is Normal It took seven months for John […]
2021
Guardian Article: I rested my way to recovery from long Covid. I urge others to do the same
Fiona Lowenstein writes in the Guardian of her experience of resting
Open Letters to Healthcare Professionals from people with ME/CFS – Part 8 Andrew
Open Letters to Healthcare Professionals from people with ME/CFS – Part 8 Andrew Read More »
I’m Andrew and have had ME/CFS for over 20 years. It’s been a difficult road, but you have seen me over that time to try to help. Some of you have been helpful and some have been understanding, and I thank you for that.
Being a carer for someone with ME/CFS
Being a carer for someone with ME/CFS Read More »
Are you a carer? I am. I am not a
Long Covid and ME/CFS: Autoantibodies, neurotransmitters and autonomic nervous system dysfunction
The new paper in Nature looks at the possible role of two specific neurotransmitter receptor autoantibodies in Long COVID and ME/CFS
Guest Blog: The Shame
Guest Blog: The Shame Read More »
I’m ashamed to say I have M.E. I’ve collapsed in
Open Letters to Healthcare Professionals from people with ME/CFS – Part 7 Nancy
Open Letters to Healthcare Professionals from people with ME/CFS – Part 7 Nancy Read More »
Please be aware of the effects of going through the peri-menopause, and then the menopause, for women with ME.
MEA Research Review: Altered Endothelial Function in ME/CFS Blood Plasma
MEA Research Review: Altered Endothelial Function in ME/CFS Blood Plasma Read More »
A recent publication by Blauensteiner et al. based in Austria
Open Letters to Healthcare Professionals from people with ME/CFS – Part 6 Angela & Stuart
The new NICE Clinical Guideline for ME/CFS is due to be published
Open Letters to Healthcare Professionals from people with ME/CFS – Part 5 Maryjane
Open Letters to Healthcare Professionals from people with ME/CFS – Part 5 Maryjane Read More »
The new NICE Clinical Guideline for ME/CFS is due to be published
MEA Letter Published by The Times re: Why is Britain the Long Covid capital of the world?
Following a disappointing article from Josh Glancy that appeared in
Nature Article: The four most urgent questions about long COVID
Nature Article: The four most urgent questions about long COVID Read More »
Scientists are starting to get insights into the lingering disorder
Dr Shepherd on Treating Long Covid with Histamine Receptor Antagonists
Dr Shepherd on Treating Long Covid with Histamine Receptor Antagonists Read More »
Earlier this year I attended a medical webinar where we
Research: Medical School Education on Myalgic Encephalomyelitis by Dr Nina Muirhead
Research: Medical School Education on Myalgic Encephalomyelitis by Dr Nina Muirhead Read More »
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex multi-system disease with a significant impact on the quality of life of patients and their families, yet the majority of ME/CFS patients go unrecognised or undiagnosed.
Orthodoxy on trial: the pathogenesis of a diagnosis
Orthodoxy on trial: the pathogenesis of a diagnosis Read More »
David J Black looks at the shameful treatment of ME/CFS
Open Letters to Healthcare Professionals from people with ME/CFS – Part 4 Lianne
Open Letters to Healthcare Professionals from people with ME/CFS – Part 4 Lianne Read More »
Against the background of a new NICE Clinical Guideline for
Open Letters to Healthcare Professionals from people with ME/CFS – Part 3 Anne and Maryjane
Against the background of a new NICE Clinical Guideline for
Open Letters to Healthcare Professionals from people with ME/CFS – Part 2 Nicola and Jules
Against the background of a new NICE Clinical Guideline for
Open Letters to Healthcare Professionals from people with ME/CFS – Part 1 Kate and Margaret
Against the background of a new NICE Clinical Guideline for
Guest blog: “I’m learning to use the word ‘fatigue’ as tiredness doesn’t leave you collapsing on the floor and crying like a baby.”
For me this is hard. Putting down in words how